Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China

Introduction: Breast cancer patients are demanding more active roles in their care, especially in the initial diagnosis and treatment stages. At present, there is no suitable patient questionnaire that appropriately incorporates Chinese language, habits, and cultural differences. Aim: To develo...

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Main Authors: Ling Li, Jing Xue, Zhan-Zhan Li, Li-Zhang Chen
Format: Article
Language:English
Published: JCDR Research and Publications Private Limited 2016-10-01
Series:Journal of Clinical and Diagnostic Research
Subjects:
Online Access:https://jcdr.net/articles/PDF/8668/17907_CE[Ra1]_F(GH)_PF1(AHAK)_PFA(AK)_PF2(PAG).pdf
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author Ling Li
Jing Xue
Zhan-Zhan Li
Li-Zhang Chen
author_facet Ling Li
Jing Xue
Zhan-Zhan Li
Li-Zhang Chen
author_sort Ling Li
collection DOAJ
description Introduction: Breast cancer patients are demanding more active roles in their care, especially in the initial diagnosis and treatment stages. At present, there is no suitable patient questionnaire that appropriately incorporates Chinese language, habits, and cultural differences. Aim: To develop and validate a patient-needs questionnaire for female breast cancer inpatients in China. Materials and Methods: The questionnaire structure was based on Maslow's model and a modern medical model. In the first step, a focus group was used to design 125 questions, of which 64 constituted the initial questionnaire for item screening with a group of 115 hospitalized patients with breast cancer. Items were included or excluded based on the evaluation of eight statistical analysis. Ultimately, 38 items were selected and validated. The reliability and validity of the 38-item questionnaire were determined in a cohort of 323 patients. Results: The scale was set up with the 38 selected items. The four primary areas were disease knowledge, medical environment, psychosocial parameters and sexual attitudes. Cronbach’s coefficient was 0.959. The split-half reliability value was 0.935. Principal component factor analysis extracted four common factors. Conclusion: Our new questionnaire, designed to assess the care needs of Chinese inpatients with breast cancer is reliable, sensitive, effective, independent and representative. It can be used in medical practice as a tool for a more complete assessment of patients’ needs.
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spelling doaj.art-24cfb089ea76412896c43bf695b470cc2022-12-22T00:53:25ZengJCDR Research and Publications Private LimitedJournal of Clinical and Diagnostic Research2249-782X0973-709X2016-10-011010XC06XC1010.7860/JCDR/2016/17907.8668Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in ChinaLing Li0Jing Xue1Zhan-Zhan Li2Li-Zhang Chen3Associate Senior Technician, Records Office, Guangzhou First People’s Hospital, Guangzhou Medical College, Guangzhou, Guangdong, China.Attending Doctor, Department of Epidemiology and Biostatistics, School of Public Health, Central South University, 78 Xiangya Road, Changsha, Hunan, China.Attending Doctor, Department of Epidemiology and Biostatistics, School of Public Health, Central South University, 78 Xiangya Road, Changsha, Hunan, China.Professor, Department of Epidemiology and Biostatistics, School of Public Health, Central South University, 78 Xiangya Road, Changsha, Hunan, China.Introduction: Breast cancer patients are demanding more active roles in their care, especially in the initial diagnosis and treatment stages. At present, there is no suitable patient questionnaire that appropriately incorporates Chinese language, habits, and cultural differences. Aim: To develop and validate a patient-needs questionnaire for female breast cancer inpatients in China. Materials and Methods: The questionnaire structure was based on Maslow's model and a modern medical model. In the first step, a focus group was used to design 125 questions, of which 64 constituted the initial questionnaire for item screening with a group of 115 hospitalized patients with breast cancer. Items were included or excluded based on the evaluation of eight statistical analysis. Ultimately, 38 items were selected and validated. The reliability and validity of the 38-item questionnaire were determined in a cohort of 323 patients. Results: The scale was set up with the 38 selected items. The four primary areas were disease knowledge, medical environment, psychosocial parameters and sexual attitudes. Cronbach’s coefficient was 0.959. The split-half reliability value was 0.935. Principal component factor analysis extracted four common factors. Conclusion: Our new questionnaire, designed to assess the care needs of Chinese inpatients with breast cancer is reliable, sensitive, effective, independent and representative. It can be used in medical practice as a tool for a more complete assessment of patients’ needs.https://jcdr.net/articles/PDF/8668/17907_CE[Ra1]_F(GH)_PF1(AHAK)_PFA(AK)_PF2(PAG).pdfbio-psychosocial modelchinese questionnairedemandhealth educationinstrumentreliabilityvalidity
spellingShingle Ling Li
Jing Xue
Zhan-Zhan Li
Li-Zhang Chen
Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
Journal of Clinical and Diagnostic Research
bio-psychosocial model
chinese questionnaire
demand
health education
instrument
reliability
validity
title Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
title_full Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
title_fullStr Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
title_full_unstemmed Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
title_short Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China
title_sort development and testing of a reliable and valid patient needs questionnaire for breast cancer inpatients in china
topic bio-psychosocial model
chinese questionnaire
demand
health education
instrument
reliability
validity
url https://jcdr.net/articles/PDF/8668/17907_CE[Ra1]_F(GH)_PF1(AHAK)_PFA(AK)_PF2(PAG).pdf
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