The Lived Experiences of the Mothers of Children With Speech Disabilities

Background: The mother, as the first and foremost person interacting with the child, suffers the most from the child’s speech disability. This study aimed to explore the lived experiences of mothers of children with speech disabilities. Methods: This qualitative study was conducted using a descripti...

Full description

Bibliographic Details
Main Authors: Shourideh Seresht, Anahita Khodabakhshi-Koolaee, Mohammad Reza Falsafinejad
Format: Article
Language:English
Published: Iran University of Medical Sciences 2022-08-01
Series:Journal of Client-centered Nursing Care
Subjects:
Online Access:http://jccnc.iums.ac.ir/article-1-369-en.html
_version_ 1811229689703825408
author Shourideh Seresht
Anahita Khodabakhshi-Koolaee
Mohammad Reza Falsafinejad
author_facet Shourideh Seresht
Anahita Khodabakhshi-Koolaee
Mohammad Reza Falsafinejad
author_sort Shourideh Seresht
collection DOAJ
description Background: The mother, as the first and foremost person interacting with the child, suffers the most from the child’s speech disability. This study aimed to explore the lived experiences of mothers of children with speech disabilities. Methods: This qualitative study was conducted using a descriptive phenomenological approach and purposive sampling in Tehran, Iran in 2021. Data were generated through 20 semi-structured interviews with mothers whose children needed speech therapy for at least six months and had been referred to speech therapy centers in Tehran, Iran. The interviews continued until data saturation. Data analysis was performed using Colaizzi’s seven-step method. Results: Four main themes and nine subthemes emerged, including intrapersonal suffering (psychological pressure and physical pain), feeling empty (lack of husband support and lack of support from the husband’s family), interpersonal conflicts (challenge with therapists and facing public reaction), and need for balance (self-imposed social exclusion/isolation, take refuge in superstitions out of despair, and take refuge in the support of peer mothers). Conclusion: The results of this research revealed that paying attention to the inner suffering and pain experienced by these mothers is necessary. Support from their husbands and health workers could help them to better resolve the conflicts and create balance in their lives. Implementation of psychological interventions to reduce the subjective and objective burden of these mothers and involving them in counseling sessions can reduce their anxiety and stress.
first_indexed 2024-04-12T10:18:54Z
format Article
id doaj.art-258653ff013d4cf8af885922daa67ef2
institution Directory Open Access Journal
issn 2476-4124
2476-4132
language English
last_indexed 2024-04-12T10:18:54Z
publishDate 2022-08-01
publisher Iran University of Medical Sciences
record_format Article
series Journal of Client-centered Nursing Care
spelling doaj.art-258653ff013d4cf8af885922daa67ef22022-12-22T03:37:09ZengIran University of Medical SciencesJournal of Client-centered Nursing Care2476-41242476-41322022-08-0183209222The Lived Experiences of the Mothers of Children With Speech DisabilitiesShourideh Seresht0Anahita Khodabakhshi-Koolaee1Mohammad Reza Falsafinejad2 Department of Counseling, Faculty of Humanities and Social Sciences, Science and Research Branch, Islamic Azad University, Tehran, Iran. Department of Psychology & Educational Sciences, Faculty of Humanities, Khatam University, Tehran, Iran. Department of Assessment and Measurement, Faculty of Psychology and Educational Sciences, Allameh Tabataba'i University, Tehran, Iran. Background: The mother, as the first and foremost person interacting with the child, suffers the most from the child’s speech disability. This study aimed to explore the lived experiences of mothers of children with speech disabilities. Methods: This qualitative study was conducted using a descriptive phenomenological approach and purposive sampling in Tehran, Iran in 2021. Data were generated through 20 semi-structured interviews with mothers whose children needed speech therapy for at least six months and had been referred to speech therapy centers in Tehran, Iran. The interviews continued until data saturation. Data analysis was performed using Colaizzi’s seven-step method. Results: Four main themes and nine subthemes emerged, including intrapersonal suffering (psychological pressure and physical pain), feeling empty (lack of husband support and lack of support from the husband’s family), interpersonal conflicts (challenge with therapists and facing public reaction), and need for balance (self-imposed social exclusion/isolation, take refuge in superstitions out of despair, and take refuge in the support of peer mothers). Conclusion: The results of this research revealed that paying attention to the inner suffering and pain experienced by these mothers is necessary. Support from their husbands and health workers could help them to better resolve the conflicts and create balance in their lives. Implementation of psychological interventions to reduce the subjective and objective burden of these mothers and involving them in counseling sessions can reduce their anxiety and stress.http://jccnc.iums.ac.ir/article-1-369-en.htmldisabled childrenspeech-language pathologyparent-child relationssocial stigmaqualitative research
spellingShingle Shourideh Seresht
Anahita Khodabakhshi-Koolaee
Mohammad Reza Falsafinejad
The Lived Experiences of the Mothers of Children With Speech Disabilities
Journal of Client-centered Nursing Care
disabled children
speech-language pathology
parent-child relations
social stigma
qualitative research
title The Lived Experiences of the Mothers of Children With Speech Disabilities
title_full The Lived Experiences of the Mothers of Children With Speech Disabilities
title_fullStr The Lived Experiences of the Mothers of Children With Speech Disabilities
title_full_unstemmed The Lived Experiences of the Mothers of Children With Speech Disabilities
title_short The Lived Experiences of the Mothers of Children With Speech Disabilities
title_sort lived experiences of the mothers of children with speech disabilities
topic disabled children
speech-language pathology
parent-child relations
social stigma
qualitative research
url http://jccnc.iums.ac.ir/article-1-369-en.html
work_keys_str_mv AT shouridehseresht thelivedexperiencesofthemothersofchildrenwithspeechdisabilities
AT anahitakhodabakhshikoolaee thelivedexperiencesofthemothersofchildrenwithspeechdisabilities
AT mohammadrezafalsafinejad thelivedexperiencesofthemothersofchildrenwithspeechdisabilities
AT shouridehseresht livedexperiencesofthemothersofchildrenwithspeechdisabilities
AT anahitakhodabakhshikoolaee livedexperiencesofthemothersofchildrenwithspeechdisabilities
AT mohammadrezafalsafinejad livedexperiencesofthemothersofchildrenwithspeechdisabilities