Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort

This study is a prospective, population-based cohort of individuals with a history of SARS-CoV-2 infection and those without past infection through multiple recruitment sources. The main study goal is to track health status over time, within the diverse populations of Arizona and to identify the lon...

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Main Authors: Collin J. Catalfamo, Kelly M. Heslin, Alexandra Shilen, Sana M. Khan, Josh R. Hunsaker, Erika Austhof, Leila Barraza, Felina M. Cordova-Marks, Leslie V. Farland, Pamela Garcia-Filion, Joshua Hoskinson, Megan Jehn, Lindsay N. Kohler, Karen Lutrick, Robin B. Harris, Zhao Chen, Yann C. Klimentidis, Melanie L. Bell, Kacey C. Ernst, Elizabeth T. Jacobs, Kristen Pogreba-Brown
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-02-01
Series:Frontiers in Public Health
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2021.620060/full
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author Collin J. Catalfamo
Kelly M. Heslin
Alexandra Shilen
Sana M. Khan
Josh R. Hunsaker
Erika Austhof
Leila Barraza
Felina M. Cordova-Marks
Leslie V. Farland
Pamela Garcia-Filion
Joshua Hoskinson
Megan Jehn
Lindsay N. Kohler
Lindsay N. Kohler
Karen Lutrick
Robin B. Harris
Zhao Chen
Yann C. Klimentidis
Melanie L. Bell
Kacey C. Ernst
Elizabeth T. Jacobs
Elizabeth T. Jacobs
Kristen Pogreba-Brown
author_facet Collin J. Catalfamo
Kelly M. Heslin
Alexandra Shilen
Sana M. Khan
Josh R. Hunsaker
Erika Austhof
Leila Barraza
Felina M. Cordova-Marks
Leslie V. Farland
Pamela Garcia-Filion
Joshua Hoskinson
Megan Jehn
Lindsay N. Kohler
Lindsay N. Kohler
Karen Lutrick
Robin B. Harris
Zhao Chen
Yann C. Klimentidis
Melanie L. Bell
Kacey C. Ernst
Elizabeth T. Jacobs
Elizabeth T. Jacobs
Kristen Pogreba-Brown
author_sort Collin J. Catalfamo
collection DOAJ
description This study is a prospective, population-based cohort of individuals with a history of SARS-CoV-2 infection and those without past infection through multiple recruitment sources. The main study goal is to track health status over time, within the diverse populations of Arizona and to identify the long-term consequences of COVID-19 on health and well-being. A total of 2,881 study participants (16.2% with a confirmed SARS-CoV-2 infection) have been enrolled as of December 22, 2020, with a target enrollment of 10,000 participants and a planned follow-up of at least 2 years. This manuscript describes a scalable study design that utilizes a wide range of recruitment sources, leveraging electronic data collection to capture and link longitudinal participant data on the current and emerging issues associated with the COVID-19 pandemic. The cohort is built within a collaborative infrastructure that includes new and established partnerships with multiple stakeholders, including the state's public universities, local health departments, tribes, and tribal organizations. Challenges remain for ensuring recruitment of diverse participants and participant retention, although the electronic data management system and timing of participant contact can help to mitigate these problems.
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spelling doaj.art-2db8dddddaae46edb257ab5bccd613bb2022-12-21T22:02:00ZengFrontiers Media S.A.Frontiers in Public Health2296-25652021-02-01910.3389/fpubh.2021.620060620060Design of the Arizona CoVHORT: A Population-Based COVID-19 CohortCollin J. Catalfamo0Kelly M. Heslin1Alexandra Shilen2Sana M. Khan3Josh R. Hunsaker4Erika Austhof5Leila Barraza6Felina M. Cordova-Marks7Leslie V. Farland8Pamela Garcia-Filion9Joshua Hoskinson10Megan Jehn11Lindsay N. Kohler12Lindsay N. Kohler13Karen Lutrick14Robin B. Harris15Zhao Chen16Yann C. Klimentidis17Melanie L. Bell18Kacey C. Ernst19Elizabeth T. Jacobs20Elizabeth T. Jacobs21Kristen Pogreba-Brown22Department of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Community, Environment and Policy, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesUniversity of Arizona Cancer Center, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Biomedical Informatics, College of Medicine–Phoenix, The University of Arizona, Phoenix, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesSchool of Human Evolution and Social Change, Arizona State University, Tempe, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Health Promotion Sciences, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Family and Community Medicine, College of Medicine–Tucson, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesUniversity of Arizona Cancer Center, Tucson, AZ, United StatesDepartment of Epidemiology and Biostatistics, Mel and Enid Zuckerman College of Public Health, The University of Arizona, Tucson, AZ, United StatesThis study is a prospective, population-based cohort of individuals with a history of SARS-CoV-2 infection and those without past infection through multiple recruitment sources. The main study goal is to track health status over time, within the diverse populations of Arizona and to identify the long-term consequences of COVID-19 on health and well-being. A total of 2,881 study participants (16.2% with a confirmed SARS-CoV-2 infection) have been enrolled as of December 22, 2020, with a target enrollment of 10,000 participants and a planned follow-up of at least 2 years. This manuscript describes a scalable study design that utilizes a wide range of recruitment sources, leveraging electronic data collection to capture and link longitudinal participant data on the current and emerging issues associated with the COVID-19 pandemic. The cohort is built within a collaborative infrastructure that includes new and established partnerships with multiple stakeholders, including the state's public universities, local health departments, tribes, and tribal organizations. Challenges remain for ensuring recruitment of diverse participants and participant retention, although the electronic data management system and timing of participant contact can help to mitigate these problems.https://www.frontiersin.org/articles/10.3389/fpubh.2021.620060/fullCOVID-19SARS-CoV-2cohort study [or longitudinal study]epidemiologylong-term follow up
spellingShingle Collin J. Catalfamo
Kelly M. Heslin
Alexandra Shilen
Sana M. Khan
Josh R. Hunsaker
Erika Austhof
Leila Barraza
Felina M. Cordova-Marks
Leslie V. Farland
Pamela Garcia-Filion
Joshua Hoskinson
Megan Jehn
Lindsay N. Kohler
Lindsay N. Kohler
Karen Lutrick
Robin B. Harris
Zhao Chen
Yann C. Klimentidis
Melanie L. Bell
Kacey C. Ernst
Elizabeth T. Jacobs
Elizabeth T. Jacobs
Kristen Pogreba-Brown
Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
Frontiers in Public Health
COVID-19
SARS-CoV-2
cohort study [or longitudinal study]
epidemiology
long-term follow up
title Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
title_full Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
title_fullStr Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
title_full_unstemmed Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
title_short Design of the Arizona CoVHORT: A Population-Based COVID-19 Cohort
title_sort design of the arizona covhort a population based covid 19 cohort
topic COVID-19
SARS-CoV-2
cohort study [or longitudinal study]
epidemiology
long-term follow up
url https://www.frontiersin.org/articles/10.3389/fpubh.2021.620060/full
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