Down Syndrome: how to communicate the diagnosis

Abstract Communicating the diagnosis of Down Syndrome to a couple of parents is never easy, whether before or after birth. As doctors, we must certainly rely on our own relational skills, but it is also necessary to be confident in some general indications, which are often overlooked in the strict h...

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Main Authors: Caterina Gori, Guido Cocchi, Luigi Tommaso Corvaglia, Giuseppe Ramacieri, Francesca Pulina, Giacomo Sperti, Valeria Cagnazzo, Francesca Catapano, Pierluigi Strippoli, Duccio Maria Cordelli, Chiara Locatelli
Format: Article
Language:English
Published: BMC 2023-02-01
Series:Italian Journal of Pediatrics
Subjects:
Online Access:https://doi.org/10.1186/s13052-023-01419-6
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author Caterina Gori
Guido Cocchi
Luigi Tommaso Corvaglia
Giuseppe Ramacieri
Francesca Pulina
Giacomo Sperti
Valeria Cagnazzo
Francesca Catapano
Pierluigi Strippoli
Duccio Maria Cordelli
Chiara Locatelli
author_facet Caterina Gori
Guido Cocchi
Luigi Tommaso Corvaglia
Giuseppe Ramacieri
Francesca Pulina
Giacomo Sperti
Valeria Cagnazzo
Francesca Catapano
Pierluigi Strippoli
Duccio Maria Cordelli
Chiara Locatelli
author_sort Caterina Gori
collection DOAJ
description Abstract Communicating the diagnosis of Down Syndrome to a couple of parents is never easy, whether before or after birth. As doctors, we must certainly rely on our own relational skills, but it is also necessary to be confident in some general indications, which are often overlooked in the strict hospital routine. This article is intended as a summary of the main articles published on this subject in the international literature, collecting and summarising the most important indications that have emerged in years of medical practice all over the world as well as in our personal experience. The diffusion of these guidelines is essential to help the doctor in this difficult task, on which there is often little training, and above all to guarantee to the parents the least traumatic communication possible.
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spelling doaj.art-239e70f4b5dd45c8b33ea0e88eb23a8c2023-02-12T12:18:23ZengBMCItalian Journal of Pediatrics1824-72882023-02-014911810.1186/s13052-023-01419-6Down Syndrome: how to communicate the diagnosisCaterina Gori0Guido Cocchi1Luigi Tommaso Corvaglia2Giuseppe Ramacieri3Francesca Pulina4Giacomo Sperti5Valeria Cagnazzo6Francesca Catapano7Pierluigi Strippoli8Duccio Maria Cordelli9Chiara Locatelli10IRCCS Institute of Neurological Sciences of Bologna, UOC Neuropsychiatry of the Pediatric AgeDepartment of Medical and Surgical Sciences (DIMEC), Neonatology Unit, St. Orsola‑Malpighi Polyclinic, University of BolognaDepartment of Medical and Surgical Sciences (DIMEC), Neonatology Unit, St. Orsola‑Malpighi Polyclinic, University of BolognaDepartment of Medical and Surgical Sciences (DIMEC), University of BolognaDepartment of Developmental Psychology and Socialisation, University of PadovaSpeciality School of Paediatrics – Alma Mater Studiorum, University of BolognaSpeciality School of Paediatrics – Alma Mater Studiorum, University of BolognaUnit of Histology, Embryology and Applied Biology, Department of Experimental, Diagnostic and Specialty Medicine (DIMES), University of BolognaUnit of Histology, Embryology and Applied Biology, Department of Experimental, Diagnostic and Specialty Medicine (DIMES), University of BolognaIRCCS Institute of Neurological Sciences of Bologna, UOC Neuropsychiatry of the Pediatric AgeIRCCS, University Hospital of Bologna St. Orsola-Malpighi Polyclinic, Neonatology UnitAbstract Communicating the diagnosis of Down Syndrome to a couple of parents is never easy, whether before or after birth. As doctors, we must certainly rely on our own relational skills, but it is also necessary to be confident in some general indications, which are often overlooked in the strict hospital routine. This article is intended as a summary of the main articles published on this subject in the international literature, collecting and summarising the most important indications that have emerged in years of medical practice all over the world as well as in our personal experience. The diffusion of these guidelines is essential to help the doctor in this difficult task, on which there is often little training, and above all to guarantee to the parents the least traumatic communication possible.https://doi.org/10.1186/s13052-023-01419-6Down SyndromeCommunicationPrenatal diagnosisPostnatal diagnosisDecision-making process
spellingShingle Caterina Gori
Guido Cocchi
Luigi Tommaso Corvaglia
Giuseppe Ramacieri
Francesca Pulina
Giacomo Sperti
Valeria Cagnazzo
Francesca Catapano
Pierluigi Strippoli
Duccio Maria Cordelli
Chiara Locatelli
Down Syndrome: how to communicate the diagnosis
Italian Journal of Pediatrics
Down Syndrome
Communication
Prenatal diagnosis
Postnatal diagnosis
Decision-making process
title Down Syndrome: how to communicate the diagnosis
title_full Down Syndrome: how to communicate the diagnosis
title_fullStr Down Syndrome: how to communicate the diagnosis
title_full_unstemmed Down Syndrome: how to communicate the diagnosis
title_short Down Syndrome: how to communicate the diagnosis
title_sort down syndrome how to communicate the diagnosis
topic Down Syndrome
Communication
Prenatal diagnosis
Postnatal diagnosis
Decision-making process
url https://doi.org/10.1186/s13052-023-01419-6
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