“If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care

Explanatory models describe individuals’ perceptions of their illness experiences, which can guide culturally relevant care. We constructed an explanatory model of the experience of living with human immunodeficiency virus (HIV) in the Dominican Republic. Following qualitative descriptive methodolog...

Full description

Bibliographic Details
Main Authors: Samantha Stonbraker, Gabriella Sanabria, Silvia Cunto-Amesty, Carmela Alcántara, Ana F. Abraído-Lanza, Tawandra Rowell-Cunsolo, Mina Halpern, Suzanne Bakken, Rebecca Schnall, Maureen George
Format: Article
Language:English
Published: SAGE Publishing 2022-06-01
Series:Global Qualitative Nursing Research
Online Access:https://doi.org/10.1177/23333936221097112
_version_ 1811261795020570624
author Samantha Stonbraker
Gabriella Sanabria
Silvia Cunto-Amesty
Carmela Alcántara
Ana F. Abraído-Lanza
Tawandra Rowell-Cunsolo
Mina Halpern
Suzanne Bakken
Rebecca Schnall
Maureen George
author_facet Samantha Stonbraker
Gabriella Sanabria
Silvia Cunto-Amesty
Carmela Alcántara
Ana F. Abraído-Lanza
Tawandra Rowell-Cunsolo
Mina Halpern
Suzanne Bakken
Rebecca Schnall
Maureen George
author_sort Samantha Stonbraker
collection DOAJ
description Explanatory models describe individuals’ perceptions of their illness experiences, which can guide culturally relevant care. We constructed an explanatory model of the experience of living with human immunodeficiency virus (HIV) in the Dominican Republic. Following qualitative descriptive methodology, we conducted interviews in Spanish using a semi-structured interview guide developed using Kleinman’s explanatory model framework. Two bilingual researchers coded interview transcripts following conventional content analysis. We used deductive codes from Kleinman’s framework and inductive codes external to the framework to construct the codebook. We arranged codes by shared meaning into categories and constructed themes that reflected shared findings from inductive categories and deductive codes. Twenty-six persons living with HIV participated. They provided rich descriptions of their experiences represented by four cross-cutting themes, which informed the explanatory model. By incorporating this in-depth understanding of patients’ illness experiences into care delivery, nurses can cultivate culturally meaningful and trusting patient-centered partnerships that improve health.
first_indexed 2024-04-12T19:12:17Z
format Article
id doaj.art-30adffacce4a4638a39744c73fb07166
institution Directory Open Access Journal
issn 2333-3936
language English
last_indexed 2024-04-12T19:12:17Z
publishDate 2022-06-01
publisher SAGE Publishing
record_format Article
series Global Qualitative Nursing Research
spelling doaj.art-30adffacce4a4638a39744c73fb071662022-12-22T03:19:50ZengSAGE PublishingGlobal Qualitative Nursing Research2333-39362022-06-01910.1177/23333936221097112“If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered CareSamantha Stonbraker0Gabriella Sanabria1Silvia Cunto-Amesty2Carmela Alcántara3Ana F. Abraído-Lanza4Tawandra Rowell-Cunsolo5Mina Halpern6Suzanne Bakken7Rebecca Schnall8Maureen George9University of Colorado College of Nursing, Anschutz Medical Campus, Aurora, USAUniversity of South Florida College of Public Health, Tampa, USAColumbia University Irving Medical Center, New York, NY, USAColumbia School of Social Work, New York, NY, USANew York University School of Global Public Health, USAUniversity of Wisconsin—Madison School of Social Work, USAClínica de Familia La Romana, La Romana, Dominican RepublicColumbia University School of Nursing, New York, NY, USAColumbia University School of Nursing, New York, NY, USAColumbia University School of Nursing, New York, NY, USAExplanatory models describe individuals’ perceptions of their illness experiences, which can guide culturally relevant care. We constructed an explanatory model of the experience of living with human immunodeficiency virus (HIV) in the Dominican Republic. Following qualitative descriptive methodology, we conducted interviews in Spanish using a semi-structured interview guide developed using Kleinman’s explanatory model framework. Two bilingual researchers coded interview transcripts following conventional content analysis. We used deductive codes from Kleinman’s framework and inductive codes external to the framework to construct the codebook. We arranged codes by shared meaning into categories and constructed themes that reflected shared findings from inductive categories and deductive codes. Twenty-six persons living with HIV participated. They provided rich descriptions of their experiences represented by four cross-cutting themes, which informed the explanatory model. By incorporating this in-depth understanding of patients’ illness experiences into care delivery, nurses can cultivate culturally meaningful and trusting patient-centered partnerships that improve health.https://doi.org/10.1177/23333936221097112
spellingShingle Samantha Stonbraker
Gabriella Sanabria
Silvia Cunto-Amesty
Carmela Alcántara
Ana F. Abraído-Lanza
Tawandra Rowell-Cunsolo
Mina Halpern
Suzanne Bakken
Rebecca Schnall
Maureen George
“If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
Global Qualitative Nursing Research
title “If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
title_full “If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
title_fullStr “If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
title_full_unstemmed “If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
title_short “If They Give Their Mind to HIV, They Don’t Last as Long”: An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
title_sort if they give their mind to hiv they don t last as long an explanatory model of hiv infection in a limited resource setting informs person centered care
url https://doi.org/10.1177/23333936221097112
work_keys_str_mv AT samanthastonbraker iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT gabriellasanabria iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT silviacuntoamesty iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT carmelaalcantara iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT anafabraidolanza iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT tawandrarowellcunsolo iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT minahalpern iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT suzannebakken iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT rebeccaschnall iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare
AT maureengeorge iftheygivetheirmindtohivtheydontlastaslonganexplanatorymodelofhivinfectioninalimitedresourcesettinginformspersoncenteredcare