Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project

Despite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the s...

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Main Authors: Andrea Gossett Zakrajsek, Mansha Mirza, Nathan Kai-Cheong Chan, Tom Wilson, Mark Karner, Joy Hammel
Format: Article
Language:English
Published: The Ohio State University Libraries 2014-12-01
Series:Disability Studies Quarterly
Subjects:
Online Access:http://dsq-sds.org/article/view/3834
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author Andrea Gossett Zakrajsek
Mansha Mirza
Nathan Kai-Cheong Chan
Tom Wilson
Mark Karner
Joy Hammel
author_facet Andrea Gossett Zakrajsek
Mansha Mirza
Nathan Kai-Cheong Chan
Tom Wilson
Mark Karner
Joy Hammel
author_sort Andrea Gossett Zakrajsek
collection DOAJ
description Despite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the second phase of a participatory action research project jointly developed by university-based researchers and two Centers for Independent Living. A qualitative case study methodology was used to understand the experiences of three individuals with psychiatric disabilities reintegrating into the community from nursing homes. Findings revealed themes of social isolation, participation in virtual communities, variability of impairment experiences and unmet needs for community supports. In addition to thematic findings, action products were generated for the benefit of community partners. These products included national best practice resources and a needs assessment survey tool. Study findings and products point to specific systems change and policy recommendations to better support community reintegration for this population. These recommendations are discussed in light of U.S. healthcare reform and broader disability advocacy efforts.
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spelling doaj.art-21e780f894574b2083618b50b23e7bec2022-12-22T03:57:46ZengThe Ohio State University LibrariesDisability Studies Quarterly1041-57182159-83712014-12-0134410.18061/dsq.v34i4.38343215Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research projectAndrea Gossett Zakrajsek0Mansha Mirza1Nathan Kai-Cheong Chan2Tom Wilson3Mark KarnerJoy Hammel4Eastern Michigan UniversityUniversity of Illinois at ChicagoUniversity of Illinois at ChicagoAccess LivingUniversity of Illinois at ChicagoDespite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the second phase of a participatory action research project jointly developed by university-based researchers and two Centers for Independent Living. A qualitative case study methodology was used to understand the experiences of three individuals with psychiatric disabilities reintegrating into the community from nursing homes. Findings revealed themes of social isolation, participation in virtual communities, variability of impairment experiences and unmet needs for community supports. In addition to thematic findings, action products were generated for the benefit of community partners. These products included national best practice resources and a needs assessment survey tool. Study findings and products point to specific systems change and policy recommendations to better support community reintegration for this population. These recommendations are discussed in light of U.S. healthcare reform and broader disability advocacy efforts.http://dsq-sds.org/article/view/3834Participatory Action Researchcommunity integrationpsychiatric disability
spellingShingle Andrea Gossett Zakrajsek
Mansha Mirza
Nathan Kai-Cheong Chan
Tom Wilson
Mark Karner
Joy Hammel
Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
Disability Studies Quarterly
Participatory Action Research
community integration
psychiatric disability
title Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
title_full Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
title_fullStr Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
title_full_unstemmed Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
title_short Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project
title_sort supporting institution to community transitions for people with psychiatric disabilities findings and implications from a participatory action research project
topic Participatory Action Research
community integration
psychiatric disability
url http://dsq-sds.org/article/view/3834
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