Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview
Access to specialized care is essential for people with Parkinson´s disease (PD). Given the growing number of people with PD and the lack of general practitioners and neurologists, particularly in rural areas in Germany, specialized PD staff (PDS), such as PD nurse specialists and Parkinson Assistan...
| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2020-08-01
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| Series: | Journal of Clinical Medicine |
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| Online Access: | https://www.mdpi.com/2077-0383/9/8/2581 |
| _version_ | 1797559312642473984 |
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| author | Tino Prell Frank Siebecker Michael Lorrain Lars Tönges Tobias Warnecke Jochen Klucken Ingmar Wellach Carsten Buhmann Martin Wolz Stefan Lorenzl Heinz Herbst Carsten Eggers Tobias Mai |
| author_facet | Tino Prell Frank Siebecker Michael Lorrain Lars Tönges Tobias Warnecke Jochen Klucken Ingmar Wellach Carsten Buhmann Martin Wolz Stefan Lorenzl Heinz Herbst Carsten Eggers Tobias Mai |
| author_sort | Tino Prell |
| collection | DOAJ |
| description | Access to specialized care is essential for people with Parkinson´s disease (PD). Given the growing number of people with PD and the lack of general practitioners and neurologists, particularly in rural areas in Germany, specialized PD staff (PDS), such as PD nurse specialists and Parkinson Assistants (PASS), will play an increasingly important role in the care of people with PD over the coming years. PDS have several tasks, such as having a role as an educator or adviser for other health professionals or an advocate for people with PD to represent and justify their needs. PD nurse specialists have been established for a long time in the Netherlands, England, the USA, and Scandinavia. In contrast, in Germany, distinct PDS models and projects have been established. However, these projects and models show substantial heterogeneity in terms of access requirements, education, theoretical and practical skills, principal workplace (inpatient vs. outpatient), and reimbursement. This review provides an overview of the existing forms and regional models for PDS in Germany. PDS reimbursement concepts must be established that will foster an implementation throughout Germany. Additionally, development of professional roles in nursing and more specialized care in Germany is needed. |
| first_indexed | 2024-03-10T17:43:32Z |
| format | Article |
| id | doaj.art-29ddf91aad7e449b89873103a7dea641 |
| institution | Directory Open Access Journal |
| issn | 2077-0383 |
| language | English |
| last_indexed | 2024-03-10T17:43:32Z |
| publishDate | 2020-08-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Journal of Clinical Medicine |
| spelling | doaj.art-29ddf91aad7e449b89873103a7dea6412023-11-20T09:37:14ZengMDPI AGJournal of Clinical Medicine2077-03832020-08-0198258110.3390/jcm9082581Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An OverviewTino Prell0Frank Siebecker1Michael Lorrain2Lars Tönges3Tobias Warnecke4Jochen Klucken5Ingmar Wellach6Carsten Buhmann7Martin Wolz8Stefan Lorenzl9Heinz Herbst10Carsten Eggers11Tobias Mai12Department of Neurology, Jena University Hospital, 07740 Jena, GermanyPraxis Neurologie, 48291 Telgte, GermanyNeuroärzte Gerresheim-Pempelfort, 40625 Düsseldorf, GermanyDepartment of Neurology, St. Josef-Hospital, Ruhr-University Bochum, 44801 Bochum, GermanyDepartment of Neurology, University of Muenster, 48149 Münster, GermanyDepartment of Molecular Neurology, Universitätsklinikum Erlangen, Schwabachanlage 6, 91054 Erlangen Neurology, Ev. Amalie Sieveking Hospital, 22359 Hamburg, GermanyDepartment of Neurology, Ev. Amalie Sieveking Hospital, 22359 Hamburg, GermanyDepartment of Neurology, University Medical Center Hamburg-Eppendorf, 20246 Hamburg, GermanyDepartment of Neurology, Elblandklinikum Meißen, 01662 Meißen, GermanyProfessorship for Palliative Care, Paracelsus Medical University, 5020 Salzburg, AustriaNeurozentrum Sophienstrasse, 70178 Stuttgart, GermanyDepartment of Neurology, University Hospital Marburg, 35037 Marburg, GermanyDepartment of Nursing, University Hospital Frankfurt, Goethe University, 60590 Frankfurt, GermanyAccess to specialized care is essential for people with Parkinson´s disease (PD). Given the growing number of people with PD and the lack of general practitioners and neurologists, particularly in rural areas in Germany, specialized PD staff (PDS), such as PD nurse specialists and Parkinson Assistants (PASS), will play an increasingly important role in the care of people with PD over the coming years. PDS have several tasks, such as having a role as an educator or adviser for other health professionals or an advocate for people with PD to represent and justify their needs. PD nurse specialists have been established for a long time in the Netherlands, England, the USA, and Scandinavia. In contrast, in Germany, distinct PDS models and projects have been established. However, these projects and models show substantial heterogeneity in terms of access requirements, education, theoretical and practical skills, principal workplace (inpatient vs. outpatient), and reimbursement. This review provides an overview of the existing forms and regional models for PDS in Germany. PDS reimbursement concepts must be established that will foster an implementation throughout Germany. Additionally, development of professional roles in nursing and more specialized care in Germany is needed.https://www.mdpi.com/2077-0383/9/8/2581networksmultimodal complex treatmentday clinicadvanced care planning |
| spellingShingle | Tino Prell Frank Siebecker Michael Lorrain Lars Tönges Tobias Warnecke Jochen Klucken Ingmar Wellach Carsten Buhmann Martin Wolz Stefan Lorenzl Heinz Herbst Carsten Eggers Tobias Mai Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview Journal of Clinical Medicine networks multimodal complex treatment day clinic advanced care planning |
| title | Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview |
| title_full | Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview |
| title_fullStr | Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview |
| title_full_unstemmed | Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview |
| title_short | Specialized Staff for the Care of People with Parkinson’s Disease in Germany: An Overview |
| title_sort | specialized staff for the care of people with parkinson s disease in germany an overview |
| topic | networks multimodal complex treatment day clinic advanced care planning |
| url | https://www.mdpi.com/2077-0383/9/8/2581 |
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