Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review
Background: Taking the decision to institutionalize the person with dementia is a situation that triggers stress in caregivers, with reports of feelings of loss of control, loneliness, isolation, blame and shame for not being able to maintain the role of caregivers. It is essential to know what are...
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| Format: | Article |
| Language: | English |
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Asociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y Discapacidad
2020-06-01
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| Series: | INFAD |
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| Online Access: | http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/1758 |
| _version_ | 1797967839572787200 |
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| author | Júlio Belo Fernandes Diana Alves Vareta Florencio Vicente Castro |
| author_facet | Júlio Belo Fernandes Diana Alves Vareta Florencio Vicente Castro |
| author_sort | Júlio Belo Fernandes |
| collection | DOAJ |
| description | Background: Taking the decision to institutionalize the person with dementia is a situation that triggers stress in caregivers, with reports of feelings of loss of control, loneliness, isolation, blame and shame for not being able to maintain the role of caregivers. It is essential to know what are the needs felt by the caregivers of the person with dementia in the context of long-term institutionalization, so that a person-centered intervention can be carried out, encompassing the family members as part of the care. Objective: To identify the needs of caregivers of people with dementia in the context of long-term institutionalization. Methodology: Scoping review developed under the guidelines of the Joanna Briggs Institute, using the databases MEDLINE, CINAHL and ScienceDirect, with the time frame from 2009 to 2018. Results: Six articles were selected that involved caregivers of people with dementia in the context of longterm institutionalization. It was found that there are different needs in the pre and post-institutionalization phases.
Pre-institutionalization relates to the decision-making process of institutionalizing the person, which includes the needs to know the institution in advance and the existence of a network that supports the decision. Post-institutionalization refers to the needs that arise from the moment the person is admitted to the institution of long-term care, namely the reception, support during visits, the establishment of a partnership with health professionals, monitoring quality of care and financial issues. Conclusion: The institutionalization of the person with dementia triggers in the caregivers new focuses of needs that should be the target of intervention by health professionals, in order to facilitate the underlying transition process. |
| first_indexed | 2024-04-11T02:37:32Z |
| format | Article |
| id | doaj.art-28d732176b9a42a2935dde2cbfd0a773 |
| institution | Directory Open Access Journal |
| issn | 0214-9877 2603-5987 |
| language | English |
| last_indexed | 2024-04-11T02:37:32Z |
| publishDate | 2020-06-01 |
| publisher | Asociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y Discapacidad |
| record_format | Article |
| series | INFAD |
| spelling | doaj.art-28d732176b9a42a2935dde2cbfd0a7732023-01-02T19:41:27ZengAsociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y DiscapacidadINFAD0214-98772603-59872020-06-0111273610.17060/ijodaep.2020.n1.v1.17581424Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping reviewJúlio Belo Fernandes0Diana Alves Vareta1Florencio Vicente Castro2Escola Superior de Saúde Egas Moniz Centro de Investigação Interdisciplinar Egas MonizInstituição: Instituto Politécnico de Setúbal Escola Superior de SaúdeProfesor Doctor Catedrático en la Facultad de Educación Universidad de ExtremaduraBackground: Taking the decision to institutionalize the person with dementia is a situation that triggers stress in caregivers, with reports of feelings of loss of control, loneliness, isolation, blame and shame for not being able to maintain the role of caregivers. It is essential to know what are the needs felt by the caregivers of the person with dementia in the context of long-term institutionalization, so that a person-centered intervention can be carried out, encompassing the family members as part of the care. Objective: To identify the needs of caregivers of people with dementia in the context of long-term institutionalization. Methodology: Scoping review developed under the guidelines of the Joanna Briggs Institute, using the databases MEDLINE, CINAHL and ScienceDirect, with the time frame from 2009 to 2018. Results: Six articles were selected that involved caregivers of people with dementia in the context of longterm institutionalization. It was found that there are different needs in the pre and post-institutionalization phases. Pre-institutionalization relates to the decision-making process of institutionalizing the person, which includes the needs to know the institution in advance and the existence of a network that supports the decision. Post-institutionalization refers to the needs that arise from the moment the person is admitted to the institution of long-term care, namely the reception, support during visits, the establishment of a partnership with health professionals, monitoring quality of care and financial issues. Conclusion: The institutionalization of the person with dementia triggers in the caregivers new focuses of needs that should be the target of intervention by health professionals, in order to facilitate the underlying transition process.http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/1758cuidadorfamíliadeterminação de necessidades de cuidados de saúdedemênciainstitucionalizaçãocuidados a longo prazo |
| spellingShingle | Júlio Belo Fernandes Diana Alves Vareta Florencio Vicente Castro Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review INFAD cuidador família determinação de necessidades de cuidados de saúde demência institucionalização cuidados a longo prazo |
| title | Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review |
| title_full | Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review |
| title_fullStr | Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review |
| title_full_unstemmed | Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review |
| title_short | Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review |
| title_sort | needs of caregivers of people with dementia in the context of long term institutionalization scoping review |
| topic | cuidador família determinação de necessidades de cuidados de saúde demência institucionalização cuidados a longo prazo |
| url | http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/1758 |
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