A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study
BackgroundLatinx family caregivers of individuals with dementia face many barriers to caregiver support access. Interventions to alleviate these barriers are urgently needed. ObjectiveThis study aimed to describe the development of CuidaTEXT, a tailored SMS text m...
| Main Authors: | , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2022-04-01
|
| Series: | JMIR Aging |
| Online Access: | https://aging.jmir.org/2022/2/e35625 |
| _version_ | 1827858326927441920 |
|---|---|
| author | Jaime Perales-Puchalt Mariola Acosta-Rullán Mariana Ramírez-Mantilla Paul Espinoza-Kissell Eric Vidoni Michelle Niedens Edward Ellerbeck Ladson Hinton Linda Loera A Susana Ramírez Esther Lara Amber Watts Kristine Williams Jason Resendez Jeffrey Burns |
| author_facet | Jaime Perales-Puchalt Mariola Acosta-Rullán Mariana Ramírez-Mantilla Paul Espinoza-Kissell Eric Vidoni Michelle Niedens Edward Ellerbeck Ladson Hinton Linda Loera A Susana Ramírez Esther Lara Amber Watts Kristine Williams Jason Resendez Jeffrey Burns |
| author_sort | Jaime Perales-Puchalt |
| collection | DOAJ |
| description |
BackgroundLatinx family caregivers of individuals with dementia face many barriers to caregiver support access. Interventions to alleviate these barriers are urgently needed.
ObjectiveThis study aimed to describe the development of CuidaTEXT, a tailored SMS text messaging intervention to support Latinx family caregivers of individuals with dementia.
MethodsCuidaTEXT is informed by the stress process framework and social cognitive theory. We developed and refined CuidaTEXT using a mixed methods approach that included thematic analysis and descriptive statistics. We followed 6 user-centered design stages, namely, the selection of design principles, software vendor collaboration, evidence-based foundation, caregiver and research and clinical advisory board guidance, sketching and prototyping, and usability testing of the prototype of CuidaTEXT among 5 Latinx caregivers.
ResultsCuidaTEXT is a bilingual 6-month-long SMS text messaging–based intervention tailored to caregiver needs that includes 1-3 daily automatic messages (n=244) about logistics, dementia education, self-care, social support, end of life, care of the person with dementia, behavioral symptoms, and problem-solving strategies; 783 keyword-driven text messages for further help with the aforementioned topics; live chat interaction with a coach for further help; and a 19-page reference booklet summarizing the purpose and functions of the intervention. The 5 Latinx caregivers who used the prototype of CuidaTEXT scored an average of 97 out of 100 on the System Usability Scale.
ConclusionsCuidaTEXT’s prototype demonstrated high usability among Latinx caregivers. CuidaTEXT’s feasibility is ready to be tested. |
| first_indexed | 2024-03-12T12:53:14Z |
| format | Article |
| id | doaj.art-247bd63e8cf34b4a91eedf80e90488d3 |
| institution | Directory Open Access Journal |
| issn | 2561-7605 |
| language | English |
| last_indexed | 2024-03-12T12:53:14Z |
| publishDate | 2022-04-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Aging |
| spelling | doaj.art-247bd63e8cf34b4a91eedf80e90488d32023-08-28T21:31:06ZengJMIR PublicationsJMIR Aging2561-76052022-04-0152e3562510.2196/35625A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability StudyJaime Perales-Puchalthttps://orcid.org/0000-0003-1013-7847Mariola Acosta-Rullánhttps://orcid.org/0000-0003-3961-8812Mariana Ramírez-Mantillahttps://orcid.org/0000-0001-6744-0957Paul Espinoza-Kissellhttps://orcid.org/0000-0003-2799-4554Eric Vidonihttps://orcid.org/0000-0001-5181-7131Michelle Niedenshttps://orcid.org/0000-0001-9001-2643Edward Ellerbeckhttps://orcid.org/0000-0002-7774-2729Ladson Hintonhttps://orcid.org/0000-0001-6198-8540Linda Loerahttps://orcid.org/0000-0003-0675-8018A Susana Ramírezhttps://orcid.org/0000-0002-9095-5358Esther Larahttps://orcid.org/0000-0001-5621-8656Amber Wattshttps://orcid.org/0000-0002-8385-1091Kristine Williamshttps://orcid.org/0000-0003-1312-788XJason Resendezhttps://orcid.org/0000-0002-7529-6593Jeffrey Burnshttps://orcid.org/0000-0001-7609-8954 BackgroundLatinx family caregivers of individuals with dementia face many barriers to caregiver support access. Interventions to alleviate these barriers are urgently needed. ObjectiveThis study aimed to describe the development of CuidaTEXT, a tailored SMS text messaging intervention to support Latinx family caregivers of individuals with dementia. MethodsCuidaTEXT is informed by the stress process framework and social cognitive theory. We developed and refined CuidaTEXT using a mixed methods approach that included thematic analysis and descriptive statistics. We followed 6 user-centered design stages, namely, the selection of design principles, software vendor collaboration, evidence-based foundation, caregiver and research and clinical advisory board guidance, sketching and prototyping, and usability testing of the prototype of CuidaTEXT among 5 Latinx caregivers. ResultsCuidaTEXT is a bilingual 6-month-long SMS text messaging–based intervention tailored to caregiver needs that includes 1-3 daily automatic messages (n=244) about logistics, dementia education, self-care, social support, end of life, care of the person with dementia, behavioral symptoms, and problem-solving strategies; 783 keyword-driven text messages for further help with the aforementioned topics; live chat interaction with a coach for further help; and a 19-page reference booklet summarizing the purpose and functions of the intervention. The 5 Latinx caregivers who used the prototype of CuidaTEXT scored an average of 97 out of 100 on the System Usability Scale. ConclusionsCuidaTEXT’s prototype demonstrated high usability among Latinx caregivers. CuidaTEXT’s feasibility is ready to be tested.https://aging.jmir.org/2022/2/e35625 |
| spellingShingle | Jaime Perales-Puchalt Mariola Acosta-Rullán Mariana Ramírez-Mantilla Paul Espinoza-Kissell Eric Vidoni Michelle Niedens Edward Ellerbeck Ladson Hinton Linda Loera A Susana Ramírez Esther Lara Amber Watts Kristine Williams Jason Resendez Jeffrey Burns A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study JMIR Aging |
| title | A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study |
| title_full | A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study |
| title_fullStr | A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study |
| title_full_unstemmed | A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study |
| title_short | A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study |
| title_sort | text messaging intervention to support latinx family caregivers of individuals with dementia cuidatext development and usability study |
| url | https://aging.jmir.org/2022/2/e35625 |
| work_keys_str_mv | AT jaimeperalespuchalt atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT mariolaacostarullan atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT marianaramirezmantilla atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT paulespinozakissell atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT ericvidoni atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT michelleniedens atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT edwardellerbeck atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT ladsonhinton atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT lindaloera atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT asusanaramirez atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT estherlara atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT amberwatts atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT kristinewilliams atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT jasonresendez atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT jeffreyburns atextmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT jaimeperalespuchalt textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT mariolaacostarullan textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT marianaramirezmantilla textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT paulespinozakissell textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT ericvidoni textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT michelleniedens textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT edwardellerbeck textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT ladsonhinton textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT lindaloera textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT asusanaramirez textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT estherlara textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT amberwatts textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT kristinewilliams textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT jasonresendez textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy AT jeffreyburns textmessaginginterventiontosupportlatinxfamilycaregiversofindividualswithdementiacuidatextdevelopmentandusabilitystudy |