Patient oriented research in mental health: matching laboratory to life and beyond in Canada

Plain English summary This paper presents a roadmap for patient-oriented research in mental health in Canada. At the level of laboratory science, the direct involvement of patients and their collaboration with researchers on experimental development and dissemination of results has been scarce. With...

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Main Authors: Jenessa N. Johnston, Lisa Ridgway, Sarah Cary-Barnard, Josh Allen, Carla L. Sanchez-Lafuente, Brady Reive, Lisa E. Kalynchuk, Hector J. Caruncho
Format: Article
Language:English
Published: BMC 2021-04-01
Series:Research Involvement and Engagement
Subjects:
Online Access:https://doi.org/10.1186/s40900-021-00266-1
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author Jenessa N. Johnston
Lisa Ridgway
Sarah Cary-Barnard
Josh Allen
Carla L. Sanchez-Lafuente
Brady Reive
Lisa E. Kalynchuk
Hector J. Caruncho
author_facet Jenessa N. Johnston
Lisa Ridgway
Sarah Cary-Barnard
Josh Allen
Carla L. Sanchez-Lafuente
Brady Reive
Lisa E. Kalynchuk
Hector J. Caruncho
author_sort Jenessa N. Johnston
collection DOAJ
description Plain English summary This paper presents a roadmap for patient-oriented research in mental health in Canada. At the level of laboratory science, the direct involvement of patients and their collaboration with researchers on experimental development and dissemination of results has been scarce. With voices of collaborative patient partners, graduate students and the principal-investigator, it makes a clear case for involving people with lived experience within translational mental health research, which has shown positive outcomes that could potentially shape public policy and future practice. Starting with the premise that meaningful engagement spurs meaningful results, the paper addresses current literature, a discussion of the challenges faced by researchers and patient partners and includes a consideration of COVID-19 consequences. Ending with clear recommendations, this paper is an exciting call to action for involving patient partners in the full research cycle of mental health research and beyond.
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spelling doaj.art-24a1bd684a314223b91ccdd274734ab42022-12-21T23:23:38ZengBMCResearch Involvement and Engagement2056-75292021-04-017111110.1186/s40900-021-00266-1Patient oriented research in mental health: matching laboratory to life and beyond in CanadaJenessa N. Johnston0Lisa Ridgway1Sarah Cary-Barnard2Josh Allen3Carla L. Sanchez-Lafuente4Brady Reive5Lisa E. Kalynchuk6Hector J. Caruncho7Division of Medical Sciences, University of VictoriaPatient Partner, BC SUPPORT UnitPatient PartnerDivision of Medical Sciences, University of VictoriaDivision of Medical Sciences, University of VictoriaDivision of Medical Sciences, University of VictoriaDivision of Medical Sciences, University of VictoriaDivision of Medical Sciences, University of VictoriaPlain English summary This paper presents a roadmap for patient-oriented research in mental health in Canada. At the level of laboratory science, the direct involvement of patients and their collaboration with researchers on experimental development and dissemination of results has been scarce. With voices of collaborative patient partners, graduate students and the principal-investigator, it makes a clear case for involving people with lived experience within translational mental health research, which has shown positive outcomes that could potentially shape public policy and future practice. Starting with the premise that meaningful engagement spurs meaningful results, the paper addresses current literature, a discussion of the challenges faced by researchers and patient partners and includes a consideration of COVID-19 consequences. Ending with clear recommendations, this paper is an exciting call to action for involving patient partners in the full research cycle of mental health research and beyond.https://doi.org/10.1186/s40900-021-00266-1Patient-oriented researchMental healthLaboratory preclinical researchPatient partnersKnowledge transfer
spellingShingle Jenessa N. Johnston
Lisa Ridgway
Sarah Cary-Barnard
Josh Allen
Carla L. Sanchez-Lafuente
Brady Reive
Lisa E. Kalynchuk
Hector J. Caruncho
Patient oriented research in mental health: matching laboratory to life and beyond in Canada
Research Involvement and Engagement
Patient-oriented research
Mental health
Laboratory preclinical research
Patient partners
Knowledge transfer
title Patient oriented research in mental health: matching laboratory to life and beyond in Canada
title_full Patient oriented research in mental health: matching laboratory to life and beyond in Canada
title_fullStr Patient oriented research in mental health: matching laboratory to life and beyond in Canada
title_full_unstemmed Patient oriented research in mental health: matching laboratory to life and beyond in Canada
title_short Patient oriented research in mental health: matching laboratory to life and beyond in Canada
title_sort patient oriented research in mental health matching laboratory to life and beyond in canada
topic Patient-oriented research
Mental health
Laboratory preclinical research
Patient partners
Knowledge transfer
url https://doi.org/10.1186/s40900-021-00266-1
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