Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study
Abstract Background HIV disclosure is an important step in delivering the right care to people. However, many people with an HIV positive status choose not to disclose. This considerably complicates the delivery of adequate health care. Methods We conducted a grounded theory study to develop a theor...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2018-01-01
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| Series: | BMC Public Health |
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| Online Access: | http://link.springer.com/article/10.1186/s12889-018-5073-x |
| _version_ | 1828832531553714176 |
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| author | Subash Thapa Karin Hannes Anne Buve Shivani Bhattarai Catharina Mathei |
| author_facet | Subash Thapa Karin Hannes Anne Buve Shivani Bhattarai Catharina Mathei |
| author_sort | Subash Thapa |
| collection | DOAJ |
| description | Abstract Background HIV disclosure is an important step in delivering the right care to people. However, many people with an HIV positive status choose not to disclose. This considerably complicates the delivery of adequate health care. Methods We conducted a grounded theory study to develop a theoretical model explaining how local contexts impact on HIV disclosure and what the mechanisms are that determine whether people choose to disclose or not. We conducted in-depth interviews among 23 people living with HIV, 8 health workers and 5 family and community members, and 1 community development worker in Achham, Nepal. Data were analysed using constant-comparative method, performing three levels of open, axial, and selective coding. Results Our theoretical model illustrates how two dominant systems to control HIV, namely a community self-coping and a public health system, independently or jointly, shape contexts, mechanisms and outcomes for HIV disclosure. Conclusion This theoretical model can be used in understanding processes of HIV disclosure in a community where HIV is concentrated in vulnerable populations and is highly stigmatized, and in determining how public health approaches would lead to reduced stigma levels and increased HIV disclosure rates. |
| first_indexed | 2024-12-12T16:55:59Z |
| format | Article |
| id | doaj.art-2450dda40645412a80d41aa538c29f61 |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-12-12T16:55:59Z |
| publishDate | 2018-01-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-2450dda40645412a80d41aa538c29f612022-12-22T00:18:14ZengBMCBMC Public Health1471-24582018-01-0118111310.1186/s12889-018-5073-xTheorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory studySubash Thapa0Karin Hannes1Anne Buve2Shivani Bhattarai3Catharina Mathei4Department of Public Health and Primary care, KU LeuvenCentre for Sociological Research, Faculty of Social Sciences, KU LeuvenDepartment of Public Health, Institute of Tropical MedicineDepartment of Public Health, Nobel College Pokhara UniversityDepartment of Public Health and Primary care, KU LeuvenAbstract Background HIV disclosure is an important step in delivering the right care to people. However, many people with an HIV positive status choose not to disclose. This considerably complicates the delivery of adequate health care. Methods We conducted a grounded theory study to develop a theoretical model explaining how local contexts impact on HIV disclosure and what the mechanisms are that determine whether people choose to disclose or not. We conducted in-depth interviews among 23 people living with HIV, 8 health workers and 5 family and community members, and 1 community development worker in Achham, Nepal. Data were analysed using constant-comparative method, performing three levels of open, axial, and selective coding. Results Our theoretical model illustrates how two dominant systems to control HIV, namely a community self-coping and a public health system, independently or jointly, shape contexts, mechanisms and outcomes for HIV disclosure. Conclusion This theoretical model can be used in understanding processes of HIV disclosure in a community where HIV is concentrated in vulnerable populations and is highly stigmatized, and in determining how public health approaches would lead to reduced stigma levels and increased HIV disclosure rates.http://link.springer.com/article/10.1186/s12889-018-5073-xCommunity self-coping of HIVForced disclosureGrounded theoryHIV disclosureHIV stigmaPublic health system |
| spellingShingle | Subash Thapa Karin Hannes Anne Buve Shivani Bhattarai Catharina Mathei Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study BMC Public Health Community self-coping of HIV Forced disclosure Grounded theory HIV disclosure HIV stigma Public health system |
| title | Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study |
| title_full | Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study |
| title_fullStr | Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study |
| title_full_unstemmed | Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study |
| title_short | Theorizing the complexity of HIV disclosure in vulnerable populations: a grounded theory study |
| title_sort | theorizing the complexity of hiv disclosure in vulnerable populations a grounded theory study |
| topic | Community self-coping of HIV Forced disclosure Grounded theory HIV disclosure HIV stigma Public health system |
| url | http://link.springer.com/article/10.1186/s12889-018-5073-x |
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