Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury
BackgroundResearch about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA participation after TBI have yet to be defined. In this context...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2022-08-01
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| Series: | Frontiers in Rehabilitation Sciences |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fresc.2022.900178/full |
| _version_ | 1797964729834012672 |
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| author | Enrico Quilico Enrico Quilico Enrico Quilico Shawn Wilkinson Lindsay Duncan Shane Sweet Shane Sweet Evelyne Bédard Eric Trudel Angela Colantonio Angela Colantonio Angela Colantonio Bonnie Swaine Bonnie Swaine |
| author_facet | Enrico Quilico Enrico Quilico Enrico Quilico Shawn Wilkinson Lindsay Duncan Shane Sweet Shane Sweet Evelyne Bédard Eric Trudel Angela Colantonio Angela Colantonio Angela Colantonio Bonnie Swaine Bonnie Swaine |
| author_sort | Enrico Quilico |
| collection | DOAJ |
| description | BackgroundResearch about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA participation after TBI have yet to be defined. In this context, a team of researchers and stakeholders with a moderate-to-severe TBI (including program participants and peer mentors) participated in a co-creation process to optimize a 9-month, 3-phased, community-based, adapted PA program named TBI-Health.PurposeThe study aimed to provide a detailed account of the participation in and co-creation of a new TBI-Health Program to enhance sport and exercise participation for adults with moderate-to-severe TBI. Specifically, we carried out an in-depth exploration of the perceived experiences and outcomes of users over one cycle of the program to assist the co-creation process.MethodsAn interpretive case study approach was used to explore the experiences and outcomes of the participatory co-creation within and across phases of the TBI-Health program. A purposeful sample of fourteen adults with moderate-to-severe TBI (program participants n = 10; peer mentors n = 4) were involved in audio-recorded focus groups after each program phase. Reflexive thematic analyses within and across the phases identified three higher-order themes.ResultsProgram Participation included barriers, facilitators, sources of motivation and suggested modifications to optimize the program; Biopsychosocial Changes highlighted perceived physical, psychological, and social outcomes, by self and others, that resulted from program participation; PA Autonomy emphasized transitions in knowledge, sex- and gender-related beliefs, and abilities related to exercise and sport participation.ConclusionsStudy findings suggest the TBI-Health program can increase autonomy for and reduce barriers to PA for adults with moderate-to-severe TBI, which results in increased PA participation and important physical, psychological, and social benefits. More research is needed about the TBI-Health program with larger samples. |
| first_indexed | 2024-04-11T01:48:31Z |
| format | Article |
| id | doaj.art-2b3ae207286648b980476046eef42a3f |
| institution | Directory Open Access Journal |
| issn | 2673-6861 |
| language | English |
| last_indexed | 2024-04-11T01:48:31Z |
| publishDate | 2022-08-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Rehabilitation Sciences |
| spelling | doaj.art-2b3ae207286648b980476046eef42a3f2023-01-03T07:12:19ZengFrontiers Media S.A.Frontiers in Rehabilitation Sciences2673-68612022-08-01310.3389/fresc.2022.900178900178Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injuryEnrico Quilico0Enrico Quilico1Enrico Quilico2Shawn Wilkinson3Lindsay Duncan4Shane Sweet5Shane Sweet6Evelyne Bédard7Eric Trudel8Angela Colantonio9Angela Colantonio10Angela Colantonio11Bonnie Swaine12Bonnie Swaine13Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, ON, CanadaCentrefor Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, QC, CanadaApplied Human Sciences, Concordia University, Montreal, QC, CanadaApplied Human Sciences, Concordia University, Montreal, QC, CanadaKinesiology and Physical Education, McGill University, Montreal, QC, CanadaCentrefor Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, QC, CanadaKinesiology and Physical Education, McGill University, Montreal, QC, CanadaKinesiology and Physical Education, McGill University, Montreal, QC, CanadaLes YMCA du Québec, Montreal, QC, CanadaRehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, ON, CanadaDalla Lana School of Public Health, University of Toronto, Toronto, ON, CanadaThe KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, CanadaCentrefor Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, QC, CanadaÉcole de réadaptation, Faculté de Médecine, Université de Montréal, Montreal, ON, CanadaBackgroundResearch about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA participation after TBI have yet to be defined. In this context, a team of researchers and stakeholders with a moderate-to-severe TBI (including program participants and peer mentors) participated in a co-creation process to optimize a 9-month, 3-phased, community-based, adapted PA program named TBI-Health.PurposeThe study aimed to provide a detailed account of the participation in and co-creation of a new TBI-Health Program to enhance sport and exercise participation for adults with moderate-to-severe TBI. Specifically, we carried out an in-depth exploration of the perceived experiences and outcomes of users over one cycle of the program to assist the co-creation process.MethodsAn interpretive case study approach was used to explore the experiences and outcomes of the participatory co-creation within and across phases of the TBI-Health program. A purposeful sample of fourteen adults with moderate-to-severe TBI (program participants n = 10; peer mentors n = 4) were involved in audio-recorded focus groups after each program phase. Reflexive thematic analyses within and across the phases identified three higher-order themes.ResultsProgram Participation included barriers, facilitators, sources of motivation and suggested modifications to optimize the program; Biopsychosocial Changes highlighted perceived physical, psychological, and social outcomes, by self and others, that resulted from program participation; PA Autonomy emphasized transitions in knowledge, sex- and gender-related beliefs, and abilities related to exercise and sport participation.ConclusionsStudy findings suggest the TBI-Health program can increase autonomy for and reduce barriers to PA for adults with moderate-to-severe TBI, which results in increased PA participation and important physical, psychological, and social benefits. More research is needed about the TBI-Health program with larger samples.https://www.frontiersin.org/articles/10.3389/fresc.2022.900178/fulltraumatic brain injuryTBIphysical activityPAprogramcommunity |
| spellingShingle | Enrico Quilico Enrico Quilico Enrico Quilico Shawn Wilkinson Lindsay Duncan Shane Sweet Shane Sweet Evelyne Bédard Eric Trudel Angela Colantonio Angela Colantonio Angela Colantonio Bonnie Swaine Bonnie Swaine Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury Frontiers in Rehabilitation Sciences traumatic brain injury TBI physical activity PA program community |
| title | Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury |
| title_full | Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury |
| title_fullStr | Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury |
| title_full_unstemmed | Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury |
| title_short | Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury |
| title_sort | participatory co creation of an adapted physical activity program for adults with moderate to severe traumatic brain injury |
| topic | traumatic brain injury TBI physical activity PA program community |
| url | https://www.frontiersin.org/articles/10.3389/fresc.2022.900178/full |
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