Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

Abstract Background To capture the broad range of treatment burden issues experienced by adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience Measure (Hemo-TEM) was developed. We describe the development of this new hemophilia-specific patient-reported outcome (PRO)...

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Bibliographic Details
Main Authors: Meryl Brod, Donald M. Bushnell, Jesper Skov Neergaard, Laura Tesler Waldman, Anne Kirstine Busk
Format: Article
Language:English
Published: SpringerOpen 2023-02-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Hemophilia
Patient-reported outcome measures
Concept elicitation
Interviews
Qualitative research
Psychometrics
Online Access:https://doi.org/10.1186/s41687-023-00550-6

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