Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family
In the transition to a less protectionist research ethics paradigm—in which vulnerable groups are no longer excluded from participating in research—academic researchers need to think differently about vulnerability. By means of a collective autoethnographic investigation of professional and co-resea...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2024-02-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069241236181 |
| _version_ | 1797251756291260416 |
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| author | Rosemarie van den Breemer Grete Arnesdatter Steigen Camilla Tostrup Lyngar Inger Marie Lid |
| author_facet | Rosemarie van den Breemer Grete Arnesdatter Steigen Camilla Tostrup Lyngar Inger Marie Lid |
| author_sort | Rosemarie van den Breemer |
| collection | DOAJ |
| description | In the transition to a less protectionist research ethics paradigm—in which vulnerable groups are no longer excluded from participating in research—academic researchers need to think differently about vulnerability. By means of a collective autoethnographic investigation of professional and co-researcher’s experiences in a community-based participatory research (CBPR) project, this article explores how vulnerability is experienced and perceived in the work process and how to respond to vulnerability. It finds that vulnerability manifests in two main ways—that of feeling “emotional hurt” and “epistemic self-doubt”—and that it comes from two main layers: the lived life and from working within CBPR. The main argument in the article is that vulnerability is inevitable in qualitative research like CBPR, when involving persons in vulnerable life situations. We propose four key recommendations for future research: (a) accept vulnerability as an inevitable part of CBPR, (b) balance protection with participant autonomy in situ and together as a team, (c) use a processual approach because ethical risks in the research context might alter over time, and (d) accept that placing co-researchers at the center of interpretative authority can increase professional researcher’s vulnerability. The article expands existing understandings of ethical issues and risk in inclusive research through a combined and innovative focus on both professional and co-researcher’s lived experiences. |
| first_indexed | 2024-04-24T21:07:20Z |
| format | Article |
| id | doaj.art-2b0c499cb2d548189b7d4bf9163a8857 |
| institution | Directory Open Access Journal |
| issn | 1609-4069 |
| language | English |
| last_indexed | 2024-04-24T21:07:20Z |
| publishDate | 2024-02-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | International Journal of Qualitative Methods |
| spelling | doaj.art-2b0c499cb2d548189b7d4bf9163a88572024-03-21T19:03:33ZengSAGE PublishingInternational Journal of Qualitative Methods1609-40692024-02-012310.1177/16094069241236181Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability FamilyRosemarie van den BreemerGrete Arnesdatter SteigenCamilla Tostrup LyngarInger Marie LidIn the transition to a less protectionist research ethics paradigm—in which vulnerable groups are no longer excluded from participating in research—academic researchers need to think differently about vulnerability. By means of a collective autoethnographic investigation of professional and co-researcher’s experiences in a community-based participatory research (CBPR) project, this article explores how vulnerability is experienced and perceived in the work process and how to respond to vulnerability. It finds that vulnerability manifests in two main ways—that of feeling “emotional hurt” and “epistemic self-doubt”—and that it comes from two main layers: the lived life and from working within CBPR. The main argument in the article is that vulnerability is inevitable in qualitative research like CBPR, when involving persons in vulnerable life situations. We propose four key recommendations for future research: (a) accept vulnerability as an inevitable part of CBPR, (b) balance protection with participant autonomy in situ and together as a team, (c) use a processual approach because ethical risks in the research context might alter over time, and (d) accept that placing co-researchers at the center of interpretative authority can increase professional researcher’s vulnerability. The article expands existing understandings of ethical issues and risk in inclusive research through a combined and innovative focus on both professional and co-researcher’s lived experiences.https://doi.org/10.1177/16094069241236181 |
| spellingShingle | Rosemarie van den Breemer Grete Arnesdatter Steigen Camilla Tostrup Lyngar Inger Marie Lid Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family International Journal of Qualitative Methods |
| title | Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family |
| title_full | Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family |
| title_fullStr | Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family |
| title_full_unstemmed | Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family |
| title_short | Vulnerability in Inclusive Research: Exploring Co- and Professional Researchers’ Experiences in a Community-Based Participatory Project on the Disability Family |
| title_sort | vulnerability in inclusive research exploring co and professional researchers experiences in a community based participatory project on the disability family |
| url | https://doi.org/10.1177/16094069241236181 |
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