Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches
Abstract Background Consumer engagement in health care is recognized as a critical strategy to minimize healthcare‐associated harms, however, little research has focussed on strategies to engage young people in healthcare safety. This study explores the suitability of commonly used engagement strate...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2022-12-01
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| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13629 |
| _version_ | 1798016172684214272 |
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| author | Bronwyn Newman Kathryn Joseph Fiona E. J. McDonald Reema Harrison Pandora Patterson |
| author_facet | Bronwyn Newman Kathryn Joseph Fiona E. J. McDonald Reema Harrison Pandora Patterson |
| author_sort | Bronwyn Newman |
| collection | DOAJ |
| description | Abstract Background Consumer engagement in health care is recognized as a critical strategy to minimize healthcare‐associated harms, however, little research has focussed on strategies to engage young people in healthcare safety. This study explores the suitability of commonly used engagement strategies, such as brochures, interactive bedside charts or apps, for young people (14–25 years) to improve their healthcare safety, with a focus on cancer care. Methods Four qualitative online workshops were conducted (N = 19). Two workshops included young people who had experienced cancer (n = 6) and two workshops included staff who support young people who had experienced a diagnosis of cancer (n = 12). Evidence from a systematic review was used to develop case studies of existing strategies as a topic guide for the online workshops. Data were analysed using a framework method and template analysis approach. Results Thematic analysis against the analytic framework led to the development of four principles for engagement with young people: empowerment, transparency, participatory culture and flexibility. The transition from being ‘looked after’ to young people being responsible for their own care was an integrative theme which intersected all elements of the framework. Conclusion For service providers to engage with young people about safety issues in cancer services, the strategies employed need to be tailored to consider the transitional nature of being an adolescent or young adult. A systemic approach that incorporates flexible, tailored engagement strategies, education and empowerment of young people and healthcare providers is required to engage effectively with young people about safety in healthcare. These findings may have implications beyond cancer care. Patient or Public Contribution Workshop content was developed with and by the CanEngage team, including the Consumer Advisory Group, who reviewed content and inform wider project priorities. |
| first_indexed | 2024-04-11T15:46:36Z |
| format | Article |
| id | doaj.art-243aa1a049e14ed786a53d0557a1d074 |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-04-11T15:46:36Z |
| publishDate | 2022-12-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-243aa1a049e14ed786a53d0557a1d0742022-12-22T04:15:31ZengWileyHealth Expectations1369-65131369-76252022-12-012563215322410.1111/hex.13629Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approachesBronwyn Newman0Kathryn Joseph1Fiona E. J. McDonald2Reema Harrison3Pandora Patterson4Centre for Health Systems and Safety Research (CHSSR), Australian Institute of Health Innovation Macquarie University Sydney New South Wales AustraliaSchool of Nursing and Midwifery, Centre for Quality and Patient Safety Research, Institute for Health Transformation Deakin University Burwood Victoria AustraliaCanteen Australia Newtown New South Wales AustraliaCentre for Health Systems and Safety Research (CHSSR), Australian Institute of Health Innovation Macquarie University Sydney New South Wales AustraliaCanteen Australia Newtown New South Wales AustraliaAbstract Background Consumer engagement in health care is recognized as a critical strategy to minimize healthcare‐associated harms, however, little research has focussed on strategies to engage young people in healthcare safety. This study explores the suitability of commonly used engagement strategies, such as brochures, interactive bedside charts or apps, for young people (14–25 years) to improve their healthcare safety, with a focus on cancer care. Methods Four qualitative online workshops were conducted (N = 19). Two workshops included young people who had experienced cancer (n = 6) and two workshops included staff who support young people who had experienced a diagnosis of cancer (n = 12). Evidence from a systematic review was used to develop case studies of existing strategies as a topic guide for the online workshops. Data were analysed using a framework method and template analysis approach. Results Thematic analysis against the analytic framework led to the development of four principles for engagement with young people: empowerment, transparency, participatory culture and flexibility. The transition from being ‘looked after’ to young people being responsible for their own care was an integrative theme which intersected all elements of the framework. Conclusion For service providers to engage with young people about safety issues in cancer services, the strategies employed need to be tailored to consider the transitional nature of being an adolescent or young adult. A systemic approach that incorporates flexible, tailored engagement strategies, education and empowerment of young people and healthcare providers is required to engage effectively with young people about safety in healthcare. These findings may have implications beyond cancer care. Patient or Public Contribution Workshop content was developed with and by the CanEngage team, including the Consumer Advisory Group, who reviewed content and inform wider project priorities.https://doi.org/10.1111/hex.13629cancer careconsumer engagementconsumer participationco‐productionpatient safetyyoung people |
| spellingShingle | Bronwyn Newman Kathryn Joseph Fiona E. J. McDonald Reema Harrison Pandora Patterson Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches Health Expectations cancer care consumer engagement consumer participation co‐production patient safety young people |
| title | Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches |
| title_full | Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches |
| title_fullStr | Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches |
| title_full_unstemmed | Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches |
| title_short | Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches |
| title_sort | using consumer engagement strategies to improve healthcare safety for young people an exploration of the relevance and suitability of current approaches |
| topic | cancer care consumer engagement consumer participation co‐production patient safety young people |
| url | https://doi.org/10.1111/hex.13629 |
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