The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19

In 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this r...

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Main Author: Hailee M. Yoshizaki-Gibbons
Format: Article
Language:English
Published: Cultural Studies Association 2023-06-01
Series:Lateral
Subjects:
Online Access:https://csalateral.org/section/crip-pandemic-life/the-dedication-leaving-evidence-life-death-care-confinement-covid-yoshizaki-gibbons/
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author Hailee M. Yoshizaki-Gibbons
author_facet Hailee M. Yoshizaki-Gibbons
author_sort Hailee M. Yoshizaki-Gibbons
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description In 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this reflective and part personal, part scholarly essay, I leave evidence of and for Sylvia and the nearly 200,000 old and disabled people and care workers who contracted COVID-19 and died within the confines of neoliberal, profit-driven long-term care institutions. Disability justice activist Mia Mingus writes, “We must leave evidence. Evidence that we were here, that we existed, that we survived and loved and ached.” Leaving evidence is a political act, a form of resistance in an ableist word. And yet leaving evidence is particularly challenging in the context of dementia, care, confinement, and death—making it even more important, more urgent. Building on Ellen Samuels’ assertion, “Crip time is grief time,” I consider how mourning Sylvia and countless other nursing home deaths, interwoven with my own experiences of distress, yet also solidified my need to survive, might leave evidence and keep working toward an abolitionist future—one in which old and disabled women like Sylvia, like my future self, might thrive.
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spelling doaj.art-27502cb79c5e4c609b470c11a0d72c2e2023-06-16T01:05:21ZengCultural Studies AssociationLateral2469-40532023-06-0112110.25158/L12.1.10The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19Hailee M. Yoshizaki-Gibbons0https://orcid.org/0000-0001-8856-9354Hiram CollegeIn 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this reflective and part personal, part scholarly essay, I leave evidence of and for Sylvia and the nearly 200,000 old and disabled people and care workers who contracted COVID-19 and died within the confines of neoliberal, profit-driven long-term care institutions. Disability justice activist Mia Mingus writes, “We must leave evidence. Evidence that we were here, that we existed, that we survived and loved and ached.” Leaving evidence is a political act, a form of resistance in an ableist word. And yet leaving evidence is particularly challenging in the context of dementia, care, confinement, and death—making it even more important, more urgent. Building on Ellen Samuels’ assertion, “Crip time is grief time,” I consider how mourning Sylvia and countless other nursing home deaths, interwoven with my own experiences of distress, yet also solidified my need to survive, might leave evidence and keep working toward an abolitionist future—one in which old and disabled women like Sylvia, like my future self, might thrive.https://csalateral.org/section/crip-pandemic-life/the-dedication-leaving-evidence-life-death-care-confinement-covid-yoshizaki-gibbons/disabilityagingdementiatimecarecovid-19
spellingShingle Hailee M. Yoshizaki-Gibbons
The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
Lateral
disability
aging
dementia
time
care
covid-19
title The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
title_full The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
title_fullStr The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
title_full_unstemmed The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
title_short The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
title_sort dedication leaving evidence of life death care and confinement during covid 19
topic disability
aging
dementia
time
care
covid-19
url https://csalateral.org/section/crip-pandemic-life/the-dedication-leaving-evidence-life-death-care-confinement-covid-yoshizaki-gibbons/
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