Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey

Background. In Canada, caregivers of older adults receiving home care face difficult decisions that may lead to decision regret. We assessed difficult decisions and decision regret among caregivers of older adults receiving home care services and factors associated with decision regret. Methods. Fro...

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Main Authors: Tania Lognon, Amédé Gogovor, Karine V. Plourde, Paul Holyoke, Claudia Lai, Emmanuelle Aubin, Kathy Kastner, Carolyn Canfield, Ron Beleno, Dawn Stacey, Louis-Paul Rivest, France Légaré
Format: Article
Language:English
Published: SAGE Publishing 2022-08-01
Series:MDM Policy & Practice
Online Access:https://doi.org/10.1177/23814683221116304
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author Tania Lognon
Amédé Gogovor
Karine V. Plourde
Paul Holyoke
Claudia Lai
Emmanuelle Aubin
Kathy Kastner
Carolyn Canfield
Ron Beleno
Dawn Stacey
Louis-Paul Rivest
France Légaré
author_facet Tania Lognon
Amédé Gogovor
Karine V. Plourde
Paul Holyoke
Claudia Lai
Emmanuelle Aubin
Kathy Kastner
Carolyn Canfield
Ron Beleno
Dawn Stacey
Louis-Paul Rivest
France Légaré
author_sort Tania Lognon
collection DOAJ
description Background. In Canada, caregivers of older adults receiving home care face difficult decisions that may lead to decision regret. We assessed difficult decisions and decision regret among caregivers of older adults receiving home care services and factors associated with decision regret. Methods. From March 13 to 30, 2020, at the outbreak of the COVID-19 pandemic, we conducted an online survey with caregivers of older adults receiving home care in the 10 Canadian provinces. We distributed a self-administered questionnaire through Canada’s largest and most representative private online panel. We identified types of difficult health-related decisions faced in the past year and their frequency and evaluated decision regret using the Decision Regret Scale (DRS), scored from 0 to 100. We performed descriptive statistics as well as bivariable and multivariable linear regression to identify factors predicting decision regret. Results. Among 932 participants, the mean age was 42.2 y (SD = 15.6 y), and 58.4% were male. The most frequently reported difficult decisions were regarding housing and safety (75.1%). The mean DRS score was 28.8/100 (SD = 8.6). Factors associated with less decision regret included higher caregiver age, involvement of other family members in the decision-making process, wanting to receive information about the options, and considering organizations interested in the decision topic and health care professionals as trustworthy sources of information (all P < 0.001). Factors associated with more decision regret included mismatch between the caregiver’s preferred option and the decision made, the involvement of spouses in the decision-making process, higher decisional conflict, and higher burden of care (all P < 0.001). Discussion. Decisions about housing and safety were the difficult decisions most frequently encountered by caregivers of older adults in this survey. Our results will inform future decision support interventions. Highlights This is one of the first studies to assess decision regret among caregivers of older adults receiving home and community care services and to identify their most frequent difficult decisions. Difficult decisions were most frequently about housing and safety. Most caregivers of older adults in all 10 provinces of Canada experienced decision regret. Factors associated with less decision regret included higher caregiver age, the involvement of other family members in the decision-making process, wanting to receive information about the options, considering organizations interested in the decision topic, and health care professionals as trustworthy sources of information. Factors associated with more decision regret included mismatch between the caregiver’s preferred option and the decision made, the involvement of spouses in the decision-making process, higher decisional conflict, and higher burden of care.
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spelling doaj.art-24a54c97186b4145ac65047340a8a74e2022-12-22T02:51:10ZengSAGE PublishingMDM Policy & Practice2381-46832022-08-01710.1177/23814683221116304Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online SurveyTania LognonAmédé GogovorKarine V. PlourdePaul HolyokeClaudia LaiEmmanuelle AubinKathy KastnerCarolyn CanfieldRon BelenoDawn StaceyLouis-Paul RivestFrance LégaréBackground. In Canada, caregivers of older adults receiving home care face difficult decisions that may lead to decision regret. We assessed difficult decisions and decision regret among caregivers of older adults receiving home care services and factors associated with decision regret. Methods. From March 13 to 30, 2020, at the outbreak of the COVID-19 pandemic, we conducted an online survey with caregivers of older adults receiving home care in the 10 Canadian provinces. We distributed a self-administered questionnaire through Canada’s largest and most representative private online panel. We identified types of difficult health-related decisions faced in the past year and their frequency and evaluated decision regret using the Decision Regret Scale (DRS), scored from 0 to 100. We performed descriptive statistics as well as bivariable and multivariable linear regression to identify factors predicting decision regret. Results. Among 932 participants, the mean age was 42.2 y (SD = 15.6 y), and 58.4% were male. The most frequently reported difficult decisions were regarding housing and safety (75.1%). The mean DRS score was 28.8/100 (SD = 8.6). Factors associated with less decision regret included higher caregiver age, involvement of other family members in the decision-making process, wanting to receive information about the options, and considering organizations interested in the decision topic and health care professionals as trustworthy sources of information (all P < 0.001). Factors associated with more decision regret included mismatch between the caregiver’s preferred option and the decision made, the involvement of spouses in the decision-making process, higher decisional conflict, and higher burden of care (all P < 0.001). Discussion. Decisions about housing and safety were the difficult decisions most frequently encountered by caregivers of older adults in this survey. Our results will inform future decision support interventions. Highlights This is one of the first studies to assess decision regret among caregivers of older adults receiving home and community care services and to identify their most frequent difficult decisions. Difficult decisions were most frequently about housing and safety. Most caregivers of older adults in all 10 provinces of Canada experienced decision regret. Factors associated with less decision regret included higher caregiver age, the involvement of other family members in the decision-making process, wanting to receive information about the options, considering organizations interested in the decision topic, and health care professionals as trustworthy sources of information. Factors associated with more decision regret included mismatch between the caregiver’s preferred option and the decision made, the involvement of spouses in the decision-making process, higher decisional conflict, and higher burden of care.https://doi.org/10.1177/23814683221116304
spellingShingle Tania Lognon
Amédé Gogovor
Karine V. Plourde
Paul Holyoke
Claudia Lai
Emmanuelle Aubin
Kathy Kastner
Carolyn Canfield
Ron Beleno
Dawn Stacey
Louis-Paul Rivest
France Légaré
Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
MDM Policy & Practice
title Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
title_full Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
title_fullStr Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
title_full_unstemmed Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
title_short Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey
title_sort predictors of decision regret among caregivers of older canadians receiving home care a cross sectional online survey
url https://doi.org/10.1177/23814683221116304
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