Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV

Abstract Background Safety protocols are an essential component of studies addressing violence and mental health but are rarely described in the published literature from Sub-Saharan Africa. We designed and implemented a safety protocol within Project YES! (Youth Engaging for Success), which enrolle...

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Main Authors: Katherine G. Merrill, Jonathan K. Mwansa, Sam Miti, Virginia M. Burke, Elizabeth A. Abrams, Christiana Frimpong, Michele R. Decker, Jacquelyn C. Campbell, Julie A. Denison
Format: Article
Language:English
Published: BMC 2021-10-01
Series:Global Health Research and Policy
Subjects:
Online Access:https://doi.org/10.1186/s41256-021-00224-0
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author Katherine G. Merrill
Jonathan K. Mwansa
Sam Miti
Virginia M. Burke
Elizabeth A. Abrams
Christiana Frimpong
Michele R. Decker
Jacquelyn C. Campbell
Julie A. Denison
author_facet Katherine G. Merrill
Jonathan K. Mwansa
Sam Miti
Virginia M. Burke
Elizabeth A. Abrams
Christiana Frimpong
Michele R. Decker
Jacquelyn C. Campbell
Julie A. Denison
author_sort Katherine G. Merrill
collection DOAJ
description Abstract Background Safety protocols are an essential component of studies addressing violence and mental health but are rarely described in the published literature from Sub-Saharan Africa. We designed and implemented a safety protocol within Project YES! (Youth Engaging for Success), which enrolled 276 youth living with HIV (ages 15–24 years) in a randomized controlled trial of a peer-mentoring intervention across four HIV clinics in Ndola, Zambia. Methods Youth who reported severe violence and/or suicidal thoughts on research surveys or during meetings with youth peer mentors (YPM) were referred to designated healthcare providers (HCP). We explored experiences with the safety protocol using: a) monitoring data of referrals, and b) in-depth interviews with youth (n = 82), HCP (n = 10), YPM (n = 8), and staff (n = 6). Descriptive statistics were generated and thematic analysis of coded transcripts and written memos performed. Results Nearly half of youth enrolled (48% of females, 41% of males) were referred to a HCP at least once. The first referral was most often for sexual violence (35%) and/or suicidal ideation/depression (29%). All referred youth aged 15–17 years and over 80% of referred youth aged 18 + agreed to see a HCP. HCP referred 15% for additional services outside the clinic. Twenty-nine youth, all HCP, all YPM, and all staff interviewed discussed the safety protocol. Most youth felt “encouraged,” “helped,” “unburdened,” and “relieved” by their meetings with HCP; some expressed concerns about meeting with HCP. The safety protocol helped HCP recognize the need to integrate care for violence and mental health with medication adherence support. HCP, YPM, and study staff raised implementation challenges, including youth choosing not to open up to HCP, time and resource constraints, deficiencies in HCP training, and stigma and cultural norms inhibiting referrals outside the clinic for emotional trauma and mental health. Conclusions Implementing a safety protocol within an HIV clinic-based research study is possible and beneficial for youth and HCP alike. Implementation challenges underscore that HCP in Zambia work in over-stretched healthcare systems. Innovative strategies must address deficiencies in training and resources within HIV clinics and gaps in coordination across services to meet the overwhelming need for violence and mental health services among youth living with HIV.
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spelling doaj.art-260542ade7cb46d0b288e298efe6cf302022-12-21T22:37:40ZengBMCGlobal Health Research and Policy2397-06422021-10-016111010.1186/s41256-021-00224-0Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIVKatherine G. Merrill0Jonathan K. Mwansa1Sam Miti2Virginia M. Burke3Elizabeth A. Abrams4Christiana Frimpong5Michele R. Decker6Jacquelyn C. Campbell7Julie A. Denison8Department of International Health, Johns Hopkins Bloomberg School of Public HealthArthur Davison Children’s HospitalArthur Davison Children’s HospitalDepartment of International Health, Johns Hopkins Bloomberg School of Public HealthDepartment of International Health, Johns Hopkins Bloomberg School of Public HealthArthur Davison Children’s HospitalDepartment of Population, Family and Reproductive Health, Johns Hopkins Bloomberg School of Public HealthDepartment of Community-Public Health, Johns Hopkins School of NursingDepartment of International Health, Johns Hopkins Bloomberg School of Public HealthAbstract Background Safety protocols are an essential component of studies addressing violence and mental health but are rarely described in the published literature from Sub-Saharan Africa. We designed and implemented a safety protocol within Project YES! (Youth Engaging for Success), which enrolled 276 youth living with HIV (ages 15–24 years) in a randomized controlled trial of a peer-mentoring intervention across four HIV clinics in Ndola, Zambia. Methods Youth who reported severe violence and/or suicidal thoughts on research surveys or during meetings with youth peer mentors (YPM) were referred to designated healthcare providers (HCP). We explored experiences with the safety protocol using: a) monitoring data of referrals, and b) in-depth interviews with youth (n = 82), HCP (n = 10), YPM (n = 8), and staff (n = 6). Descriptive statistics were generated and thematic analysis of coded transcripts and written memos performed. Results Nearly half of youth enrolled (48% of females, 41% of males) were referred to a HCP at least once. The first referral was most often for sexual violence (35%) and/or suicidal ideation/depression (29%). All referred youth aged 15–17 years and over 80% of referred youth aged 18 + agreed to see a HCP. HCP referred 15% for additional services outside the clinic. Twenty-nine youth, all HCP, all YPM, and all staff interviewed discussed the safety protocol. Most youth felt “encouraged,” “helped,” “unburdened,” and “relieved” by their meetings with HCP; some expressed concerns about meeting with HCP. The safety protocol helped HCP recognize the need to integrate care for violence and mental health with medication adherence support. HCP, YPM, and study staff raised implementation challenges, including youth choosing not to open up to HCP, time and resource constraints, deficiencies in HCP training, and stigma and cultural norms inhibiting referrals outside the clinic for emotional trauma and mental health. Conclusions Implementing a safety protocol within an HIV clinic-based research study is possible and beneficial for youth and HCP alike. Implementation challenges underscore that HCP in Zambia work in over-stretched healthcare systems. Innovative strategies must address deficiencies in training and resources within HIV clinics and gaps in coordination across services to meet the overwhelming need for violence and mental health services among youth living with HIV.https://doi.org/10.1186/s41256-021-00224-0Safety protocolReferralViolenceMental healthHIVYouth
spellingShingle Katherine G. Merrill
Jonathan K. Mwansa
Sam Miti
Virginia M. Burke
Elizabeth A. Abrams
Christiana Frimpong
Michele R. Decker
Jacquelyn C. Campbell
Julie A. Denison
Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
Global Health Research and Policy
Safety protocol
Referral
Violence
Mental health
HIV
Youth
title Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
title_full Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
title_fullStr Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
title_full_unstemmed Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
title_short Experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with HIV
title_sort experiences with a violence and mental health safety protocol for a randomized controlled trial to support youth living with hiv
topic Safety protocol
Referral
Violence
Mental health
HIV
Youth
url https://doi.org/10.1186/s41256-021-00224-0
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