Heterogeneity in Measures of Illness among Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Not Explained by Clinical Practice: A Study in Seven U.S. Specialty Clinics

Heterogeneity in Measures of Illness among Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Not Explained by Clinical Practice: A Study in Seven U.S. Specialty Clinics

<b>Background:</b> One of the goals of the Multi-site Clinical Assessment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MCAM) study was to evaluate whether clinicians experienced in diagnosing and caring for patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CF...

Full description

Bibliographic Details
Main Authors:	Elizabeth R. Unger, Jin-Mann S. Lin, Yang Chen, Monica E. Cornelius, Britany Helton, Anindita N. Issa, Jeanne Bertolli, Nancy G. Klimas, Elizabeth G. Balbin, Lucinda Bateman, Charles W. Lapp, Wendy Springs, Richard N. Podell, Trisha Fitzpatrick, Daniel L. Peterson, C. Gunnar Gottschalk, Benjamin H. Natelson, Michelle Blate, Andreas M. Kogelnik, Catrina C. Phan, on behalf of the MCAM Study Group
Format:	Article
Language:	English
Published:	MDPI AG 2024-02-01
Series:	Journal of Clinical Medicine
Subjects:	multi-site study site difference patient characteristics heterogeneity common data elements (CDEs) myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Online Access:	https://www.mdpi.com/2077-0383/13/5/1369

Similar Items

Natural killer cytotoxicity in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): a multi-site clinical assessment of ME/CFS (MCAM) sub-study
by: Troy D. Querec, et al.
Published: (2023-04-01)

Medically Documenting Disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Cases
by: Barbara B. Comerford, et al.
Published: (2019-07-01)

Impact of Polypharmacy on Candidate Biomarker miRNomes for the Diagnosis of Fibromyalgia and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Striking Back on Treatments
by: Eloy Almenar-Pérez, et al.
Published: (2019-03-01)

Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
by: Manuel Thoma, et al.
Published: (2023-12-01)

The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS)
by: Rahel S. König, et al.
Published: (2022-01-01)

Erratum: The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS)
by: Frontiers Production Office
Published: (2022-03-01)

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Neurological Entity?
by: Iñigo Murga Gandasegui, et al.
Published: (2021-09-01)

Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with Myalgic encephalomyelitis
by: R. Stephen Walsh, et al.
Published: (2020-06-01)

Evaluation of a Webinar to Increase Health Professionals’ Knowledge about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
by: Laura Froehlich, et al.
Published: (2023-08-01)

Evidence of Clinical Pathology Abnormalities in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) from an Analytic Cross-Sectional Study
by: Luis Nacul, et al.
Published: (2019-04-01)

Predicting Myalgic Encephalomyelitis/Chronic Fatigue Syndrome from Early Symptoms of COVID-19 Infection
by: Chelsea Hua, et al.
Published: (2023-10-01)

A systematic review of enteric dysbiosis in chronic fatigue syndrome/myalgic encephalomyelitis
by: S. Du Preez, et al.
Published: (2018-12-01)

Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
by: Jose G. Montoya, et al.
Published: (2021-10-01)

An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis
by: Keng Ngee Hng, et al.
Published: (2021-08-01)

Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
by: Karl Conroy, et al.
Published: (2021-01-01)

The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
by: Jean M. Nunes, et al.
Published: (2022-07-01)

Editorial: Advances in ME/CFS Research and Clinical Care
by: Kenneth J. Friedman, et al.
Published: (2019-09-01)

Work Rehabilitation and Medical Retirement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients. A Review and Appraisal of Diagnostic Strategies
by: Mark Vink, et al.
Published: (2019-09-01)

Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?
by: Nneka Orji, et al.
Published: (2022-08-01)

Possible involvement of the autonomic nervous system in cervical muscles of patients with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS)
by: Takayoshi Matsui, et al.
Published: (2021-05-01)

Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systemic Review and Comparison of Clinical Presentation and Symptomatology
by: Timothy L. Wong, et al.
Published: (2021-04-01)

Shadow Burden of Undiagnosed Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19
by: Diana Araja, et al.
Published: (2021-07-01)

Dysregulation of extracellular vesicle protein cargo in female myalgic encephalomyelitis/chronic fatigue syndrome cases and sedentary controls in response to maximal exercise
by: Ludovic Giloteaux, et al.
Published: (2024-01-01)

Estimating Prevalence, Demographics, and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning
by: Ashley R. Valdez, et al.
Published: (2019-01-01)

Analysis of Gender Differences in HRV of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Using Mobile-Health Technology
by: Lluis Capdevila, et al.
Published: (2021-05-01)

Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to activity management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): amendment to the published protocol
by: Emma Anderson, et al.
Published: (2019-12-01)

Symptom-based clusters in people with ME/CFS: an illustration of clinical variety in a cross-sectional cohort
by: Anouk W. Vaes, et al.
Published: (2023-02-01)

Pathological Mechanisms Underlying Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
by: Daniel Missailidis, et al.
Published: (2019-07-01)

How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS
by: Luis Nacul, et al.
Published: (2020-08-01)

Subcortical and default mode network connectivity is impaired in myalgic encephalomyelitis/chronic fatigue syndrome
by: Maira Inderyas, et al.
Published: (2024-01-01)

Aberrations in the Cross-Talks Among Redox, Nuclear Factor-κB, and Wnt/β-Catenin Pathway Signaling Underpin Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
by: Michael Maes, et al.
Published: (2022-05-01)

Investigating Antibody Reactivity to the Intestinal Microbiome in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Feasibility Study
by: Katharine A. Seton, et al.
Published: (2023-10-01)

“it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME)
by: Amberly Brigden, et al.
Published: (2021-01-01)

A systematic review of metabolomic dysregulation in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis/Systemic Exertion Intolerance Disease (CFS/ME/SEID)
by: Teilah Kathryn Huth, et al.
Published: (2020-05-01)

Identification of CD8 T-cell dysfunction associated with symptoms in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series
by: Anna Gil, et al.
Published: (2024-03-01)

Saliva antibody-fingerprint of reactivated latent viruses after mild/asymptomatic COVID-19 is unique in patients with myalgic-encephalomyelitis/chronic fatigue syndrome
by: Eirini Apostolou, et al.
Published: (2022-10-01)

Preliminary ICF core set for patients with myalgic encephalomyelitis/chronic fatigue syndrome in rehabilitation medicine
by: Indre Bileviciute-Ljungar, et al.
Published: (2020-06-01)

Extremely Severe ME/CFS—A Personal Account
by: Whitney Dafoe
Published: (2021-04-01)

Meeting the Educational Needs of Young, ME/CFS Patients: Role of the Treating Physician
by: Faith R. Newton
Published: (2019-04-01)

Dysregulated Provision of Oxidisable Substrates to the Mitochondria in ME/CFS Lymphoblasts
by: Daniel Missailidis, et al.
Published: (2021-02-01)