A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved]
Covid-19 continues to teach the global community important lessons about preparedness for research and effective action to respond to emerging health threats. We share the COVID-19 experiences of a pre-existing cross-site ethics network-the Global Health Bioethics Network-which brings together resea...
| Main Authors: | , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wellcome
2023-01-01
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| Series: | Wellcome Open Research |
| Subjects: | |
| Online Access: | https://wellcomeopenresearch.org/articles/7-48/v2 |
| _version_ | 1797736939571380224 |
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| author | Michael Parker Nothando Ngwenya Phaik Yeong Cheah Jennifer Ilo Van Nuil Busisiwe Nkosi Janet Seeley Lindiwe Mafuleka Siphephelo Dlamini Nicola Desmond Mira L Schneiders Dinnah Rippon Deborah Nyirenda Vicki Marsh Dorcas Kamuya Alun Davies Sassy Molyneux Mary Chambers Noni Mumba Primus Chi |
| author_facet | Michael Parker Nothando Ngwenya Phaik Yeong Cheah Jennifer Ilo Van Nuil Busisiwe Nkosi Janet Seeley Lindiwe Mafuleka Siphephelo Dlamini Nicola Desmond Mira L Schneiders Dinnah Rippon Deborah Nyirenda Vicki Marsh Dorcas Kamuya Alun Davies Sassy Molyneux Mary Chambers Noni Mumba Primus Chi |
| author_sort | Michael Parker |
| collection | DOAJ |
| description | Covid-19 continues to teach the global community important lessons about preparedness for research and effective action to respond to emerging health threats. We share the COVID-19 experiences of a pre-existing cross-site ethics network-the Global Health Bioethics Network-which brings together researchers and practitioners from Africa, Europe, and Southeast Asia. We describe the network and its members and activities, and the work-related opportunities and challenges we faced over a one-year period during the pandemic. We highlight the value of having strong and long-term empirical ethics networks embedded across diverse research institutions to be able to: 1) identify and share relevant ethics challenges and research questions and ways of ’doing research’; 2) work with key stakeholders to identify appropriate ways to contribute to the emerging health issue response – e.g., through ethics oversight, community engagement, and advisory roles at different levels; and 3) learn from each other and from diverse contexts to advocate for positive change at multiple levels. It is our view that being embedded and long term offers opportunities in terms of deep institutional and contextual knowledge, existing relationships and access to a wide range of stakeholders. Being networked offers opportunities to draw upon a wide range of expertise and perspectives, and to bring together internal and external insights (i.e.drawing on different positionalities). Long term funding means that the people and resources are in place and ready to respond in a timely way. However, many tensions and challenges remain, including difficulties in negotiating power and politics in the roles that researchers and research institutions can and should play in an emergency, and the position of empirical ethics within research programmes. We discuss some of these tensions and challenges and consider the implications for our own and similar networks in future. |
| first_indexed | 2024-03-12T13:20:12Z |
| format | Article |
| id | doaj.art-2f3e7628a5d5453e8c7f2842774ffb13 |
| institution | Directory Open Access Journal |
| issn | 2398-502X |
| language | English |
| last_indexed | 2024-03-12T13:20:12Z |
| publishDate | 2023-01-01 |
| publisher | Wellcome |
| record_format | Article |
| series | Wellcome Open Research |
| spelling | doaj.art-2f3e7628a5d5453e8c7f2842774ffb132023-08-26T01:00:00ZengWellcomeWellcome Open Research2398-502X2023-01-01720829A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved]Michael Parker0https://orcid.org/0000-0002-7054-4711Nothando Ngwenya1Phaik Yeong Cheah2https://orcid.org/0000-0001-6327-3266Jennifer Ilo Van Nuil3https://orcid.org/0000-0002-5167-5505Busisiwe Nkosi4Janet Seeley5https://orcid.org/0000-0002-0583-5272Lindiwe Mafuleka6Siphephelo Dlamini7Nicola Desmond8https://orcid.org/0000-0002-2874-8569Mira L Schneiders9https://orcid.org/0000-0002-4149-3484Dinnah Rippon10Deborah Nyirenda11https://orcid.org/0000-0002-5867-4687Vicki Marsh12Dorcas Kamuya13https://orcid.org/0000-0001-7107-1736Alun Davies14https://orcid.org/0000-0001-7784-9000Sassy Molyneux15https://orcid.org/0000-0001-9522-416XMary Chambers16https://orcid.org/0000-0003-0535-3895Noni