Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations]
Background: This study explores the acceptability and feasibility of the use of two different Participatory Visual Methods (Participatory Video and Digital Storytelling) in gathering information on the experiences and perspectives of carers of children with Congenital Zika Syndrome within Colombia....
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| Format: | Article |
| Language: | English |
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Wellcome
2022-07-01
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| Series: | Wellcome Open Research |
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| Online Access: | https://wellcomeopenresearch.org/articles/7-107/v2 |
| _version_ | 1797642977614495744 |
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| author | Veronika Reichenberger Tom Shakespeare Tracey Smythe Hannah Kuper Luisa Consuelo Rubiano Perea Shaffa Hameed Loveday Penn-Kekana |
| author_facet | Veronika Reichenberger Tom Shakespeare Tracey Smythe Hannah Kuper Luisa Consuelo Rubiano Perea Shaffa Hameed Loveday Penn-Kekana |
| author_sort | Veronika Reichenberger |
| collection | DOAJ |
| description | Background: This study explores the acceptability and feasibility of the use of two different Participatory Visual Methods (Participatory Video and Digital Storytelling) in gathering information on the experiences and perspectives of carers of children with Congenital Zika Syndrome within Colombia. Methods: Participatory Video was used to assess the impact of the Juntos parent-support intervention in the lives of carers, and Digital Storytelling was used to explore the healthcare access for these children. In-depth interviews were conducted to probe participants on their views of these methods. Results: One Participatory Video was produced and four Digital Stories. Of the initial eight caregivers who took part in the Participatory Video process, four completed both the Digital Storytelling process and an in-depth interview about their experiences. The main factors shaping participants’ experiences related to the skills learned in making the videos, the feeling of collectiveness and the control over the processes. Conclusion: Women with children with Congenital Zika Syndrome have reported feeling marginalised and misunderstood in daily life. This case study found that Participatory Visual Methods is acceptable and feasible. Moreover, these approaches can support groups in different aspects, such as providing a space to share their stories creatively, hear others in similar situations as them and increase the feeling of community. |
| first_indexed | 2024-03-11T14:08:00Z |
| format | Article |
| id | doaj.art-2f5a911c6b7f44ccb922aaa8e9865339 |
| institution | Directory Open Access Journal |
| issn | 2398-502X |
| language | English |
| last_indexed | 2024-03-11T14:08:00Z |
| publishDate | 2022-07-01 |
| publisher | Wellcome |
| record_format | Article |
| series | Wellcome Open Research |
| spelling | doaj.art-2f5a911c6b7f44ccb922aaa8e98653392023-11-02T01:00:00ZengWellcomeWellcome Open Research2398-502X2022-07-01719976Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations]Veronika Reichenberger0https://orcid.org/0000-0001-6778-2682Tom Shakespeare1https://orcid.org/0000-0003-2571-2787Tracey Smythe2https://orcid.org/0000-0003-3408-7362Hannah Kuper3https://orcid.org/0000-0002-8952-0023Luisa Consuelo Rubiano Perea4Shaffa Hameed5Loveday Penn-Kekana6International Centre for Evidence in Disability, Department of Clinical Research, London School of Hygiene and Tropical Medicine, London, UKInternational Centre for Evidence in Disability, Department of Clinical Research, London School of Hygiene and Tropical Medicine, London, UKInternational Centre for Evidence in Disability, Department of Clinical Research, London School of Hygiene and Tropical Medicine, London, UKInternational Centre for Evidence in Disability, Department of Clinical Research, London School of Hygiene and Tropical Medicine, London, UKFundación Casa GAMI, Cali, ColombiaInternational Centre for Evidence in Disability, Department of Clinical Research, London School of Hygiene and Tropical Medicine, London, UKDepartment of Public Health and Policy, Health Policy Unit, London School of Hygiene and Tropical Medicine, London, UKBackground: This study explores the acceptability and feasibility of the use of two different Participatory Visual Methods (Participatory Video and Digital Storytelling) in gathering information on the experiences and perspectives of carers of children with Congenital Zika Syndrome within Colombia. Methods: Participatory Video was used to assess the impact of the Juntos parent-support intervention in the lives of carers, and Digital Storytelling was used to explore the healthcare access for these children. In-depth interviews were conducted to probe participants on their views of these methods. Results: One Participatory Video was produced and four Digital Stories. Of the initial eight caregivers who took part in the Participatory Video process, four completed both the Digital Storytelling process and an in-depth interview about their experiences. The main factors shaping participants’ experiences related to the skills learned in making the videos, the feeling of collectiveness and the control over the processes. Conclusion: Women with children with Congenital Zika Syndrome have reported feeling marginalised and misunderstood in daily life. This case study found that Participatory Visual Methods is acceptable and feasible. Moreover, these approaches can support groups in different aspects, such as providing a space to share their stories creatively, hear others in similar situations as them and increase the feeling of community.https://wellcomeopenresearch.org/articles/7-107/v2Participatory Video Digital Storytelling Participatory Visual Methods Congenital Zika Syndromeeng |
| spellingShingle | Veronika Reichenberger Tom Shakespeare Tracey Smythe Hannah Kuper Luisa Consuelo Rubiano Perea Shaffa Hameed Loveday Penn-Kekana Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] Wellcome Open Research Participatory Video Digital Storytelling Participatory Visual Methods Congenital Zika Syndrome eng |
| title | Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] |
| title_full | Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] |
| title_fullStr | Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] |
| title_full_unstemmed | Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] |
| title_short | Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [version 2; peer review: 2 approved, 1 approved with reservations] |
| title_sort | participatory visual methods with caregivers of children with congenital zika syndrome in colombia a case study version 2 peer review 2 approved 1 approved with reservations |
| topic | Participatory Video Digital Storytelling Participatory Visual Methods Congenital Zika Syndrome eng |
| url | https://wellcomeopenresearch.org/articles/7-107/v2 |
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