The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
BackgroundAlthough many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this gap, an international survey of patient...
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2023-11-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2023/1/e47573 |
| _version_ | 1797629327500640256 |
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| author | Maria Hägglund Anna Kharko Josefin Hagström Annika Bärkås Charlotte Blease Åsa Cajander Catherine DesRoches Asbjørn Johansen Fagerlund Barbara Haage Isto Huvila Iiris Hörhammer Bridget Kane Gunnar O Klein Eli Kristiansen Kerli Luks Jonas Moll Irene Muli Eline Hovstad Raphaug Hanife Rexhepi Sara Riggare Peeter Ross Isabella Scandurra Saija Simola Hedvig Soone Bo Wang Maedeh Ghorbanian Zolbin Rose-Mharie Åhlfeldt Sari Kujala Monika Alise Johansen |
| author_facet | Maria Hägglund Anna Kharko Josefin Hagström Annika Bärkås Charlotte Blease Åsa Cajander Catherine DesRoches Asbjørn Johansen Fagerlund Barbara Haage Isto Huvila Iiris Hörhammer Bridget Kane Gunnar O Klein Eli Kristiansen Kerli Luks Jonas Moll Irene Muli Eline Hovstad Raphaug Hanife Rexhepi Sara Riggare Peeter Ross Isabella Scandurra Saija Simola Hedvig Soone Bo Wang Maedeh Ghorbanian Zolbin Rose-Mharie Åhlfeldt Sari Kujala Monika Alise Johansen |
| author_sort | Maria Hägglund |
| collection | DOAJ |
| description |
BackgroundAlthough many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH.
ObjectiveWe aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia.
MethodsA cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics.
ResultsIn total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as “fair” (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record “2 to 9 times” (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it “more than 20 times” (4571/13,008, 35.14%).
ConclusionsThis is the first large-scale international survey to compare patient users’ sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients’ experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey. |
| first_indexed | 2024-03-11T10:51:48Z |
| format | Article |
| id | doaj.art-2b5242def4984df58386c839e4e213cb |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-03-11T10:51:48Z |
| publishDate | 2023-11-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-2b5242def4984df58386c839e4e213cb2023-11-13T15:01:12ZengJMIR PublicationsJournal of Medical Internet Research1438-88712023-11-0125e4757310.2196/47573The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and EstoniaMaria Hägglundhttps://orcid.org/0000-0002-6839-3651Anna Kharkohttps://orcid.org/0000-0003-0908-6173Josefin Hagströmhttps://orcid.org/0000-0003-2835-0259Annika Bärkåshttps://orcid.org/0000-0002-1209-7714Charlotte Bleasehttps://orcid.org/0000-0002-0205-1165Åsa Cajanderhttps://orcid.org/0000-0001-7472-2215Catherine DesRocheshttps://orcid.org/0000-0001-5373-855XAsbjørn Johansen Fagerlundhttps://orcid.org/0000-0003-2331-8786Barbara Haagehttps://orcid.org/0000-0002-7472-2802Isto Huvilahttps://orcid.org/0000-0001-9196-2106Iiris Hörhammerhttps://orcid.org/0000-0001-9024-4153Bridget Kanehttps://orcid.org/0000-0003-3211-6529Gunnar O Kleinhttps://orcid.org/0000-0002-1337-2394Eli Kristiansenhttps://orcid.org/0000-0002-3170-1745Kerli Lukshttps://orcid.org/0009-0008-4178-5015Jonas Mollhttps://orcid.org/0000-0002-4772-4730Irene Mulihttps://orcid.org/0000-0002-7622-5092Eline Hovstad Raphaughttps://orcid.org/0009-0004-2963-6827Hanife Rexhepihttps://orcid.org/0000-0001-8957-9853Sara Riggarehttps://orcid.org/0000-0002-2256-7310Peeter Rosshttps://orcid.org/0000-0003-1072-7249Isabella Scandurrahttps://orcid.org/0000-0002-2597-1079Saija Simolahttps://orcid.org/0000-0003-1819-1119Hedvig Soonehttps://orcid.org/0009-0002-0081-4832Bo Wanghttps://orcid.org/0000-0001-5667-8361Maedeh Ghorbanian Zolbinhttps://orcid.org/0000-0001-6516-7010Rose-Mharie Åhlfeldthttps://orcid.org/0000-0002-8607-948XSari Kujalahttps://orcid.org/0000-0001-5586-3725Monika Alise Johansenhttps://orcid.org/0000-0002-6353-8727 BackgroundAlthough many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH. ObjectiveWe aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia. MethodsA cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics. ResultsIn total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as “fair” (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record “2 to 9 times” (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it “more than 20 times” (4571/13,008, 35.14%). ConclusionsThis is the first large-scale international survey to compare patient users’ sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients’ experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.https://www.jmir.org/2023/1/e47573 |
| spellingShingle | Maria Hägglund Anna Kharko Josefin Hagström Annika Bärkås Charlotte Blease Åsa Cajander Catherine DesRoches Asbjørn Johansen Fagerlund Barbara Haage Isto Huvila Iiris Hörhammer Bridget Kane Gunnar O Klein Eli Kristiansen Kerli Luks Jonas Moll Irene Muli Eline Hovstad Raphaug Hanife Rexhepi Sara Riggare Peeter Ross Isabella Scandurra Saija Simola Hedvig Soone Bo Wang Maedeh Ghorbanian Zolbin Rose-Mharie Åhlfeldt Sari Kujala Monika Alise Johansen The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia Journal of Medical Internet Research |
| title | The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia |
| title_full | The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia |
| title_fullStr | The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia |
| title_full_unstemmed | The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia |
| title_short | The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia |
| title_sort | nordehealth 2022 patient survey cross sectional study of national patient portal users in norway sweden finland and estonia |
| url | https://www.jmir.org/2023/1/e47573 |
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