Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution?
Purpose: The study aim was to test the feasibility of collecting qualitative patient-preferred outcomes or goals and the degree of their attainment as an addition to a standardized process for collecting quantitative composite patient-reported outcome measures (PROMs) from patients undergoing knee j...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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Advocate Aurora Health
2023-11-01
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| Series: | Journal of Patient-Centered Research and Reviews |
| Subjects: | |
| Online Access: | https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=2017&context=jpcrr |
| _version_ | 1827632247129243648 |
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| author | Leif I. Solberg Jeanette Y. Ziegenfuss Rachael L. Rivard Christine K. Norton Robin R. Whitebird Glyn Elwyn Mark Swiontkowski |
| author_facet | Leif I. Solberg Jeanette Y. Ziegenfuss Rachael L. Rivard Christine K. Norton Robin R. Whitebird Glyn Elwyn Mark Swiontkowski |
| author_sort | Leif I. Solberg |
| collection | DOAJ |
| description | Purpose: The study aim was to test the feasibility of collecting qualitative patient-preferred outcomes or goals and the degree of their attainment as an addition to a standardized process for collecting quantitative composite patient-reported outcome measures (PROMs) from patients undergoing knee joint replacement..
Methods: Patients of a large Midwestern medical group scheduled to have total replacement of their knee joint have been asked to complete a PROMs survey preoperatively and at 3 and 12 months after surgery since 2014. In March 2020, an open-ended question about their most important preferred outcome was added to the existing questionnaire. The responses for all 3 time periods from the first 6 months of this addition were summarized quantitatively and analyzed by 2 reviewers.
Results: During that 6-month period, 1481 people completed the main survey while 1463 (98.8%) also completed the open-ended question. At baseline, 90.8% of the 590 baseline respondents identified a preferred outcome. If multiple-choice categories had been used, 82.7% of the responses would have lost some or a large amount of their preferred goals’ meaning. Of the 144 who completed surveys at both baseline and 3 months, 86.1% reported another outcome in addition to pain relief, while 54.2% reported “Complete or Mostly” achieving their self-identified preferred outcome.
Conclusions: Most people who have joint replacement surgery and respond to a quantitative PROMs survey are willing to report on their other preferred outcomes as well. Adding an open-ended question to PROMs surveys may increase clinician focus on addressing outcomes important to each patient. |
| first_indexed | 2024-03-09T14:33:25Z |
| format | Article |
| id | doaj.art-200fb7d526dc40eb8bf4e4e5ec9c99c1 |
| institution | Directory Open Access Journal |
| issn | 2330-0698 |
| language | English |
| last_indexed | 2024-03-09T14:33:25Z |
| publishDate | 2023-11-01 |
| publisher | Advocate Aurora Health |
| record_format | Article |
| series | Journal of Patient-Centered Research and Reviews |
| spelling | doaj.art-200fb7d526dc40eb8bf4e4e5ec9c99c12023-11-27T16:00:37ZengAdvocate Aurora HealthJournal of Patient-Centered Research and Reviews2330-06982023-11-0110421021810.17294/2330-0698.2017Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution?Leif I. Solberg0https://orcid.org/0000-0001-5509-1139Jeanette Y. Ziegenfuss1https://orcid.org/0000-0001-9304-4499Rachael L. Rivard2Christine K. Norton3Robin R. Whitebird4https://orcid.org/0000-0002-8700-5415Glyn Elwyn5Mark Swiontkowski 6https://orcid.org/0000-0001-7036-1782HealthPartners Institute, Minneapolis, MNHealthPartners Institute, Minneapolis, MNHealthPartners Institute, Minneapolis, MNpatient investigatorUniversity of St. Thomas, St. Paul, MNThe Dartmouth Institute, Lebanon, NHUniversity of Minnesota Medical School, Minneapolis, MNPurpose: The study aim was to test the feasibility of collecting qualitative patient-preferred outcomes or goals and the degree of their attainment as an addition to a standardized process for collecting quantitative composite patient-reported outcome measures (PROMs) from patients undergoing knee joint replacement.. Methods: Patients of a large Midwestern medical group scheduled to have total replacement of their knee joint have been asked to complete a PROMs survey preoperatively and at 3 and 12 months after surgery since 2014. In March 2020, an open-ended question about their most important preferred outcome was added to the existing questionnaire. The responses for all 3 time periods from the first 6 months of this addition were summarized quantitatively and analyzed by 2 reviewers. Results: During that 6-month period, 1481 people completed the main survey while 1463 (98.8%) also completed the open-ended question. At baseline, 90.8% of the 590 baseline respondents identified a preferred outcome. If multiple-choice categories had been used, 82.7% of the responses would have lost some or a large amount of their preferred goals’ meaning. Of the 144 who completed surveys at both baseline and 3 months, 86.1% reported another outcome in addition to pain relief, while 54.2% reported “Complete or Mostly” achieving their self-identified preferred outcome. Conclusions: Most people who have joint replacement surgery and respond to a quantitative PROMs survey are willing to report on their other preferred outcomes as well. Adding an open-ended question to PROMs surveys may increase clinician focus on addressing outcomes important to each patient.https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=2017&context=jpcrrpatient-reported outcome measurespromsknee jointarthroplastypatient-centered careorthopedics |
| spellingShingle | Leif I. Solberg Jeanette Y. Ziegenfuss Rachael L. Rivard Christine K. Norton Robin R. Whitebird Glyn Elwyn Mark Swiontkowski Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? Journal of Patient-Centered Research and Reviews patient-reported outcome measures proms knee joint arthroplasty patient-centered care orthopedics |
| title | Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? |
| title_full | Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? |
| title_fullStr | Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? |
| title_full_unstemmed | Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? |
| title_short | Is There Room for Individual Patient-Specified Preferences in the Patient-Reported Outcome Measurement Revolution? |
| title_sort | is there room for individual patient specified preferences in the patient reported outcome measurement revolution |
| topic | patient-reported outcome measures proms knee joint arthroplasty patient-centered care orthopedics |
| url | https://institutionalrepository.aah.org/cgi/viewcontent.cgi?article=2017&context=jpcrr |
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