Retrospective dataset and survey analyses identify gaps in data collection for craniopharyngioma and priorities of patients and families affected by the disease

Retrospective dataset and survey analyses identify gaps in data collection for craniopharyngioma and priorities of patients and families affected by the disease

Introduction: Craniopharyngioma is a rare, low-grade tumor located in the suprasellar region of the brain, near critical structures like the pituitary gland. Here, we concurrently investigate the status of clinical and genomic data in a retrospective craniopharyngioma cohort and survey-based data to...

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Bibliographic Details
Main Authors: Emily Marshall, Nikhil Joshi, Julia Crowley, Shana McCormack, Sylvia Cheng, Walter Faig, Phillip B. Storm, Adam Resnick, Sabine Mueller, Fatema Malbari, Cassie Kline
Format: Article
Language:English
Published: Elsevier 2023-03-01
Series:Neoplasia: An International Journal for Oncology Research
Subjects:
Craniopharyngioma
Quality of life
Molecular sequencing
Neuroendocrine
Online Access:http://www.sciencedirect.com/science/article/pii/S1476558622000987

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