Understanding the impact of pediatric single large‐scale mtDNA deletion syndromes on caregivers: Burdens and challenges
Abstract Single large‐scale mitochondrial deletion syndromes (SLSMDS) are ultra‐rare, progressive multi‐system diseases that make children largely dependent on their caregivers for both medical and non‐medical needs. Yet, few studies have examined the burden felt among caregivers. As part of a large...
| Autori principali: | , , |
|---|---|
| Natura: | Articolo |
| Lingua: | English |
| Pubblicazione: |
Wiley
2023-09-01
|
| Serie: | JIMD Reports |
| Soggetti: | |
| Accesso online: | https://doi.org/10.1002/jmd2.12385 |