Case completeness in the Norwegian Cardiac Arrest Registry

Introduction: This study aimed to assess the case completeness of out-of-hospital cardiac arrests (OHCA) in the Norwegian Cardiac Arrest Registry (NorCAR) and describe the differences between the registered and missing patients identified from the case-control assessment. Methods: We identified the...

Full description

Bibliographic Details
Main Authors: Kristin Alm-Kruse, Ingvild Tjelmeland, Håvard Kongsgård, Rune Kvåle, Jo Kramer-Johansen
Format: Article
Language:English
Published: Elsevier 2021-12-01
Series:Resuscitation Plus
Online Access:http://www.sciencedirect.com/science/article/pii/S2666520421001077
_version_ 1819320444734406656
author Kristin Alm-Kruse
Ingvild Tjelmeland
Håvard Kongsgård
Rune Kvåle
Jo Kramer-Johansen
author_facet Kristin Alm-Kruse
Ingvild Tjelmeland
Håvard Kongsgård
Rune Kvåle
Jo Kramer-Johansen
author_sort Kristin Alm-Kruse
collection DOAJ
description Introduction: This study aimed to assess the case completeness of out-of-hospital cardiac arrests (OHCA) in the Norwegian Cardiac Arrest Registry (NorCAR) and describe the differences between the registered and missing patients identified from the case-control assessment. Methods: We identified the relevant patients in the Norwegian Patient Registry and the Norwegian Cause of Death Registry and compared them with the patients in NorCAR. Data processors used patient records to confirm if the potential cardiac arrest cases met the inclusion criteria in NorCAR. Results: Between 2015 and 2017, 8612 OHCA patients were registered in NorCAR. Through the Patient Registry and the Cause of Death Registry we identified 11,114 potential OHCA patients, 3469 of these were already registered in NorCAR. After evaluating the patient records for the remaining 7645 patients, we found 344 patients (4%), were eligible for inclusion in NorCAR, giving a case completeness of 96%. The registered and missing patients were similar in age and gender distribution. Initial shockable rhythm and presumed cause were also comparable. However, the missing patients more frequently achieved return of spontaneous circulation, were more often transported to hospital, and had higher survival rates. The already registered patients had more key variables registered than the missing patients. Conclusion: Our results indicate high case completeness in NorCAR. The missing patients were too few to introduce significant changes in the distribution of patient characteristics, indicating that NorCAR is representative of the Norwegian OHCA population.
first_indexed 2024-12-24T11:19:41Z
format Article
id doaj.art-22c25d904b704492998aea29531cdc62
institution Directory Open Access Journal
issn 2666-5204
language English
last_indexed 2024-12-24T11:19:41Z
publishDate 2021-12-01
publisher Elsevier
record_format Article
series Resuscitation Plus
spelling doaj.art-22c25d904b704492998aea29531cdc622022-12-21T16:58:17ZengElsevierResuscitation Plus2666-52042021-12-018100182Case completeness in the Norwegian Cardiac Arrest RegistryKristin Alm-Kruse0Ingvild Tjelmeland1Håvard Kongsgård2Rune Kvåle3Jo Kramer-Johansen4Department of Research and Development, Division of Emergencies and Critical Care, Oslo University Hospital, Oslo, Norway; Faculty of Medicine, Institute of Clinical Medicine, University of Oslo, Oslo, Norway; Corresponding author at: Department of Research and Development, Division of Emergencies and Critical Care, Oslo University Hospital, Oslo, Norway.Faculty of Medicine, Institute of Clinical Medicine, University of Oslo, Oslo, Norway; Division of Prehospital Services, Oslo University Hospital, Oslo, Norway; Institute for Emergency Medicine, University Hospital Schleswig-Holstein, Kiel, GermanyDivision of Prehospital Services, Oslo University Hospital, Oslo, NorwayDepartment of Oncology, Haukeland University Hospital, Bergen, Norway; Department of Health Registry Research and Development, National Institute of Public Health, Bergen, NorwayFaculty of Medicine, Institute of Clinical Medicine, University of Oslo, Oslo, Norway; Division of Prehospital Services, Oslo University Hospital, Oslo, NorwayIntroduction: This study aimed to assess the case completeness of out-of-hospital cardiac arrests (OHCA) in the Norwegian Cardiac Arrest Registry (NorCAR) and describe the differences between the registered and missing patients identified from the case-control assessment. Methods: We identified the relevant patients in the Norwegian Patient Registry and the Norwegian Cause of Death Registry and compared them with the patients in NorCAR. Data processors used patient records to confirm if the potential cardiac arrest cases met the inclusion criteria in NorCAR. Results: Between 2015 and 2017, 8612 OHCA patients were registered in NorCAR. Through the Patient Registry and the Cause of Death Registry we identified 11,114 potential OHCA patients, 3469 of these were already registered in NorCAR. After evaluating the patient records for the remaining 7645 patients, we found 344 patients (4%), were eligible for inclusion in NorCAR, giving a case completeness of 96%. The registered and missing patients were similar in age and gender distribution. Initial shockable rhythm and presumed cause were also comparable. However, the missing patients more frequently achieved return of spontaneous circulation, were more often transported to hospital, and had higher survival rates. The already registered patients had more key variables registered than the missing patients. Conclusion: Our results indicate high case completeness in NorCAR. The missing patients were too few to introduce significant changes in the distribution of patient characteristics, indicating that NorCAR is representative of the Norwegian OHCA population.http://www.sciencedirect.com/science/article/pii/S2666520421001077
spellingShingle Kristin Alm-Kruse
Ingvild Tjelmeland
Håvard Kongsgård
Rune Kvåle
Jo Kramer-Johansen
Case completeness in the Norwegian Cardiac Arrest Registry
Resuscitation Plus
title Case completeness in the Norwegian Cardiac Arrest Registry
title_full Case completeness in the Norwegian Cardiac Arrest Registry
title_fullStr Case completeness in the Norwegian Cardiac Arrest Registry
title_full_unstemmed Case completeness in the Norwegian Cardiac Arrest Registry
title_short Case completeness in the Norwegian Cardiac Arrest Registry
title_sort case completeness in the norwegian cardiac arrest registry
url http://www.sciencedirect.com/science/article/pii/S2666520421001077
work_keys_str_mv AT kristinalmkruse casecompletenessinthenorwegiancardiacarrestregistry
AT ingvildtjelmeland casecompletenessinthenorwegiancardiacarrestregistry
AT havardkongsgard casecompletenessinthenorwegiancardiacarrestregistry
AT runekvale casecompletenessinthenorwegiancardiacarrestregistry
AT jokramerjohansen casecompletenessinthenorwegiancardiacarrestregistry