Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care

Research in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients...

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Main Author: Wolfgang Schmid
Format: Article
Language:English
Published: PAGEPress Publications 2018-12-01
Series:Qualitative Research in Medicine & Healthcare
Subjects:
Online Access:https://www.pagepressjournals.org/index.php/qrmh/article/view/7850
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author Wolfgang Schmid
author_facet Wolfgang Schmid
author_sort Wolfgang Schmid
collection DOAJ
description Research in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients, their families, and interdisciplinary team members. A more systematic engagement of all three groups in research is needed to promote tailored and appropriate end-of-life care. In this methodological article I propose a conceptual framework for community-based participatory music therapy research in end-of-life care scenarios as one promising strategy to respond to ethical and practical challenges, to handle complexity and advance integration of perspectives. The conceptual framework consists of two thematic clusters i) Participlinarity across contexts, and ii) Community-based participatory music therapy research in end-of-life care scenarios. Though in the early stages of development, the framework addresses issues of educational strategies and continuity of care, and aims to contribute to innovative music therapy research in the future.
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spelling doaj.art-2da125c3713d4332951834bc8cb822892022-12-21T20:39:20ZengPAGEPress PublicationsQualitative Research in Medicine & Healthcare2532-20442018-12-012310.4081/qrmh.2018.7850Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-careWolfgang Schmid0The Grieg Academy, Department of Music, Faculty of Fine Art, Music and Design, University of Bergen; Sunniva Centre for Palliative Care, Haraldsplass Deaconess Hospital, BergenResearch in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients, their families, and interdisciplinary team members. A more systematic engagement of all three groups in research is needed to promote tailored and appropriate end-of-life care. In this methodological article I propose a conceptual framework for community-based participatory music therapy research in end-of-life care scenarios as one promising strategy to respond to ethical and practical challenges, to handle complexity and advance integration of perspectives. The conceptual framework consists of two thematic clusters i) Participlinarity across contexts, and ii) Community-based participatory music therapy research in end-of-life care scenarios. Though in the early stages of development, the framework addresses issues of educational strategies and continuity of care, and aims to contribute to innovative music therapy research in the future.https://www.pagepressjournals.org/index.php/qrmh/article/view/7850Music therapyEnd-of-life-care scenariosParticipatory researchParticiplinarity
spellingShingle Wolfgang Schmid
Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
Qualitative Research in Medicine & Healthcare
Music therapy
End-of-life-care scenarios
Participatory research
Participlinarity
title Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
title_full Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
title_fullStr Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
title_full_unstemmed Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
title_short Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
title_sort meeting complexity with collaboration a proposed conceptual framework for participatory community based music therapy research in end of life care
topic Music therapy
End-of-life-care scenarios
Participatory research
Participlinarity
url https://www.pagepressjournals.org/index.php/qrmh/article/view/7850
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