Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation

Background: Caring for a child with disabilities in a resource-poor setting brings many challenges to the caregiver. We examined the development of self-help groups for caregivers in a rural part of Kenya. Objectives: To conduct a process evaluation on the development of self-help groups during a 1...

Full description

Bibliographic Details
Main Authors: Joseph K. Gona, Charles Newton, Sally Hartley, Karen Bunning
Format: Article
Language:English
Published: AOSIS 2020-07-01
Series:African Journal of Disability
Subjects:
Online Access:https://ajod.org/index.php/ajod/article/view/650
_version_ 1818248726767992832
author Joseph K. Gona
Charles Newton
Sally Hartley
Karen Bunning
author_facet Joseph K. Gona
Charles Newton
Sally Hartley
Karen Bunning
author_sort Joseph K. Gona
collection DOAJ
description Background: Caring for a child with disabilities in a resource-poor setting brings many challenges to the caregiver. We examined the development of self-help groups for caregivers in a rural part of Kenya. Objectives: To conduct a process evaluation on the development of self-help groups during a 10-month set-up period, focusing on implementation and mechanisms associated with their functional status. Methods: Using a realist evaluation design, we set up 20 self-help groups for 254 caregivers. An evaluation was conducted to investigate implementation and mechanisms of impact. Implementation focused on caregiver registration, community group support and monitoring visit compliance. Data were collected from group registers, records of meetings and field notes. Mechanisms of impact employed a framework of strengths–weaknesses–opportunities–threats to review the groups at the end of the 10-month set-up period. Results: Recruitment resulted in registration of 254 participants to 18 groups – two groups disbanded early. Post-evaluation included 11 active and 7 inactive groups. Compliance with the monitoring visits was consistent across the active groups. All groups engaged in ‘merry-go-round’ activities. The active groups were characterised by strong leadership and at least one successful income generation project; the inactive had inconsistent leadership and had dishonest behaviour both within the group and/or externally in the community. Mediators associated with functional status included the following: available literacy and numeracy skills, regular meetings with consistent attendance by the members, viable income generating projects, geographical proximity of membership and strong leadership for managing threats. Conclusion: Self-help groups have the potential to progress in resource-poor settings. However, critical to group progression are literacy and numeracy skills amongst the members, their geographical proximity, regular meetings of the group, viable income generating projects and strong leadership.
first_indexed 2024-12-12T15:25:11Z
format Article
id doaj.art-1e3667e9d60549b3ba7c97bb8c3b2a6d
institution Directory Open Access Journal
issn 2223-9170
2226-7220
language English
last_indexed 2024-12-12T15:25:11Z
publishDate 2020-07-01
publisher AOSIS
record_format Article
series African Journal of Disability
spelling doaj.art-1e3667e9d60549b3ba7c97bb8c3b2a6d2022-12-22T00:20:16ZengAOSISAfrican Journal of Disability2223-91702226-72202020-07-0190e1e910.4102/ajod.v9i0.650227Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluationJoseph K. Gona0Charles Newton1Sally Hartley2Karen Bunning3Kuhenza for the Children Foundation, MalindiCentre for Geographic Research, Coast, Kenya Medical Research Institute, Kilifi, Kenya; and, Department of Psychiatry, Oxford University, OxfordDepartment of Psychology, University of Sydney, SydneySchool of Health Sciences, University of East Anglia, NorfolkBackground: Caring for a child with disabilities in a resource-poor setting brings many challenges to the caregiver. We examined the development of self-help groups for caregivers in a rural part of Kenya. Objectives: To conduct a process evaluation on the development of self-help groups during a 10-month set-up period, focusing on implementation and mechanisms associated with their functional status. Methods: Using a realist evaluation design, we set up 20 self-help groups for 254 caregivers. An evaluation was conducted to investigate implementation and mechanisms of impact. Implementation focused on caregiver registration, community group support and monitoring visit compliance. Data were collected from group registers, records of meetings and field notes. Mechanisms of impact employed a framework of strengths–weaknesses–opportunities–threats to review the groups at the end of the 10-month set-up period. Results: Recruitment resulted in registration of 254 participants to 18 groups – two groups disbanded early. Post-evaluation included 11 active and 7 inactive groups. Compliance with the monitoring visits was consistent across the active groups. All groups engaged in ‘merry-go-round’ activities. The active groups were characterised by strong leadership and at least one successful income generation project; the inactive had inconsistent leadership and had dishonest behaviour both within the group and/or externally in the community. Mediators associated with functional status included the following: available literacy and numeracy skills, regular meetings with consistent attendance by the members, viable income generating projects, geographical proximity of membership and strong leadership for managing threats. Conclusion: Self-help groups have the potential to progress in resource-poor settings. However, critical to group progression are literacy and numeracy skills amongst the members, their geographical proximity, regular meetings of the group, viable income generating projects and strong leadership.https://ajod.org/index.php/ajod/article/view/650caregiverschildren with disabilitiescommunity-based inclusive developmentself-help groups
spellingShingle Joseph K. Gona
Charles Newton
Sally Hartley
Karen Bunning
Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
African Journal of Disability
caregivers
children with disabilities
community-based inclusive development
self-help groups
title Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
title_full Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
title_fullStr Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
title_full_unstemmed Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
title_short Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
title_sort development of self help groups for caregivers of children with disabilities in kilifi kenya process evaluation
topic caregivers
children with disabilities
community-based inclusive development
self-help groups
url https://ajod.org/index.php/ajod/article/view/650
work_keys_str_mv AT josephkgona developmentofselfhelpgroupsforcaregiversofchildrenwithdisabilitiesinkilifikenyaprocessevaluation
AT charlesnewton developmentofselfhelpgroupsforcaregiversofchildrenwithdisabilitiesinkilifikenyaprocessevaluation
AT sallyhartley developmentofselfhelpgroupsforcaregiversofchildrenwithdisabilitiesinkilifikenyaprocessevaluation
AT karenbunning developmentofselfhelpgroupsforcaregiversofchildrenwithdisabilitiesinkilifikenyaprocessevaluation