Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire
Objective: To design and preliminarily test a questionnaire intended to measure patient treatment burden resulting from participation in cognitive assessments and interventions. Methods: An expert consensus process was used to develop the concept of patient treatment burden and to determ...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Medical Journals Sweden
2018-05-01
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| Series: | Journal of Rehabilitation Medicine |
| Subjects: | |
| Online Access: |
https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2344
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| _version_ | 1818998480588242944 |
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| author | Jennifer Tomaszczyk Bhanu Sharma Albert A. Chan Brenda Colella Jenkin Mok Dorcas Beaton Bruce Christensen Robin Green |
| author_facet | Jennifer Tomaszczyk Bhanu Sharma Albert A. Chan Brenda Colella Jenkin Mok Dorcas Beaton Bruce Christensen Robin Green |
| author_sort | Jennifer Tomaszczyk |
| collection | DOAJ |
| description | Objective: To design and preliminarily test a questionnaire intended to measure patient treatment burden resulting from participation in cognitive assessments and interventions.
Methods: An expert consensus process was used to develop the concept of patient treatment burden and to determine the first set of questionnaire items and administration protocol. The pilot questionnaire was administered to 20 patients with mild to severe acquired brain injuries on completion of a 2-h or longer neuropsychological assessment. Following preliminary testing, the questionnaire was revised and re-evaluated by a second expert panel and content validity was assessed.
Results: Burden was defined as psychologically and/or physically aversive symptoms in response to cognitive assessment or intervention. The first questionnaire contained 21 items assigned to 3 categories: physical, cognitive, and emotional. Eighty-five percent of patients endorsed symptom level increases, with “tired/fatigued” the most frequently endorsed item (80% of patients). Instructions and test items were easily understood, and the questionnaire was quick to administer. Content validity ratio (CVR) of the revised questionnaire yielded 23 acceptable items and a subset met the highest CVR threshold (>0.78).
Conclusion: This patient-reported outcome will ultimately help patients give voice to aversive experiences, and help clinicians and researchers to monitor and adapt assessments/treatments appropriately. Future steps in development are described. |
| first_indexed | 2024-12-20T22:02:12Z |
| format | Article |
| id | doaj.art-208ac0314662499b865b558fba2defa1 |
| institution | Directory Open Access Journal |
| issn | 1650-1977 1651-2081 |
| language | English |
| last_indexed | 2024-12-20T22:02:12Z |
| publishDate | 2018-05-01 |
| publisher | Medical Journals Sweden |
| record_format | Article |
| series | Journal of Rehabilitation Medicine |
| spelling | doaj.art-208ac0314662499b865b558fba2defa12022-12-21T19:25:20ZengMedical Journals SwedenJournal of Rehabilitation Medicine1650-19771651-20812018-05-0150651952610.2340/16501977-23442422Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaireJennifer Tomaszczyk0Bhanu SharmaAlbert A. ChanBrenda ColellaJenkin MokDorcas BeatonBruce ChristensenRobin Green Research Department, Toronto Rehabilitation Institute, Toronto, Canada. Objective: To design and preliminarily test a questionnaire intended to measure patient treatment burden resulting from participation in cognitive assessments and interventions. Methods: An expert consensus process was used to develop the concept of patient treatment burden and to determine the first set of questionnaire items and administration protocol. The pilot questionnaire was administered to 20 patients with mild to severe acquired brain injuries on completion of a 2-h or longer neuropsychological assessment. Following preliminary testing, the questionnaire was revised and re-evaluated by a second expert panel and content validity was assessed. Results: Burden was defined as psychologically and/or physically aversive symptoms in response to cognitive assessment or intervention. The first questionnaire contained 21 items assigned to 3 categories: physical, cognitive, and emotional. Eighty-five percent of patients endorsed symptom level increases, with “tired/fatigued” the most frequently endorsed item (80% of patients). Instructions and test items were easily understood, and the questionnaire was quick to administer. Content validity ratio (CVR) of the revised questionnaire yielded 23 acceptable items and a subset met the highest CVR threshold (>0.78). Conclusion: This patient-reported outcome will ultimately help patients give voice to aversive experiences, and help clinicians and researchers to monitor and adapt assessments/treatments appropriately. Future steps in development are described. https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2344 acquiredbraininjuryneuropsychologycognitiveassessmentneurorehabilitationpatient-reportedoutcomepatientburdenquestionnaire |
| spellingShingle | Jennifer Tomaszczyk Bhanu Sharma Albert A. Chan Brenda Colella Jenkin Mok Dorcas Beaton Bruce Christensen Robin Green Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire Journal of Rehabilitation Medicine acquiredbraininjury neuropsychology cognitiveassessment neurorehabilitation patient-reportedoutcome patientburden questionnaire |
| title | Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire |
| title_full | Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire |
| title_fullStr | Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire |
| title_full_unstemmed | Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire |
| title_short | Measuring cognitive assessment and intervention burden in patients with acquired brain injured: Development of the ”How Much is Too Much” questionnaire |
| title_sort | measuring cognitive assessment and intervention burden in patients with acquired brain injured development of the how much is too much questionnaire |
| topic | acquiredbraininjury neuropsychology cognitiveassessment neurorehabilitation patient-reportedoutcome patientburden questionnaire |
| url |
https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2344
|
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