The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study
Abstract Background Cardio-metabolic diseases are a major cause of death worldwide, including in Indonesia, where diabetes is one of the most critical diseases for the health system to manage. Methods We describe the characteristics, levels of control, health behavior, and diabetes-related complicat...
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| Format: | Article |
| Language: | English |
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BMC
2023-03-01
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| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12913-023-09288-9 |
| _version_ | 1797865178007601152 |
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| author | Hizir Sofyan Farah Diba Suryane S. Susanti Marthoenis Marthoenis Ichsan Ichsan Novi Reandy Sasmita Till Seuring Sebastian Vollmer |
| author_facet | Hizir Sofyan Farah Diba Suryane S. Susanti Marthoenis Marthoenis Ichsan Ichsan Novi Reandy Sasmita Till Seuring Sebastian Vollmer |
| author_sort | Hizir Sofyan |
| collection | DOAJ |
| description | Abstract Background Cardio-metabolic diseases are a major cause of death worldwide, including in Indonesia, where diabetes is one of the most critical diseases for the health system to manage. Methods We describe the characteristics, levels of control, health behavior, and diabetes-related complications of diabetes patients in Aceh, Indonesia. We use baseline data and blood testing from a randomized-controlled trial. We conducted semi-structured interviews with eight health providers from Posbindu and Prolanis programs that target diabetes and other non-communicable diseases (NCDs). We also conducted three focus group discussions with 24 diabetes patients about their experiences of living with diabetes and the existing support programs. Results The blood tests revealed average HbA1c levels indicative of poor glycemic control in 75.8 percent of patients and only 20.3 percent were free from any symptoms. Our qualitative findings suggest that patients are diagnosed after diabetes-related symptoms manifest, and that they find it hard to comply with treatment recommendations and lifestyle advice. The existing programs related to NCDs are not tailored to their needs. Conclusion We identify the need to improve diabetes screening to enable earlier treatment and achieve better control of the disease. Among diagnosed patients, there are widespread beliefs about diabetes medication and alternative forms of treatment that need to be addressed in a respectful dialogue between healthcare professionals and patients. Current diabetes screening, treatment and management programs should be revised to meet the needs of the affected population and to better respond to the increasing burden of this disease. |
| first_indexed | 2024-04-09T23:03:49Z |
| format | Article |
| id | doaj.art-28e9a11137004bd78e6b476b88df2897 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-04-09T23:03:49Z |
| publishDate | 2023-03-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-28e9a11137004bd78e6b476b88df28972023-03-22T10:47:10ZengBMCBMC Health Services Research1472-69632023-03-012311710.1186/s12913-023-09288-9The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods studyHizir Sofyan0Farah Diba1Suryane S. Susanti2Marthoenis Marthoenis3Ichsan Ichsan4Novi Reandy Sasmita5Till Seuring6Sebastian Vollmer7Universitas Syiah KualaUniversitas Syiah KualaUniversitas IndonesiaUniversitas Syiah KualaUniversitas Syiah KualaUniversitas Syiah KualaLuxembourg Institute of Socio-Economic Research (LISER)University of GoettingenAbstract Background Cardio-metabolic diseases are a major cause of death worldwide, including in Indonesia, where diabetes is one of the most critical diseases for the health system to manage. Methods We describe the characteristics, levels of control, health behavior, and diabetes-related complications of diabetes patients in Aceh, Indonesia. We use baseline data and blood testing from a randomized-controlled trial. We conducted semi-structured interviews with eight health providers from Posbindu and Prolanis programs that target diabetes and other non-communicable diseases (NCDs). We also conducted three focus group discussions with 24 diabetes patients about their experiences of living with diabetes and the existing support programs. Results The blood tests revealed average HbA1c levels indicative of poor glycemic control in 75.8 percent of patients and only 20.3 percent were free from any symptoms. Our qualitative findings suggest that patients are diagnosed after diabetes-related symptoms manifest, and that they find it hard to comply with treatment recommendations and lifestyle advice. The existing programs related to NCDs are not tailored to their needs. Conclusion We identify the need to improve diabetes screening to enable earlier treatment and achieve better control of the disease. Among diagnosed patients, there are widespread beliefs about diabetes medication and alternative forms of treatment that need to be addressed in a respectful dialogue between healthcare professionals and patients. Current diabetes screening, treatment and management programs should be revised to meet the needs of the affected population and to better respond to the increasing burden of this disease.https://doi.org/10.1186/s12913-023-09288-9DiabetesHealth systemsIndonesia |
| spellingShingle | Hizir Sofyan Farah Diba Suryane S. Susanti Marthoenis Marthoenis Ichsan Ichsan Novi Reandy Sasmita Till Seuring Sebastian Vollmer The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study BMC Health Services Research Diabetes Health systems Indonesia |
| title | The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study |
| title_full | The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study |
| title_fullStr | The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study |
| title_full_unstemmed | The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study |
| title_short | The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study |
| title_sort | state of diabetes care and obstacles to better care in aceh indonesia a mixed methods study |
| topic | Diabetes Health systems Indonesia |
| url | https://doi.org/10.1186/s12913-023-09288-9 |
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