Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study
BackgroundOsteoarthritis (OA) is a major problem globally. First-line management comprises education and self-management strategies. Online support groups may be a low-cost method of facilitating self-management. ObjectiveThe aim of this randomized controlled pilo...
| Main Authors: | , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2022-01-01
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| Series: | JMIR Formative Research |
| Online Access: | https://formative.jmir.org/2022/1/e32627 |
| _version_ | 1827858727603011584 |
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| author | Thorlene Egerton Belinda J Lawford Penny K Campbell Melanie L Plinsinga Libby Spiers David A Mackenzie Bridget Graham Kathryn Mills Jillian Eyles Gabrielle Knox Ben Metcalf Liam R Maclachlan Manuela Besomi Chris Dickson Charles Abraham Bill Vicenzino Paul W Hodges David J Hunter Kim L Bennell |
| author_facet | Thorlene Egerton Belinda J Lawford Penny K Campbell Melanie L Plinsinga Libby Spiers David A Mackenzie Bridget Graham Kathryn Mills Jillian Eyles Gabrielle Knox Ben Metcalf Liam R Maclachlan Manuela Besomi Chris Dickson Charles Abraham Bill Vicenzino Paul W Hodges David J Hunter Kim L Bennell |
| author_sort | Thorlene Egerton |
| collection | DOAJ |
| description |
BackgroundOsteoarthritis (OA) is a major problem globally. First-line management comprises education and self-management strategies. Online support groups may be a low-cost method of facilitating self-management.
ObjectiveThe aim of this randomized controlled pilot study is to evaluate the feasibility of the study design and implementation of an evidence-informed, expert-moderated, peer-to-peer online support group (My Knee Community) for people with knee OA. The impacts on psychological determinants of self-management, selected self-management behaviors, and health outcomes were secondary investigations.
MethodsThis mixed methods study evaluated study feasibility (participant recruitment, retention, and costs), experimental intervention feasibility (acceptability and fidelity to the proposed design, including perceived benefit, satisfaction, and member engagement), psychological determinants (eg, self-efficacy and social support), behavioral measures, health outcomes, and harms. Of a total of 186, 63 (33.9%) participants (41/63, 65% experimental and 22/63, 35% control) with self-reported knee OA were recruited from 186 volunteers. Experimental group participants were provided membership to My Knee Community, which already had existing nonstudy members, and were recommended a web-based education resource (My Joint Pain). The control group received the My Joint Pain website recommendation only. Participants were not blinded to their group allocation or the study interventions. Participant-reported data were collected remotely using web-based questionnaires. A total of 10 experimental group participants also participated in semistructured interviews. The transcribed interview data and all forum posts by the study participants were thematically analyzed.
ResultsStudy feasibility was supported by acceptable levels of retention; however, there were low levels of engagement with the support group by participants: 15% (6/41) of participants did not log in at all; the median number of times visited was 4 times per participant; only 29% (12/41) of participants posted, and there were relatively low levels of activity overall on the forum. This affected the results for satisfaction (overall mean 5.9/10, SD 2.7) and perceived benefit (17/31, 55%: yes). There were no differences among groups for quantitative outcomes. The themes discussed in the interviews were connections and support, information and advice, and barriers and facilitators. Qualitative data suggest that there is potential for people to derive benefit from connecting with others with knee OA by receiving support and assisting with unmet informational needs.
ConclusionsAlthough a large-scale study is feasible, the intervention implementation was considered unsatisfactory because of low levels of activity and engagement by members. We recommend that expectations about the support group need to be made clear from the outset. Additionally, the platform design needs to be more engaging and rewarding, and membership should only be offered to people willing to share their personal stories and who are interested in learning from the experiences of others.
