What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study
Abstract Background Dementia friendly communities (DFCs) are seen as key to participation of people with dementia and carers. Dementia-friendly initiatives (DFI) are important building blocks for the growth of DFCs. Therefore, it is essential to understand how DFIs are developed and sustained to sec...
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| Format: | Article |
| Language: | English |
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BMC
2023-02-01
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| Series: | BMC Public Health |
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| Online Access: | https://doi.org/10.1186/s12889-023-15125-9 |
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| author | Marjolein Thijssen Wietske Kuijer-Siebelink Monique A.S. Lexis Maria W. G. Nijhuis-van der Sanden Ramon Daniels Maud Graff |
| author_facet | Marjolein Thijssen Wietske Kuijer-Siebelink Monique A.S. Lexis Maria W. G. Nijhuis-van der Sanden Ramon Daniels Maud Graff |
| author_sort | Marjolein Thijssen |
| collection | DOAJ |
| description | Abstract Background Dementia friendly communities (DFCs) are seen as key to participation of people with dementia and carers. Dementia-friendly initiatives (DFI) are important building blocks for the growth of DFCs. Therefore, it is essential to understand how DFIs are developed and sustained to secure the growth of DFCs. This study identifies contextual factors and mechanisms that influence the development and sustainment of Dutch DFIs. It also explains how these contextual factors and mechanisms are interrelated and the outcomes to which they lead. Methods Mixed methods, namely interviews, observations, documentation and focus groups, were used for this realist multiple case study. Participants were professionals (n = 46), volunteers (n = 20), people with dementia (n = 1) and carers (n = 2) who were involved in development and sustainment of DFIs in four Dutch DFCs. Results This study revealed three middle-range program theories as final outcomes: development of a support base, collaboration, and participation in DFIs by people with dementia and carers. These theories address institutional, organisational, interpersonal and individual levels in the community that are essential in development and sustainment of DFIs. Conclusions The development and sustainment of DFIs requires the development of a support base, collaboration, and participation in DFIs by people with dementia and their carers. |
| first_indexed | 2024-04-10T15:40:38Z |
| format | Article |
| id | doaj.art-1fb210442ac24515a9d84074ed514146 |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-04-10T15:40:38Z |
| publishDate | 2023-02-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-1fb210442ac24515a9d84074ed5141462023-02-12T12:25:12ZengBMCBMC Public Health1471-24582023-02-0123111210.1186/s12889-023-15125-9What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case studyMarjolein Thijssen0Wietske Kuijer-Siebelink1Monique A.S. Lexis2Maria W. G. Nijhuis-van der Sanden3Ramon Daniels4Maud Graff5Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ healthcare)HAN University of Applied Sciences, School of EducationZuyd University of Applied Sciences, Research Centre Assistive Technology in CareRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ healthcare)Zuyd University of Applied Sciences, Research Centre Assistive Technology in CareRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ healthcare)Abstract Background Dementia friendly communities (DFCs) are seen as key to participation of people with dementia and carers. Dementia-friendly initiatives (DFI) are important building blocks for the growth of DFCs. Therefore, it is essential to understand how DFIs are developed and sustained to secure the growth of DFCs. This study identifies contextual factors and mechanisms that influence the development and sustainment of Dutch DFIs. It also explains how these contextual factors and mechanisms are interrelated and the outcomes to which they lead. Methods Mixed methods, namely interviews, observations, documentation and focus groups, were used for this realist multiple case study. Participants were professionals (n = 46), volunteers (n = 20), people with dementia (n = 1) and carers (n = 2) who were involved in development and sustainment of DFIs in four Dutch DFCs. Results This study revealed three middle-range program theories as final outcomes: development of a support base, collaboration, and participation in DFIs by people with dementia and carers. These theories address institutional, organisational, interpersonal and individual levels in the community that are essential in development and sustainment of DFIs. Conclusions The development and sustainment of DFIs requires the development of a support base, collaboration, and participation in DFIs by people with dementia and their carers.https://doi.org/10.1186/s12889-023-15125-9DementiaDementia friendly communitiesDementia friendly initiativesCommunityRealist approachSocial participation |
| spellingShingle | Marjolein Thijssen Wietske Kuijer-Siebelink Monique A.S. Lexis Maria W. G. Nijhuis-van der Sanden Ramon Daniels Maud Graff What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study BMC Public Health Dementia Dementia friendly communities Dementia friendly initiatives Community Realist approach Social participation |
| title | What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study |
| title_full | What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study |
| title_fullStr | What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study |
| title_full_unstemmed | What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study |
| title_short | What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study |
| title_sort | what matters in development and sustainment of community dementia friendly initiatives and why a realist multiple case study |
| topic | Dementia Dementia friendly communities Dementia friendly initiatives Community Realist approach Social participation |
| url | https://doi.org/10.1186/s12889-023-15125-9 |
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