Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life
Objective: Reports show that LGBT+ people may face several struggles during their endof- life (EOF) preparations, reporting higher rates, for example, of harassment and fear of feeling pain during these moments. We thus aimed to investigate variables related to EOF preparations among LGBT+ people an...
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| Format: | Article |
| Language: | English |
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Brazilian Society of Geriatrics and Gerontology
2022-10-01
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| Series: | Geriatrics, Gerontology and Aging |
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| Online Access: | https://ggaging.com/details/1750/en-US/palliative-care-over-the-rainbow--perspectives-of-middle-age-and-older-lgbt--adults-regarding-their-end-of-life |
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| author | Milton Roberto Furst Crenitte Leonardo Rabelo de Melo Wilson Jacob Filho Thiago Junqueira Avelino Silva |
| author_facet | Milton Roberto Furst Crenitte Leonardo Rabelo de Melo Wilson Jacob Filho Thiago Junqueira Avelino Silva |
| author_sort | Milton Roberto Furst Crenitte |
| collection | DOAJ |
| description | Objective: Reports show that LGBT+ people may face several struggles during their endof- life (EOF) preparations, reporting higher rates, for example, of harassment and fear of feeling pain during these moments. We thus aimed to investigate variables related to EOF preparations among LGBT+ people and compare them with heterosexual cisgender individuals. Methods: This is a cross-sectional study in which Brazilians aged 50 or older were invited to answer an anonymous online survey between August 2019 and January 2020. The survey was widely distributed in neighbourhood associations, nongovernmental organizations, and social media. Those who identified as homosexual, bisexual, pansexual, non-heterosexual, transgender, travesti, or non-binary were grouped as LGBT+; cisgender and heterosexual participants were grouped as non-LGBT+. Results: The questionnaire was answered by 6693 participants with a median age of 60 years. Out of all respondents, 1332 were LGBT+ (19.90%) and 5361 were non-LGBT+ (80.10%). Compared to their non-LGBT+ peers, LGBT+ people reported higher rates of loneliness (25.30% vs 16.32%, p < 0.001), fear of dying alone (15.69% vs 9.79%, p < 0.001) or in pain (35.21% vs 25.74%, p < 0.001), and less social support (19.44% vs 13.48%, p < 0.001). Conclusions: Being LGBT+ was associated with challenges and inequalities regarding EOF preparations and discussions. Sexuality and diversity should be addressed in palliative training programs to address the needs of the LGBT+ population and to provide them with a dignified death. |
| first_indexed | 2024-04-12T17:31:47Z |
| format | Article |
| id | doaj.art-2614c585d1d04a95bd1b9e0770baa41a |
| institution | Directory Open Access Journal |
| issn | 2447-2123 |
| language | English |
| last_indexed | 2024-04-12T17:31:47Z |
| publishDate | 2022-10-01 |
| publisher | Brazilian Society of Geriatrics and Gerontology |
| record_format | Article |
| series | Geriatrics, Gerontology and Aging |
| spelling | doaj.art-2614c585d1d04a95bd1b9e0770baa41a2022-12-22T03:23:07ZengBrazilian Society of Geriatrics and GerontologyGeriatrics, Gerontology and Aging2447-21232022-10-01161410.53886/gga.e0220026Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-lifeMilton Roberto Furst Crenitte0https://orcid.org/0000-0001-5240-2958Leonardo Rabelo de Melo1https://orcid.org/0000-0002-5649-8704Wilson Jacob Filho2https://orcid.org/0000-0003-2290-4492Thiago Junqueira Avelino Silva3https://orcid.org/0000-0001-9347-0519Divisão de Geriatria, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo - São Paulo (SP), Brazil.Faculdade de Medicina, Universidade Municipal de São Caetano do Sul - São Caetano do Sul (SP), Brazil.Divisão de Geriatria, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo - São Paulo (SP), Brazil.Divisão de Geriatria, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo - São Paulo (SP), Brazil.Objective: Reports show that LGBT+ people may face several struggles during their endof- life (EOF) preparations, reporting higher rates, for example, of harassment and fear of feeling pain during these moments. We thus aimed to investigate variables related to EOF preparations among LGBT+ people and compare them with heterosexual cisgender individuals. Methods: This is a cross-sectional study in which Brazilians aged 50 or older were invited to answer an anonymous online survey between August 2019 and January 2020. The survey was widely distributed in neighbourhood associations, nongovernmental organizations, and social media. Those who identified as homosexual, bisexual, pansexual, non-heterosexual, transgender, travesti, or non-binary were grouped as LGBT+; cisgender and heterosexual participants were grouped as non-LGBT+. Results: The questionnaire was answered by 6693 participants with a median age of 60 years. Out of all respondents, 1332 were LGBT+ (19.90%) and 5361 were non-LGBT+ (80.10%). Compared to their non-LGBT+ peers, LGBT+ people reported higher rates of loneliness (25.30% vs 16.32%, p < 0.001), fear of dying alone (15.69% vs 9.79%, p < 0.001) or in pain (35.21% vs 25.74%, p < 0.001), and less social support (19.44% vs 13.48%, p < 0.001). Conclusions: Being LGBT+ was associated with challenges and inequalities regarding EOF preparations and discussions. Sexuality and diversity should be addressed in palliative training programs to address the needs of the LGBT+ population and to provide them with a dignified death.https://ggaging.com/details/1750/en-US/palliative-care-over-the-rainbow--perspectives-of-middle-age-and-older-lgbt--adults-regarding-their-end-of-lifepalliative careterminal caresexual and gender minoritiesagedlong-term care |
| spellingShingle | Milton Roberto Furst Crenitte Leonardo Rabelo de Melo Wilson Jacob Filho Thiago Junqueira Avelino Silva Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life Geriatrics, Gerontology and Aging palliative care terminal care sexual and gender minorities aged long-term care |
| title | Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life |
| title_full | Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life |
| title_fullStr | Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life |
| title_full_unstemmed | Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life |
| title_short | Palliative care over the rainbow: perspectives of middleage and older LGBT+ adults regarding their end-of-life |
| title_sort | palliative care over the rainbow perspectives of middleage and older lgbt adults regarding their end of life |
| topic | palliative care terminal care sexual and gender minorities aged long-term care |
| url | https://ggaging.com/details/1750/en-US/palliative-care-over-the-rainbow--perspectives-of-middle-age-and-older-lgbt--adults-regarding-their-end-of-life |
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