A Sensitive Data Access Model in Support of Learning Health Systems

Given the ever-growing body of knowledge, healthcare improvement hinges more than ever on efficient knowledge transfer to clinicians and patients. Promoted initially by the Institute of Medicine, the Learning Health System (LHS) framework emerged in the early 2000s. It places focus on learning cycle...

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Main Authors: Thibaud Ecarot, Benoît Fraikin, Luc Lavoie, Mark McGilchrist, Jean-François Ethier
Format: Article
Language:English
Published: MDPI AG 2021-02-01
Series:Computers
Subjects:
Online Access:https://www.mdpi.com/2073-431X/10/3/25
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author Thibaud Ecarot
Benoît Fraikin
Luc Lavoie
Mark McGilchrist
Jean-François Ethier
author_facet Thibaud Ecarot
Benoît Fraikin
Luc Lavoie
Mark McGilchrist
Jean-François Ethier
author_sort Thibaud Ecarot
collection DOAJ
description Given the ever-growing body of knowledge, healthcare improvement hinges more than ever on efficient knowledge transfer to clinicians and patients. Promoted initially by the Institute of Medicine, the Learning Health System (LHS) framework emerged in the early 2000s. It places focus on learning cycles where care delivery is tightly coupled with research activities, which in turn is closely tied to knowledge transfer, ultimately injecting solid improvements into medical practice. Sensitive health data access across multiple organisations is therefore paramount to support LHSs. While the LHS vision is well established, security requirements to support them are not. Health data exchange approaches have been implemented (e.g., HL7 FHIR) or proposed (e.g., blockchain-based methods), but none cover the entire LHS requirement spectrum. To address this, the Sensitive Data Access Model (SDAM) is proposed. Using a representation of agents and processes of data access systems, specific security requirements are presented and the SDAM layer architecture is described, with an emphasis on its mix-network dynamic topology approach. A clinical application benefiting from the model is subsequently presented and an analysis evaluates the security properties and vulnerability mitigation strategies offered by a protocol suite following SDAM and in parallel, by FHIR.
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spelling doaj.art-1e95d85f15594bc8a9e3a93b70ab3b132023-12-11T18:33:10ZengMDPI AGComputers2073-431X2021-02-011032510.3390/computers10030025A Sensitive Data Access Model in Support of Learning Health SystemsThibaud Ecarot0Benoît Fraikin1Luc Lavoie2Mark McGilchrist3Jean-François Ethier4Centre Interdisciplinaire de Recherche en Informatique de la Santé, Université de Sherbrooke, Sherbrooke, QC J1K 2R1, CanadaCentre Interdisciplinaire de Recherche en Informatique de la Santé, Université de Sherbrooke, Sherbrooke, QC J1K 2R1, CanadaCentre Interdisciplinaire de Recherche en Informatique de la Santé, Université de Sherbrooke, Sherbrooke, QC J1K 2R1, CanadaCentre Interdisciplinaire de Recherche en Informatique de la Santé, Université de Sherbrooke, Sherbrooke, QC J1K 2R1, CanadaCentre Interdisciplinaire de Recherche en Informatique de la Santé, Université de Sherbrooke, Sherbrooke, QC J1K 2R1, CanadaGiven the ever-growing body of knowledge, healthcare improvement hinges more than ever on efficient knowledge transfer to clinicians and patients. Promoted initially by the Institute of Medicine, the Learning Health System (LHS) framework emerged in the early 2000s. It places focus on learning cycles where care delivery is tightly coupled with research activities, which in turn is closely tied to knowledge transfer, ultimately injecting solid improvements into medical practice. Sensitive health data access across multiple organisations is therefore paramount to support LHSs. While the LHS vision is well established, security requirements to support them are not. Health data exchange approaches have been implemented (e.g., HL7 FHIR) or proposed (e.g., blockchain-based methods), but none cover the entire LHS requirement spectrum. To address this, the Sensitive Data Access Model (SDAM) is proposed. Using a representation of agents and processes of data access systems, specific security requirements are presented and the SDAM layer architecture is described, with an emphasis on its mix-network dynamic topology approach. A clinical application benefiting from the model is subsequently presented and an analysis evaluates the security properties and vulnerability mitigation strategies offered by a protocol suite following SDAM and in parallel, by FHIR.https://www.mdpi.com/2073-431X/10/3/25healthcareprotocolsnetwork securitycommunication system securitydata security
spellingShingle Thibaud Ecarot
Benoît Fraikin
Luc Lavoie
Mark McGilchrist
Jean-François Ethier
A Sensitive Data Access Model in Support of Learning Health Systems
Computers
healthcare
protocols
network security
communication system security
data security
title A Sensitive Data Access Model in Support of Learning Health Systems
title_full A Sensitive Data Access Model in Support of Learning Health Systems
title_fullStr A Sensitive Data Access Model in Support of Learning Health Systems
title_full_unstemmed A Sensitive Data Access Model in Support of Learning Health Systems
title_short A Sensitive Data Access Model in Support of Learning Health Systems
title_sort sensitive data access model in support of learning health systems
topic healthcare
protocols
network security
communication system security
data security
url https://www.mdpi.com/2073-431X/10/3/25
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