Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients
Background. Chronic inflammatory demyelinating polyneuropathy (CIDP) is the most common immune‑mediated polyneuropathy. CIDP is characterized by a long‑term progressive or recurrent course of the disease and the development of neurological deficits and disability, it is important to assess the quali...
| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | Russian |
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ABV-press
2022-09-01
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| Series: | Нервно-мышечные болезни |
| Subjects: | |
| Online Access: | https://nmb.abvpress.ru/jour/article/view/496 |
| _version_ | 1797695474228002816 |
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| author | N. A. Suponeva E. A. Melnik A. S. Arestova D. G. Yusupova A. A. Zimin A. B. Zaytsev N. V. Polekhina G. A. Gatina Nisha Mohan Ramchandani Pratish Bundhun E. A. Golovneva E. V. Gnedovskaya D. A. Grishina |
| author_facet | N. A. Suponeva E. A. Melnik A. S. Arestova D. G. Yusupova A. A. Zimin A. B. Zaytsev N. V. Polekhina G. A. Gatina Nisha Mohan Ramchandani Pratish Bundhun E. A. Golovneva E. V. Gnedovskaya D. A. Grishina |
| author_sort | N. A. Suponeva |
| collection | DOAJ |
| description | Background. Chronic inflammatory demyelinating polyneuropathy (CIDP) is the most common immune‑mediated polyneuropathy. CIDP is characterized by a long‑term progressive or recurrent course of the disease and the development of neurological deficits and disability, it is important to assess the quality of life of patients. The paper presents the results of the first and second steps of validation of the Chronic acquired polyneuropathy – Patient Reported Index (CAP‑PRI) questionnaire designed to assess quality of life in patients with immune‑mediated polyneuropathy.Aim. To develop the Russian version of the CAP‑PRI questionnaire.Materials and methods. 85 patients with CIDP (according to EAN / PNS 2021 criteria) were enrolled. At the first step we conducted linguocultural validation according to the standard protocol. Two Russian‑speaking professional translators in the field of medicine performed direct translation of the original English‑language questionnaire, and the back translation was performed by native speakers with a medical background. At the second step the psychometric parameters were evaluated.Results. The developed Russian version of the CAP‑PRI questionnaire demonstrated a high level of reliability, validity and sensitivity.Conclusion. The Russian version of the CAP‑PRI questionnaire is recommended for clinical practice and research. In addition, the relationship between improved quality of life and the reduction of neurological deficits, disability and fatigue (as assessed by the IRODS, NIS and FSS scales) has been shown. |
| first_indexed | 2024-03-12T03:12:54Z |
| format | Article |
| id | doaj.art-20f2defe50784b4cbd1220c91f00a094 |
| institution | Directory Open Access Journal |
| issn | 2222-8721 2413-0443 |
| language | Russian |
| last_indexed | 2024-03-12T03:12:54Z |
| publishDate | 2022-09-01 |
| publisher | ABV-press |
| record_format | Article |
| series | Нервно-мышечные болезни |
| spelling | doaj.art-20f2defe50784b4cbd1220c91f00a0942023-09-03T14:16:21ZrusABV-pressНервно-мышечные болезни2222-87212413-04432022-09-01123172510.17650/2222-8721-2022-12-3-17-25324Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patientsN. A. Suponeva0E. A. Melnik1A. S. Arestova2D. G. Yusupova3A. A. Zimin4A. B. Zaytsev5N. V. Polekhina6G. A. Gatina7Nisha Mohan Ramchandani8Pratish Bundhun9E. A. Golovneva10E. V. Gnedovskaya11D. A. Grishina12ФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»ФГАОУ ВО Первый Московский государственный медицинский университет им. И. И. Сеченова Минздрава РоссииФГБНУ «Научный центр неврологии»ФГБОУ ВО «Дагестанский государственный медицинский университет» Минздрава РоссииKenyatta National HospitalVictoria HospitalФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»ФГБНУ «Научный центр неврологии»Background. Chronic inflammatory demyelinating polyneuropathy (CIDP) is the most common immune‑mediated polyneuropathy. CIDP is characterized by a long‑term progressive or recurrent course of the disease and the development of neurological deficits and disability, it is important to assess the quality of life of patients. The paper presents the results of the first and second steps of validation of the Chronic acquired polyneuropathy – Patient Reported Index (CAP‑PRI) questionnaire designed to assess quality of life in patients with immune‑mediated polyneuropathy.Aim. To develop the Russian version of the CAP‑PRI questionnaire.Materials and methods. 85 patients with CIDP (according to EAN / PNS 2021 criteria) were enrolled. At the first step we conducted linguocultural validation according to the standard protocol. Two Russian‑speaking professional translators in the field of medicine performed direct translation of the original English‑language questionnaire, and the back translation was performed by native speakers with a medical background. At the second step the psychometric parameters were evaluated.Results. The developed Russian version of the CAP‑PRI questionnaire demonstrated a high level of reliability, validity and sensitivity.Conclusion. The Russian version of the CAP‑PRI questionnaire is recommended for clinical practice and research. In addition, the relationship between improved quality of life and the reduction of neurological deficits, disability and fatigue (as assessed by the IRODS, NIS and FSS scales) has been shown.https://nmb.abvpress.ru/jour/article/view/496хроническая воспалительная демиелинизирующая полинейропатиялингвокультурная адаптациякачество жизниопросник для пациентов с хронической приобретенной полинейропатиейchronic acquired polyneuropathy – patient reported indexcap‑priрусскоязычная версия |
| spellingShingle | N. A. Suponeva E. A. Melnik A. S. Arestova D. G. Yusupova A. A. Zimin A. B. Zaytsev N. V. Polekhina G. A. Gatina Nisha Mohan Ramchandani Pratish Bundhun E. A. Golovneva E. V. Gnedovskaya D. A. Grishina Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients Нервно-мышечные болезни хроническая воспалительная демиелинизирующая полинейропатия лингвокультурная адаптация качество жизни опросник для пациентов с хронической приобретенной полинейропатией chronic acquired polyneuropathy – patient reported index cap‑pri русскоязычная версия |
| title | Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients |
| title_full | Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients |
| title_fullStr | Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients |
| title_full_unstemmed | Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients |
| title_short | Validation Chronic Acquired Polyneuropathy – Patient Reported Index (CAP-PRI) in Russia for CIDP patients |
| title_sort | validation chronic acquired polyneuropathy patient reported index cap pri in russia for cidp patients |
| topic | хроническая воспалительная демиелинизирующая полинейропатия лингвокультурная адаптация качество жизни опросник для пациентов с хронической приобретенной полинейропатией chronic acquired polyneuropathy – patient reported index cap‑pri русскоязычная версия |
| url | https://nmb.abvpress.ru/jour/article/view/496 |
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