Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care
Chronic health conditions are becoming increasingly prevalent. As part of chronic care, sharing patient-generated health data (PGHD) is likely to play a prominent role. Sharing PGHD is increasingly recognized as potentially useful for not only monitoring health conditions but for informing and suppo...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2022-01-01
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| Series: | Frontiers in Computer Science |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fcomp.2021.639748/full |
| _version_ | 1818943053858078720 |
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| author | Pei-Yao Hung Drew Canada Michelle A. Meade Mark S. Ackerman Mark S. Ackerman Mark S. Ackerman |
| author_facet | Pei-Yao Hung Drew Canada Michelle A. Meade Mark S. Ackerman Mark S. Ackerman Mark S. Ackerman |
| author_sort | Pei-Yao Hung |
| collection | DOAJ |
| description | Chronic health conditions are becoming increasingly prevalent. As part of chronic care, sharing patient-generated health data (PGHD) is likely to play a prominent role. Sharing PGHD is increasingly recognized as potentially useful for not only monitoring health conditions but for informing and supporting collaboration with caregivers and healthcare providers. In this paper, we describe a new design for the fine-grained control over sharing one's PGHD to support collaborative self-care, one that centers on giving people with health conditions control over their own data. The system, Data Checkers (DC), uses a grid-based interface and a preview feature to provide users with the ability to control data access and dissemination. DC is of particular use in the case of severe chronic conditions, such as spinal cord injuries and disorders (SCI/D), that require not just intermittent involvement of healthcare providers but daily support and assistance from caregivers. In this paper, after providing relevant background information, we articulate our steps for developing this innovative system for sharing PGHD including (a) use of a co-design process; (b) identification of design requirements; and (c) creation of the DC System. We then present a qualitative evaluation of DC to show how DC satisfied these design requirements in a way that provided advantages for care. Our work extends existing research in the areas of Human-Computer Interaction (HCI), Computer-Supported Cooperative Work (CSCW), Ubiquitous Computing (Ubicomp), and Health Informatics about sharing data and PGHD. |
| first_indexed | 2024-12-20T07:21:13Z |
| format | Article |
| id | doaj.art-2452f441e9844cb987ca94d4cf1af7f7 |
| institution | Directory Open Access Journal |
| issn | 2624-9898 |
| language | English |
| last_indexed | 2024-12-20T07:21:13Z |
| publishDate | 2022-01-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Computer Science |
| spelling | doaj.art-2452f441e9844cb987ca94d4cf1af7f72022-12-21T19:48:40ZengFrontiers Media S.A.Frontiers in Computer Science2624-98982022-01-01310.3389/fcomp.2021.639748639748Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-CarePei-Yao Hung0Drew Canada1Michelle A. Meade2Mark S. Ackerman3Mark S. Ackerman4Mark S. Ackerman5School of Information, University of Michigan, Ann Arbor, MI, United StatesCollege of Engineering, University of Michigan, Ann Arbor, MI, United StatesDepartment of Physical Medicine and Rehabilitation, Medical School, University of Michigan, Ann Arbor, MI, United StatesSchool of Information, University of Michigan, Ann Arbor, MI, United StatesCollege of Engineering, University of Michigan, Ann Arbor, MI, United StatesDepartment of Learning Health Sciences, Medical School, University of Michigan, Ann Arbor, MI, United StatesChronic health conditions are becoming increasingly prevalent. As part of chronic care, sharing patient-generated health data (PGHD) is likely to play a prominent role. Sharing PGHD is increasingly recognized as potentially useful for not only monitoring health conditions but for informing and supporting collaboration with caregivers and healthcare providers. In this paper, we describe a new design for the fine-grained control over sharing one's PGHD to support collaborative self-care, one that centers on giving people with health conditions control over their own data. The system, Data Checkers (DC), uses a grid-based interface and a preview feature to provide users with the ability to control data access and dissemination. DC is of particular use in the case of severe chronic conditions, such as spinal cord injuries and disorders (SCI/D), that require not just intermittent involvement of healthcare providers but daily support and assistance from caregivers. In this paper, after providing relevant background information, we articulate our steps for developing this innovative system for sharing PGHD including (a) use of a co-design process; (b) identification of design requirements; and (c) creation of the DC System. We then present a qualitative evaluation of DC to show how DC satisfied these design requirements in a way that provided advantages for care. Our work extends existing research in the areas of Human-Computer Interaction (HCI), Computer-Supported Cooperative Work (CSCW), Ubiquitous Computing (Ubicomp), and Health Informatics about sharing data and PGHD.https://www.frontiersin.org/articles/10.3389/fcomp.2021.639748/fullpatient-generated health data (PGHD)data sharingdisabilityself-careself-managementcare network |
| spellingShingle | Pei-Yao Hung Drew Canada Michelle A. Meade Mark S. Ackerman Mark S. Ackerman Mark S. Ackerman Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care Frontiers in Computer Science patient-generated health data (PGHD) data sharing disability self-care self-management care network |
| title | Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care |
| title_full | Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care |
| title_fullStr | Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care |
| title_full_unstemmed | Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care |
| title_short | Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care |
| title_sort | data checkers a grid based ui for managing patient generated data sharing to support collaborative self care |
| topic | patient-generated health data (PGHD) data sharing disability self-care self-management care network |
| url | https://www.frontiersin.org/articles/10.3389/fcomp.2021.639748/full |
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