Trial RegistrationAustralian New Zealand Clinical Trials Registry ACTRN12619001230145; http://anzctr.org.au/Trial/Registration/TrialReview.aspx?id=377958 |
| first_indexed | 2024-03-12T12:58:13Z |
| format | Article |
| id | doaj.art-26fe1dd8040a4a1eb4aad7dab306e3d5 |
| institution | Directory Open Access Journal |
| issn | 2561-326X |
| language | English |
| last_indexed | 2024-03-12T12:58:13Z |
| publishDate | 2022-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Formative Research |
| spelling | doaj.art-26fe1dd8040a4a1eb4aad7dab306e3d52023-08-28T20:22:21ZengJMIR PublicationsJMIR Formative Research2561-326X2022-01-0161e3262710.2196/32627Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility StudyThorlene Egertonhttps://orcid.org/0000-0003-4751-7624Belinda J Lawfordhttps://orcid.org/0000-0002-0392-6058Penny K Campbellhttps://orcid.org/0000-0002-9786-5734Melanie L Plinsingahttps://orcid.org/0000-0001-8902-7434Libby Spiershttps://orcid.org/0000-0003-4762-7137David A Mackenziehttps://orcid.org/0000-0003-3604-9378Bridget Grahamhttps://orcid.org/0000-0002-6920-9238Kathryn Millshttps://orcid.org/0000-0002-0360-733XJillian Eyleshttps://orcid.org/0000-0002-1625-8490Gabrielle Knoxhttps://orcid.org/0000-0002-0581-4906Ben Metcalfhttps://orcid.org/0000-0002-4945-3217Liam R Maclachlanhttps://orcid.org/0000-0002-2704-9897Manuela Besomihttps://orcid.org/0000-0001-8880-4561Chris Dicksonhttps://orcid.org/0000-0002-4496-9636Charles Abrahamhttps://orcid.org/0000-0002-0901-1975Bill Vicenzinohttps://orcid.org/0000-0003-0253-5933Paul W Hodgeshttps://orcid.org/0000-0002-1206-9107David J Hunterhttps://orcid.org/0000-0003-3197-752XKim L Bennellhttps://orcid.org/0000-0003-4982-5639 BackgroundOsteoarthritis (OA) is a major problem globally. First-line management comprises education and self-management strategies. Online support groups may be a low-cost method of facilitating self-management. ObjectiveThe aim of this randomized controlled pilot study is to evaluate the feasibility of the study design and implementation of an evidence-informed, expert-moderated, peer-to-peer online support group (My Knee Community) for people with knee OA. The impacts on psychological determinants of self-management, selected self-management behaviors, and health outcomes were secondary investigations. MethodsThis mixed methods study evaluated study feasibility (participant recruitment, retention, and costs), experimental intervention feasibility (acceptability and fidelity to the proposed design, including perceived benefit, satisfaction, and member engagement), psychological determinants (eg, self-efficacy and social support), behavioral measures, health outcomes, and harms. Of a total of 186, 63 (33.9%) participants (41/63, 65% experimental and 22/63, 35% control) with self-reported knee OA were recruited from 186 volunteers. Experimental group participants were provided membership to My Knee Community, which already had existing nonstudy members, and were recommended a web-based education resource (My Joint Pain). The control group received the My Joint Pain website recommendation only. Participants were not blinded to their group allocation or the study interventions. Participant-reported data were collected remotely using web-based questionnaires. A total of 10 experimental group participants also participated in semistructured interviews. The transcribed interview data and all forum posts by the study participants were thematically analyzed. ResultsStudy feasibility was supported by acceptable levels of retention; however, there were low levels of engagement with the support group by participants: 15% (6/41) of participants did not log in at all; the median number of times visited was 4 times per participant; only 29% (12/41) of participants posted, and there were relatively low levels of activity overall on the forum. This affected the results for satisfaction (overall mean 5.9/10, SD 2.7) and perceived benefit (17/31, 55%: yes). There were no differences among groups for quantitative outcomes. The themes discussed in the interviews were connections and support, information and advice, and barriers and facilitators. Qualitative data suggest that there is potential for people to derive benefit from connecting with others with knee OA by receiving support and assisting with unmet informational needs. ConclusionsAlthough a large-scale study is feasible, the intervention implementation was considered unsatisfactory because of low levels of activity and engagement by members. We recommend that expectations about the support group need to be made clear from the outset. Additionally, the platform design needs to be more engaging and rewarding, and membership should only be offered to people willing to share their personal stories and who are interested in learning from the experiences of others. Trial RegistrationAustralian New Zealand Clinical Trials Registry ACTRN12619001230145; http://anzctr.org.au/Trial/Registration/TrialReview.aspx?id=377958https://formative.jmir.org/2022/1/e32627 |
| spellingShingle | Thorlene Egerton Belinda J Lawford Penny K Campbell Melanie L Plinsinga Libby Spiers David A Mackenzie Bridget Graham Kathryn Mills Jillian Eyles Gabrielle Knox Ben Metcalf Liam R Maclachlan Manuela Besomi Chris Dickson Charles Abraham Bill Vicenzino Paul W Hodges David J Hunter Kim L Bennell Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study JMIR Formative Research |
| title | Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study |
| title_full | Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study |
| title_fullStr | Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study |
| title_full_unstemmed | Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study |
| title_short | Expert-Moderated Peer-to-Peer Online Support Group for People With Knee Osteoarthritis: Mixed Methods Randomized Controlled Pilot and Feasibility Study |
| title_sort | expert moderated peer to peer online support group for people with knee osteoarthritis mixed methods randomized controlled pilot and feasibility study |
| url | https://formative.jmir.org/2022/1/e32627 |
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