Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study
ABSTRACT Objective: To analyze the maternal burden related to the care of children diagnosed with autism spectrum disorder. Method: Study with a mixed-method sequential explanatory design held at the Association of Friends and Families of Special Children and in a WhatsApp® Messenger group, with...
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| Format: | Article |
| Language: | English |
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Universidade Federal do Rio Grande do Sul
2022-05-01
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| Series: | Revista Gaúcha de Enfermagem |
| Subjects: | |
| Online Access: | http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000100420&lng=en&tlng=en |
| _version_ | 1828731997509386240 |
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| author | Jakelinne Reis Sousa Vilanova Cristianne Teixeira Carneiro Karla Nayalle de Souza Rocha Mychelangela de Assis Brito Ruth Cardoso Rocha Adelianna de Castro Costa Maria Augusta Rocha Bezerra |
| author_facet | Jakelinne Reis Sousa Vilanova Cristianne Teixeira Carneiro Karla Nayalle de Souza Rocha Mychelangela de Assis Brito Ruth Cardoso Rocha Adelianna de Castro Costa Maria Augusta Rocha Bezerra |
| author_sort | Jakelinne Reis Sousa Vilanova |
| collection | DOAJ |
| description | ABSTRACT Objective: To analyze the maternal burden related to the care of children diagnosed with autism spectrum disorder. Method: Study with a mixed-method sequential explanatory design held at the Association of Friends and Families of Special Children and in a WhatsApp® Messenger group, with 51 (quantitative phase) and six (qualitative phase) mothers, between January and October 2019. For data collection, in the quantitative phase, a sociodemographic, economic and child care characterization form and a Zarit Burden Interview instrument were used. Semi-structured interview was used in the qualitative phase. Descriptive bivariate and multivariate analysis (quantitative) and Bardin analysis (qualitative) were performed. Results: A total of 64.7% mothers felt burdened, with mild to moderate burden (52.9%). Four analytical categories on elements that trigger maternal burden emerged. Conclusions: There is an urgent need to identify maternal burden related to the care of children with autism spectrum disorder, during assistance in Primary Health Care. |
| first_indexed | 2024-04-12T17:54:26Z |
| format | Article |
| id | doaj.art-2eb5f1d343c347c5a1cd6f7e90bd256a |
| institution | Directory Open Access Journal |
| issn | 1983-1447 |
| language | English |
| last_indexed | 2024-04-12T17:54:26Z |
| publishDate | 2022-05-01 |
| publisher | Universidade Federal do Rio Grande do Sul |
| record_format | Article |
| series | Revista Gaúcha de Enfermagem |
| spelling | doaj.art-2eb5f1d343c347c5a1cd6f7e90bd256a2022-12-22T03:22:23ZengUniversidade Federal do Rio Grande do SulRevista Gaúcha de Enfermagem1983-14472022-05-014310.1590/1983-1447.2022.20210077.enBurden of mothers of children diagnosed with autism spectrum disorder: mixed method studyJakelinne Reis Sousa Vilanovahttps://orcid.org/0000-0002-0739-0983Cristianne Teixeira Carneirohttps://orcid.org/0000-0002-0400-4733Karla Nayalle de Souza Rochahttps://orcid.org/0000-0001-7184-003XMychelangela de Assis Britohttps://orcid.org/0000-0002-4519-9979Ruth Cardoso Rochahttps://orcid.org/0000-0001-6702-6844Adelianna de Castro Costahttps://orcid.org/0000-0002-0406-4840Maria Augusta Rocha Bezerrahttps://orcid.org/0000-0002-2718-9849ABSTRACT Objective: To analyze the maternal burden related to the care of children diagnosed with autism spectrum disorder. Method: Study with a mixed-method sequential explanatory design held at the Association of Friends and Families of Special Children and in a WhatsApp® Messenger group, with 51 (quantitative phase) and six (qualitative phase) mothers, between January and October 2019. For data collection, in the quantitative phase, a sociodemographic, economic and child care characterization form and a Zarit Burden Interview instrument were used. Semi-structured interview was used in the qualitative phase. Descriptive bivariate and multivariate analysis (quantitative) and Bardin analysis (qualitative) were performed. Results: A total of 64.7% mothers felt burdened, with mild to moderate burden (52.9%). Four analytical categories on elements that trigger maternal burden emerged. Conclusions: There is an urgent need to identify maternal burden related to the care of children with autism spectrum disorder, during assistance in Primary Health Care.http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000100420&lng=en&tlng=enAutistic disorderMother-child relationsCaregivers |
| spellingShingle | Jakelinne Reis Sousa Vilanova Cristianne Teixeira Carneiro Karla Nayalle de Souza Rocha Mychelangela de Assis Brito Ruth Cardoso Rocha Adelianna de Castro Costa Maria Augusta Rocha Bezerra Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study Revista Gaúcha de Enfermagem Autistic disorder Mother-child relations Caregivers |
| title | Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study |
| title_full | Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study |
| title_fullStr | Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study |
| title_full_unstemmed | Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study |
| title_short | Burden of mothers of children diagnosed with autism spectrum disorder: mixed method study |
| title_sort | burden of mothers of children diagnosed with autism spectrum disorder mixed method study |
| topic | Autistic disorder Mother-child relations Caregivers |
| url | http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000100420&lng=en&tlng=en |
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