Mumba17https://orcid.org/0000-0002-3531-8823Primus Chi18https://orcid.org/0000-0002-2727-2693Ethox, University of Oxford, Oxford, UKAfrica Health Research Institute, Durban, South AfricaNuffield Department of Medicine, University of Oxford, Oxford, UKOxford University Clinical Research Unit, Ho Chi Minh, VietnamAfrica Health Research Institute, Durban, South AfricaAfrica Health Research Institute, Durban, South AfricaMalawi-Liverpool-Wellcome Clinical Research Programme, Blantyre, MalawiAfrica Health Research Institute, Durban, South AfricaMalawi-Liverpool-Wellcome Clinical Research Programme, Blantyre, MalawiNuffield Department of Medicine, University of Oxford, Oxford, UKEthox, University of Oxford, Oxford, UKMalawi-Liverpool-Wellcome Clinical Research Programme, Blantyre, MalawiNuffield Department of Medicine, University of Oxford, Oxford, UKKEMRI-Wellcome Trust Research Programme, Kilifi, KenyaNuffield Department of Medicine, University of Oxford, Oxford, UKNuffield Department of Medicine, University of Oxford, Oxford, UKOxford University Clinical Research Unit, Ho Chi Minh, VietnamKEMRI-Wellcome Trust Research Programme, Kilifi, KenyaKEMRI-Wellcome Trust Research Programme, Kilifi, KenyaCovid-19 continues to teach the global community important lessons about preparedness for research and effective action to respond to emerging health threats. We share the COVID-19 experiences of a pre-existing cross-site ethics network-the Global Health Bioethics Network-which brings together researchers and practitioners from Africa, Europe, and Southeast Asia. We describe the network and its members and activities, and the work-related opportunities and challenges we faced over a one-year period during the pandemic. We highlight the value of having strong and long-term empirical ethics networks embedded across diverse research institutions to be able to: 1) identify and share relevant ethics challenges and research questions and ways of ’doing research’; 2) work with key stakeholders to identify appropriate ways to contribute to the emerging health issue response – e.g., through ethics oversight, community engagement, and advisory roles at different levels; and 3) learn from each other and from diverse contexts to advocate for positive change at multiple levels. It is our view that being embedded and long term offers opportunities in terms of deep institutional and contextual knowledge, existing relationships and access to a wide range of stakeholders. Being networked offers opportunities to draw upon a wide range of expertise and perspectives, and to bring together internal and external insights (i.e.drawing on different positionalities). Long term funding means that the people and resources are in place and ready to respond in a timely way. However, many tensions and challenges remain, including difficulties in negotiating power and politics in the roles that researchers and research institutions can and should play in an emergency, and the position of empirical ethics within research programmes. We discuss some of these tensions and challenges and consider the implications for our own and similar networks in future.https://wellcomeopenresearch.org/articles/7-48/v2COVID-19 embedded research Low and Middle Income Countries health research ethics networkeng |
| spellingShingle | Michael Parker Nothando Ngwenya Phaik Yeong Cheah Jennifer Ilo Van Nuil Busisiwe Nkosi Janet Seeley Lindiwe Mafuleka Siphephelo Dlamini Nicola Desmond Mira L Schneiders Dinnah Rippon Deborah Nyirenda Vicki Marsh Dorcas Kamuya Alun Davies Sassy Molyneux Mary Chambers Noni Mumba Primus Chi A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] Wellcome Open Research COVID-19 embedded research Low and Middle Income Countries health research ethics network eng |
| title | A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] |
| title_full | A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] |
| title_fullStr | A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] |
| title_full_unstemmed | A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] |
| title_short | A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses [version 2; peer review: 2 approved] |
| title_sort | network of empirical ethics teams embedded in research programmes across multiple sites opportunities and challenges in contributing to covid 19 research and responses version 2 peer review 2 approved |
| topic | COVID-19 embedded research Low and Middle Income Countries health research ethics network eng |
| url | https://wellcomeopenresearch.org/articles/7-48/v2 |
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