Advance care planning in adult congenital heart disease: Unique approaches for a unique population

Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” e...

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Main Authors: Adam J. Small, Daniel Karlin, Chandra Jain, Jill M. Steiner, Leigh C. Reardon
Format: Article
Language:English
Published: Elsevier 2021-10-01
Series:International Journal of Cardiology Congenital Heart Disease
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2666668521001270
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author Adam J. Small
Daniel Karlin
Chandra Jain
Jill M. Steiner
Leigh C. Reardon
author_facet Adam J. Small
Daniel Karlin
Chandra Jain
Jill M. Steiner
Leigh C. Reardon
author_sort Adam J. Small
collection DOAJ
description Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” elderly population about whom much of the palliative care literature is written. Herein we report the results of a multidisciplinary conference focusing on the unique nature of this population and their needs for advance care planning. First, we describe the characteristics of adults with congenital heart disease that set them apart, including childhood illness and early interactions with the healthcare system. Then we give tailored recommendations to providers for how to effectively elicit their patients’ goals and values, in order to counsel them about the future.
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spelling doaj.art-28c0678149ab47a8b94df7474dd2add72022-12-21T21:25:30ZengElsevierInternational Journal of Cardiology Congenital Heart Disease2666-66852021-10-015100203Advance care planning in adult congenital heart disease: Unique approaches for a unique populationAdam J. Small0Daniel Karlin1Chandra Jain2Jill M. Steiner3Leigh C. Reardon4Ahmanson/UCLA Adult Congenital Heart Disease Center, David Geffen School of Medicine at UCLA, 100 UCLA Medical Plaza, Suite 630 East, Los Angeles, CA, 90095, USA; Corresponding author. 530 First Avenue, HCC 4D, New York, NY, 10016, USA.Division of Palliative Care, Department of Medicine, David Geffen School of Medicine at UCLA, USADivision of Palliative Care, Department of Medicine, David Geffen School of Medicine at UCLA, USADivision of Cardiology, University of Washington, USAAhmanson/UCLA Adult Congenital Heart Disease Center, David Geffen School of Medicine at UCLA, David Geffen School of Medicine at UCLA, USARecommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” elderly population about whom much of the palliative care literature is written. Herein we report the results of a multidisciplinary conference focusing on the unique nature of this population and their needs for advance care planning. First, we describe the characteristics of adults with congenital heart disease that set them apart, including childhood illness and early interactions with the healthcare system. Then we give tailored recommendations to providers for how to effectively elicit their patients’ goals and values, in order to counsel them about the future.http://www.sciencedirect.com/science/article/pii/S2666668521001270Advance care planningPalliative careAdult congenital heart diseasePatient centered care
spellingShingle Adam J. Small
Daniel Karlin
Chandra Jain
Jill M. Steiner
Leigh C. Reardon
Advance care planning in adult congenital heart disease: Unique approaches for a unique population
International Journal of Cardiology Congenital Heart Disease
Advance care planning
Palliative care
Adult congenital heart disease
Patient centered care
title Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_full Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_fullStr Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_full_unstemmed Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_short Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_sort advance care planning in adult congenital heart disease unique approaches for a unique population
topic Advance care planning
Palliative care
Adult congenital heart disease
Patient centered care
url http://www.sciencedirect.com/science/article/pii/S2666668521001270
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