The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV
Abstract Background People living with HIV experience burdensome multidimensional symptoms and concerns requiring person-centred care. Routine use of patient reported outcome measures can improve outcomes. There is no brief patient reported outcome measure (PROM) that currently reflects the breadth...
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| Format: | Article |
| Language: | English |
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BMC
2020-07-01
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| Series: | Health and Quality of Life Outcomes |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12955-020-01462-5 |
| _version_ | 1818487964844425216 |
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| author | K. Bristowe F. E. M. Murtagh P. Clift R. James J. Josh M. Platt J. Whetham E. Nixon F. A. Post K. McQuillan C. Ní Cheallaigh M. Kall J. Anderson A. K. Sullivan R. Harding |
| author_facet | K. Bristowe F. E. M. Murtagh P. Clift R. James J. Josh M. Platt J. Whetham E. Nixon F. A. Post K. McQuillan C. Ní Cheallaigh M. Kall J. Anderson A. K. Sullivan R. Harding |
| author_sort | K. Bristowe |
| collection | DOAJ |
| description | Abstract Background People living with HIV experience burdensome multidimensional symptoms and concerns requiring person-centred care. Routine use of patient reported outcome measures can improve outcomes. There is no brief patient reported outcome measure (PROM) that currently reflects the breadth of concerns for people living with HIV. This study aimed to develop and cognitively test a brief novel patient reported outcome measure for use within routine adult HIV care– the “Positive Outcomes” HIV PROM. Methods Development followed the COSMIN taxonomy and guidance for relevance and comprehensiveness, and Rothrock guidance on development of valid patient reported outcome measures. The Positive Outcomes HIV PROM was developed by a steering group (people living with HIV, HIV professionals and health services researchers) using findings from a previously reported qualitative study of priority outcomes for people living with HIV. The prototype measure was cognitively tested with a purposive sample of people living with HIV. Results The Positive Outcomes HIV PROM consists of 23 questions (22 structured, and one open question) informed by the priorities of key stakeholders (n = 28 people living with HIV, n = 21 HIV professionals and n = 8 HIV commissioners) to ensure face and content validity, and refined through cognitive testing (n = 6 people living with HIV). Cognitive testing demonstrated high levels of acceptability and accessibility. Conclusions The Positive Outcomes HIV PROM is the first brief patient reported outcome measure reflecting the diverse needs of people living with HIV designed specifically for use in the clinical setting to support patient assessment and care, and drive service quality improvement. It is derived from primary data on the priority outcomes for people living with HIV and is comprehensive and acceptable. Further psychometric testing is required to ensure reliability and responsiveness. |
| first_indexed | 2024-12-10T16:45:02Z |
| format | Article |
| id | doaj.art-2b10fb7ae4c74648811267ed7b70b65f |
| institution | Directory Open Access Journal |
| issn | 1477-7525 |
| language | English |
| last_indexed | 2024-12-10T16:45:02Z |
| publishDate | 2020-07-01 |
| publisher | BMC |
| record_format | Article |
| series | Health and Quality of Life Outcomes |
| spelling | doaj.art-2b10fb7ae4c74648811267ed7b70b65f2022-12-22T01:41:05ZengBMCHealth and Quality of Life Outcomes1477-75252020-07-0118111010.1186/s12955-020-01462-5The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIVK. Bristowe0F. E. M. Murtagh1P. Clift2R. James3J. Josh4M. Platt5J. Whetham6E. Nixon7F. A. Post8K. McQuillan9C. Ní Cheallaigh10M. Kall11J. Anderson12A. K. Sullivan13R. Harding14King’s College London, Cicely Saunders Institute of Palliative Care, Policy & RehabilitationWolfson Palliative Care Research Centre, Hull York Medical School, University of HullKing’s College Hospital NHS Foundation TrustUniversity of SussexUK-CABUK-CABBrighton and Sussex University Hospitals TrustBrighton and Sussex University Hospitals TrustKing’s College Hospital NHS Foundation TrustSt James’s Hospital Dublin and Trinity College DublinSt James’s Hospital Dublin and Trinity College DublinPublic Health EnglandHomerton University Hospital NHS Foundation TrustChelsea and Westminster Hospital NHS Foundation TrustKing’s College London, Cicely Saunders Institute of Palliative Care, Policy & RehabilitationAbstract Background People living with HIV experience burdensome multidimensional symptoms and concerns requiring person-centred care. Routine use of patient reported outcome measures can improve outcomes. There is no brief patient reported outcome measure (PROM) that currently reflects the breadth of concerns for people living with HIV. This study aimed to develop and cognitively test a brief novel patient reported outcome measure for use within routine adult HIV care– the “Positive Outcomes” HIV PROM. Methods Development followed the COSMIN taxonomy and guidance for relevance and comprehensiveness, and Rothrock guidance on development of valid patient reported outcome measures. The Positive Outcomes HIV PROM was developed by a steering group (people living with HIV, HIV professionals and health services researchers) using findings from a previously reported qualitative study of priority outcomes for people living with HIV. The prototype measure was cognitively tested with a purposive sample of people living with HIV. Results The Positive Outcomes HIV PROM consists of 23 questions (22 structured, and one open question) informed by the priorities of key stakeholders (n = 28 people living with HIV, n = 21 HIV professionals and n = 8 HIV commissioners) to ensure face and content validity, and refined through cognitive testing (n = 6 people living with HIV). Cognitive testing demonstrated high levels of acceptability and accessibility. Conclusions The Positive Outcomes HIV PROM is the first brief patient reported outcome measure reflecting the diverse needs of people living with HIV designed specifically for use in the clinical setting to support patient assessment and care, and drive service quality improvement. It is derived from primary data on the priority outcomes for people living with HIV and is comprehensive and acceptable. Further psychometric testing is required to ensure reliability and responsiveness.http://link.springer.com/article/10.1186/s12955-020-01462-5HIVOutcomesPROMsImplementationPerson-centred |
| spellingShingle | K. Bristowe F. E. M. Murtagh P. Clift R. James J. Josh M. Platt J. Whetham E. Nixon F. A. Post K. McQuillan C. Ní Cheallaigh M. Kall J. Anderson A. K. Sullivan R. Harding The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV Health and Quality of Life Outcomes HIV Outcomes PROMs Implementation Person-centred |
| title | The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV |
| title_full | The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV |
| title_fullStr | The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV |
| title_full_unstemmed | The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV |
| title_short | The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV |
| title_sort | development and cognitive testing of the positive outcomes hiv prom a brief novel patient reported outcome measure for adults living with hiv |
| topic | HIV Outcomes PROMs Implementation Person-centred |
| url | http://link.springer.com/article/10.1186/s12955-020-01462-5 |
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