Siblings of children with autism spectrum disorder
Background: Autism Spectrum Disorders (ASD) affect the child’s interaction, communication, and behavior, profoundly changing the family environment. Objectives: To understand what it means to be the sibling of a child with ASD. Participants and Methods: Exploratory descriptive study, using a qualit...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Asociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y Discapacidad
2016-07-01
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| Series: | INFAD |
| Subjects: | |
| Online Access: | http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/274 |
| _version_ | 1797969876204126208 |
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| author | Dulce Maria Pereira Garcia Galvão Ana Patricia Dos Santos Leonardo |
| author_facet | Dulce Maria Pereira Garcia Galvão Ana Patricia Dos Santos Leonardo |
| author_sort | Dulce Maria Pereira Garcia Galvão |
| collection | DOAJ |
| description | Background: Autism Spectrum Disorders (ASD) affect the child’s interaction, communication, and behavior, profoundly changing the family environment.
Objectives: To understand what it means to be the sibling of a child with ASD. Participants and Methods: Exploratory descriptive study, using a qualitative methodology, with 11 siblings of children with ASD with semi-structured interviews, conducted in October and November/2013, and data analysis proposed by Bardin.
Results: Four themes emerged: the child and the sibling’s diagnosis, the child and the sibling with ASD, the child and the parents, and the child and the others. Conclusions: Being the sibling of a child with ASD is a unique experience. Some negative aspects are related to the attention given by the parents, with this being one of the most significant needs felt by siblings of children with ASD. Nurses should intervene with parents, alerting them to the fact that the attention given to their children is one of the greatest needs expressed by the children. |
| first_indexed | 2024-04-11T03:08:04Z |
| format | Article |
| id | doaj.art-28ef60d95570442194a61aa45186e9c6 |
| institution | Directory Open Access Journal |
| issn | 0214-9877 2603-5987 |
| language | English |
| last_indexed | 2024-04-11T03:08:04Z |
| publishDate | 2016-07-01 |
| publisher | Asociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y Discapacidad |
| record_format | Article |
| series | INFAD |
| spelling | doaj.art-28ef60d95570442194a61aa45186e9c62023-01-02T12:18:48ZengAsociación Nacional de Psicología Evolutiva y Educativa de la Infancia Adolescencia Mayores y DiscapacidadINFAD0214-98772603-59872016-07-011120321210.17060/ijodaep.2016.n1.v1.274155Siblings of children with autism spectrum disorderDulce Maria Pereira Garcia Galvão0Ana Patricia Dos Santos Leonardo1Escola Superior de Efermagem (Coimbra)Enfermagem de Saúde Infantil e PediatriaBackground: Autism Spectrum Disorders (ASD) affect the child’s interaction, communication, and behavior, profoundly changing the family environment. Objectives: To understand what it means to be the sibling of a child with ASD. Participants and Methods: Exploratory descriptive study, using a qualitative methodology, with 11 siblings of children with ASD with semi-structured interviews, conducted in October and November/2013, and data analysis proposed by Bardin. Results: Four themes emerged: the child and the sibling’s diagnosis, the child and the sibling with ASD, the child and the parents, and the child and the others. Conclusions: Being the sibling of a child with ASD is a unique experience. Some negative aspects are related to the attention given by the parents, with this being one of the most significant needs felt by siblings of children with ASD. Nurses should intervene with parents, alerting them to the fact that the attention given to their children is one of the greatest needs expressed by the children.http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/274criançairmãosperturbação do espetro do autismoexperiências fraternas |
| spellingShingle | Dulce Maria Pereira Garcia Galvão Ana Patricia Dos Santos Leonardo Siblings of children with autism spectrum disorder INFAD criança irmãos perturbação do espetro do autismo experiências fraternas |
| title | Siblings of children with autism spectrum disorder |
| title_full | Siblings of children with autism spectrum disorder |
| title_fullStr | Siblings of children with autism spectrum disorder |
| title_full_unstemmed | Siblings of children with autism spectrum disorder |
| title_short | Siblings of children with autism spectrum disorder |
| title_sort | siblings of children with autism spectrum disorder |
| topic | criança irmãos perturbação do espetro do autismo experiências fraternas |
| url | http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/274 |
| work_keys_str_mv | AT dulcemariapereiragarciagalvao siblingsofchildrenwithautismspectrumdisorder AT anapatriciadossantosleonardo siblingsofchildrenwithautismspectrumdisorder |