Genomic Data-Sharing: What will be our legacy?

Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Discussion today about these challenges have caused the general public to develop a reluctance and distrust for medical research. This...

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Main Authors: Shawneequa eCallier, Rajah eHusain, Rachel eSimpson
Format: Article
Language:English
Published: Frontiers Media S.A. 2014-03-01
Series:Frontiers in Genetics
Subjects:
Online Access:http://journal.frontiersin.org/Journal/10.3389/fgene.2014.00034/full
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author Shawneequa eCallier
Rajah eHusain
Rachel eSimpson
author_facet Shawneequa eCallier
Rajah eHusain
Rachel eSimpson
author_sort Shawneequa eCallier
collection DOAJ
description Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Discussion today about these challenges have caused the general public to develop a reluctance and distrust for medical research. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.
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spelling doaj.art-2273e511e3524ee29a1b093b6b4284cd2022-12-21T18:10:12ZengFrontiers Media S.A.Frontiers in Genetics1664-80212014-03-01510.3389/fgene.2014.0003463295Genomic Data-Sharing: What will be our legacy?Shawneequa eCallier0Rajah eHusain1Rachel eSimpson2George Washington UniversityGeorge Washington UniversityGeorge Washington UniversityPrior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Discussion today about these challenges have caused the general public to develop a reluctance and distrust for medical research. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.http://journal.frontiersin.org/Journal/10.3389/fgene.2014.00034/fullEthics, MedicalGenetic ResearchPrivacypersonalized medicineELSI
spellingShingle Shawneequa eCallier
Rajah eHusain
Rachel eSimpson
Genomic Data-Sharing: What will be our legacy?
Frontiers in Genetics
Ethics, Medical
Genetic Research
Privacy
personalized medicine
ELSI
title Genomic Data-Sharing: What will be our legacy?
title_full Genomic Data-Sharing: What will be our legacy?
title_fullStr Genomic Data-Sharing: What will be our legacy?
title_full_unstemmed Genomic Data-Sharing: What will be our legacy?
title_short Genomic Data-Sharing: What will be our legacy?
title_sort genomic data sharing what will be our legacy
topic Ethics, Medical
Genetic Research
Privacy
personalized medicine
ELSI
url http://journal.frontiersin.org/Journal/10.3389/fgene.2014.00034/full
work_keys_str_mv AT shawneequaecallier genomicdatasharingwhatwillbeourlegacy
AT rajahehusain genomicdatasharingwhatwillbeourlegacy
AT rachelesimpson genomicdatasharingwhatwillbeourlegacy