« Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence

Research Framework: Dietary characteristics are a pervasive feature of how children with Autism Spectrum Disorder (ASD) function. This aspect requires family members to support, adjust and reorganize daily activities in the provision of food and in ensuring proper health. Objectives: This article fo...

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Main Author: Amandine Rochedy
Format: Article
Language:English
Published: Centre Urbanisation Culture Société (UCS) de l'INRS 2017-12-01
Series:Enfances, Familles, Générations
Subjects:
Online Access:http://journals.openedition.org/efg/1752
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author Amandine Rochedy
author_facet Amandine Rochedy
author_sort Amandine Rochedy
collection DOAJ
description Research Framework: Dietary characteristics are a pervasive feature of how children with Autism Spectrum Disorder (ASD) function. This aspect requires family members to support, adjust and reorganize daily activities in the provision of food and in ensuring proper health. Objectives: This article focuses on families with dietary peculiarities and how problematic TSA-associated behavior at the table can have consequences on the social life of these children, their families and their loved ones. Methodology : To study parenting practices, a survey of parents of children with ASD was conducted through interviews (n = 21), testimonies (n = 29) and questionnaires (n = 322). Results : Based on a broad array of research areas, this article is interested in describing and explaining the daily burden of food management at the crossroads of parental, domestic care work and its "material" and "ideal" aspects. The analysis also shows that the management of food characteristics redefines parental roles, especially for mothers. It also questions management issues beyond the parental sphere through the support provided by extended family members. Conclusions: This analysis studies how the dietary characteristics of children with autism are managed by family members through an interweaving of the sociology of food, health, disability, family and gender. Contribution: This article highlights the intersection between the normal and pathological and the social adjustments required for the provision of "food care".
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spelling doaj.art-1f0ea8e001624301808d8226c503dd952022-12-21T18:42:08ZengCentre Urbanisation Culture Société (UCS) de l'INRSEnfances, Familles, Générations1708-63102017-12-0128« Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescenceAmandine RochedyResearch Framework: Dietary characteristics are a pervasive feature of how children with Autism Spectrum Disorder (ASD) function. This aspect requires family members to support, adjust and reorganize daily activities in the provision of food and in ensuring proper health. Objectives: This article focuses on families with dietary peculiarities and how problematic TSA-associated behavior at the table can have consequences on the social life of these children, their families and their loved ones. Methodology : To study parenting practices, a survey of parents of children with ASD was conducted through interviews (n = 21), testimonies (n = 29) and questionnaires (n = 322). Results : Based on a broad array of research areas, this article is interested in describing and explaining the daily burden of food management at the crossroads of parental, domestic care work and its "material" and "ideal" aspects. The analysis also shows that the management of food characteristics redefines parental roles, especially for mothers. It also questions management issues beyond the parental sphere through the support provided by extended family members. Conclusions: This analysis studies how the dietary characteristics of children with autism are managed by family members through an interweaving of the sociology of food, health, disability, family and gender. Contribution: This article highlights the intersection between the normal and pathological and the social adjustments required for the provision of "food care".http://journals.openedition.org/efg/1752Autism Spectrum Disordersfoodfamilyparental workdomestic workcare
spellingShingle Amandine Rochedy
« Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
Enfances, Familles, Générations
Autism Spectrum Disorders
food
family
parental work
domestic work
care
title « Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
title_full « Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
title_fullStr « Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
title_full_unstemmed « Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
title_short « Bien sûr, il y aura encore des jours "avec" et des jours "sans" ». Autismes et gestions familiales des particularités alimentaires de l’enfance à l’adolescence
title_sort bien sur il y aura encore des jours avec et des jours sans autismes et gestions familiales des particularites alimentaires de l enfance a l adolescence
topic Autism Spectrum Disorders
food
family
parental work
domestic work
care
url http://journals.openedition.org/efg/1752
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