Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
Research in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients...
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Format: | Article |
Language: | English |
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PAGEPress Publications
2018-12-01
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Series: | Qualitative Research in Medicine & Healthcare |
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Online Access: | https://www.pagepressjournals.org/index.php/qrmh/article/view/7850 |
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author | Wolfgang Schmid |
author_facet | Wolfgang Schmid |
author_sort | Wolfgang Schmid |
collection | DOAJ |
description | Research in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients, their families, and interdisciplinary team members. A more systematic engagement of all three groups in research is needed to promote tailored and appropriate end-of-life care. In this methodological article I propose a conceptual framework for community-based participatory music therapy research in end-of-life care scenarios as one promising strategy to respond to ethical and practical challenges, to handle complexity and advance integration of perspectives. The conceptual framework consists of two thematic clusters i) Participlinarity across contexts, and ii) Community-based participatory music therapy research in end-of-life care scenarios. Though in the early stages of development, the framework addresses issues of educational strategies and continuity of care, and aims to contribute to innovative music therapy research in the future. |
first_indexed | 2024-12-19T02:37:22Z |
format | Article |
id | doaj.art-2da125c3713d4332951834bc8cb82289 |
institution | Directory Open Access Journal |
issn | 2532-2044 |
language | English |
last_indexed | 2024-12-19T02:37:22Z |
publishDate | 2018-12-01 |
publisher | PAGEPress Publications |
record_format | Article |
series | Qualitative Research in Medicine & Healthcare |
spelling | doaj.art-2da125c3713d4332951834bc8cb822892022-12-21T20:39:20ZengPAGEPress PublicationsQualitative Research in Medicine & Healthcare2532-20442018-12-012310.4081/qrmh.2018.7850Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-careWolfgang Schmid0The Grieg Academy, Department of Music, Faculty of Fine Art, Music and Design, University of Bergen; Sunniva Centre for Palliative Care, Haraldsplass Deaconess Hospital, BergenResearch in end-of-life care is complex with specific ethical and practical challenges related to epistemology, methodology and recruitment of people approaching the end of life. However, to ensure the provision of high-quality care research efforts need to be aligned with the priorities of patients, their families, and interdisciplinary team members. A more systematic engagement of all three groups in research is needed to promote tailored and appropriate end-of-life care. In this methodological article I propose a conceptual framework for community-based participatory music therapy research in end-of-life care scenarios as one promising strategy to respond to ethical and practical challenges, to handle complexity and advance integration of perspectives. The conceptual framework consists of two thematic clusters i) Participlinarity across contexts, and ii) Community-based participatory music therapy research in end-of-life care scenarios. Though in the early stages of development, the framework addresses issues of educational strategies and continuity of care, and aims to contribute to innovative music therapy research in the future.https://www.pagepressjournals.org/index.php/qrmh/article/view/7850Music therapyEnd-of-life-care scenariosParticipatory researchParticiplinarity |
spellingShingle | Wolfgang Schmid Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care Qualitative Research in Medicine & Healthcare Music therapy End-of-life-care scenarios Participatory research Participlinarity |
title | Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care |
title_full | Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care |
title_fullStr | Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care |
title_full_unstemmed | Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care |
title_short | Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care |
title_sort | meeting complexity with collaboration a proposed conceptual framework for participatory community based music therapy research in end of life care |
topic | Music therapy End-of-life-care scenarios Participatory research Participlinarity |
url | https://www.pagepressjournals.org/index.php/qrmh/article/view/7850 |
work_keys_str_mv | AT wolfgangschmid meetingcomplexitywithcollaborationaproposedconceptualframeworkforparticipatorycommunitybasedmusictherapyresearchinendoflifecare |