Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk
Introduction Quality of life (QOL) instruments can provide unique information on various aspects of children’s everyday functioning beyond clinical symptoms and clinical measures. The study of the QOL in the siblings of individuals with an Autism Spectrum Disorder (ASD-siblings) is a new direction...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2021-04-01
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| Series: | European Psychiatry |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S0924933821016898/type/journal_article |
| _version_ | 1797616981741928448 |
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| author | E. Koukouriki |
| author_facet | E. Koukouriki |
| author_sort | E. Koukouriki |
| collection | DOAJ |
| description |
Introduction
Quality of life (QOL) instruments can provide unique information on various aspects of children’s everyday functioning beyond clinical symptoms and clinical measures. The study of the QOL in the siblings of individuals with an Autism Spectrum Disorder (ASD-siblings) is a new direction in the field of ASD-research.
Objectives
This study aimed to investigate the QOL in ASD-siblings in comparison with an age and sex matched group of siblings of neurotypical children.
Methods
The sample included 233 neurotypical children (8-13 years old) of whom 118 comprised the observational group (ASD-siblings) and 115 comprised the comparison group. The Kidscreen-27 and a demographics questionnaire were administered to all participants.
Results
The two groups differed significantly in all subscales and in the overall score of the Kidscreen-27, with the children in the observation group having a significantly worse quality of life (Mean±sd 111,62±12,43, p<0,001). Additionally, the largest difference in the averages of the subscales occurs in the subscale General Mood and Emotions, where the observation group had significantly lower scores (Mean±sd 23,23±3,69, p<0,001) than the comparison group (Mean±sd 31,27±2,74).
Conclusions
QOL in children has been recognized as an important outcome indicator in detecting subgroups of children at risk within the general population, while ASD-siblings’ QOL is an important concept in the implementation of appropriate services for these children. This study revealed poorer QOL in ASD-siblings and highlighted the importance of assessing QOL in those siblings as well as the use of the Kidscreen-27 as a screening tool in order to detect children at risk of maladjustment.
Disclosure
No significant relationships.
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| first_indexed | 2024-03-11T07:49:00Z |
| format | Article |
| id | doaj.art-22e44aa92f93411baebf4183f06d8117 |
| institution | Directory Open Access Journal |
| issn | 0924-9338 1778-3585 |
| language | English |
| last_indexed | 2024-03-11T07:49:00Z |
| publishDate | 2021-04-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | European Psychiatry |
| spelling | doaj.art-22e44aa92f93411baebf4183f06d81172023-11-17T05:07:07ZengCambridge University PressEuropean Psychiatry0924-93381778-35852021-04-0164S636S63610.1192/j.eurpsy.2021.1689Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at riskE. Koukouriki0Special Education Lab, Department Of Primary Education, University of Ioannina, Ioannina, Greece Centre For Educational And Counseling Services Of Trikala, Hellenic Ministry of Education and Religious Affairs, Trikala, Greece Introduction Quality of life (QOL) instruments can provide unique information on various aspects of children’s everyday functioning beyond clinical symptoms and clinical measures. The study of the QOL in the siblings of individuals with an Autism Spectrum Disorder (ASD-siblings) is a new direction in the field of ASD-research. Objectives This study aimed to investigate the QOL in ASD-siblings in comparison with an age and sex matched group of siblings of neurotypical children. Methods The sample included 233 neurotypical children (8-13 years old) of whom 118 comprised the observational group (ASD-siblings) and 115 comprised the comparison group. The Kidscreen-27 and a demographics questionnaire were administered to all participants. Results The two groups differed significantly in all subscales and in the overall score of the Kidscreen-27, with the children in the observation group having a significantly worse quality of life (Mean±sd 111,62±12,43, p<0,001). Additionally, the largest difference in the averages of the subscales occurs in the subscale General Mood and Emotions, where the observation group had significantly lower scores (Mean±sd 23,23±3,69, p<0,001) than the comparison group (Mean±sd 31,27±2,74). Conclusions QOL in children has been recognized as an important outcome indicator in detecting subgroups of children at risk within the general population, while ASD-siblings’ QOL is an important concept in the implementation of appropriate services for these children. This study revealed poorer QOL in ASD-siblings and highlighted the importance of assessing QOL in those siblings as well as the use of the Kidscreen-27 as a screening tool in order to detect children at risk of maladjustment. Disclosure No significant relationships. https://www.cambridge.org/core/product/identifier/S0924933821016898/type/journal_articleQuality of lifesiblingsautism spectrum disorders |
| spellingShingle | E. Koukouriki Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk European Psychiatry Quality of life siblings autism spectrum disorders |
| title | Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk |
| title_full | Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk |
| title_fullStr | Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk |
| title_full_unstemmed | Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk |
| title_short | Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk |
| title_sort | quality of life in neurotypical siblings of children with an autism spectrum disorder detecting children at risk |
| topic | Quality of life siblings autism spectrum disorders |
| url | https://www.cambridge.org/core/product/identifier/S0924933821016898/type/journal_article |
| work_keys_str_mv | AT ekoukouriki qualityoflifeinneurotypicalsiblingsofchildrenwithanautismspectrumdisorderdetectingchildrenatrisk |