Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study
Abstract Introduction Poor medical information transfer across healthcare visits and providers poses a potential threat to patient safety. Patient‐held health records (PHRs) may be used to facilitate informational continuity, handover communication and patient self‐management. However, there are con...
| Main Authors: | , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2023-06-01
|
| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13721 |
| _version_ | 1797834659883646976 |
|---|---|
| author | Linju Joseph Sheila Greenfield Semira Manaseki‐Holland Lekha T. R. Sujakumari S. Jeemon Panniyammakal Anna Lavis |
| author_facet | Linju Joseph Sheila Greenfield Semira Manaseki‐Holland Lekha T. R. Sujakumari S. Jeemon Panniyammakal Anna Lavis |
| author_sort | Linju Joseph |
| collection | DOAJ |
| description | Abstract Introduction Poor medical information transfer across healthcare visits and providers poses a potential threat to patient safety. Patient‐held health records (PHRs) may be used to facilitate informational continuity, handover communication and patient self‐management. However, there are conflicting opinions on the effectiveness of PHRs, other than in maternal and child care. Moreover, the experiences of users of PHRs in low‐ and middle‐income countries are critical in policy decisions but have rarely been researched. Aim This study aimed to explore similarities and differences in the perspectives of patients, carers and healthcare providers (HCPs) on the current PHRs for diabetes and hypertension in Kerala. Methods A qualitative design was used comprising semistructured interviews with patients with diabetes/hypertension (n = 20), carers (n = 15) and HCPs (n = 17) in Kerala, India. Data were analysed using thematic analysis. Results Themes generated regarding the experiences with PHRs from each user group were compared and contrasted. The themes that arose were organized under three headings: use of PHRs in everyday practice; the perceived value of PHR and where practice and value conflict. We found that in the use of PHRs in everyday practice, multiple PHRs posed challenges for patients carrying records and for HCPs locating relevant information. Most carers carried all patients' past PHRs, while patients made decisions on which PHR to take along based on the purpose of the healthcare visit. HCPs appreciated having PHRs but documented limited details in them. The perceived value of PHRs by each group for themselves was different. While HCPs placed value on PHRs for enabling better clinical decision‐making, preventing errors and patient safety, patients perceived them as transactional tools for diabetes and hypertension medications; carers highlighted their value during emergencies. Conclusion Our findings suggest that users find a variety of values for PHRs. However, these perceived values are different for each user group, suggesting minimal functioning of PHRs for informational continuity, handover communication and self‐management. Patient and Public Involvement Patients and carers were involved during the pilot testing of topic guides, consent and study information sheets. Patients and carers gave their feedback on the materials to ensure clarity and appropriateness within the context. |
| first_indexed | 2024-04-09T14:40:59Z |
| format | Article |
| id | doaj.art-3148fad874df4c12acb2a4407db3eabf |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-04-09T14:40:59Z |
| publishDate | 2023-06-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-3148fad874df4c12acb2a4407db3eabf2023-05-03T06:39:49ZengWileyHealth Expectations1369-65131369-76252023-06-012631081109510.1111/hex.13721Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory studyLinju Joseph0Sheila Greenfield1Semira Manaseki‐Holland2Lekha T. R.3Sujakumari S.4Jeemon Panniyammakal5Anna Lavis6Institute of Applied Health Research, College of Medical and Dental Sciences University of Birmingham Edgbaston Birmingham UKInstitute of Applied Health Research, College of Medical and Dental Sciences University of Birmingham Edgbaston Birmingham UKInstitute of Applied Health Research, College of Medical and Dental Sciences University of Birmingham Edgbaston Birmingham UKAchutha Menon Centre for Health Science Studies Sree Chitra Tirunal Institute for Medical Sciences and Technology Trivandrum Kerala IndiaAchutha Menon Centre for Health Science Studies Sree Chitra Tirunal Institute for Medical Sciences and Technology Trivandrum Kerala IndiaAchutha Menon Centre for Health Science Studies Sree Chitra Tirunal Institute for Medical Sciences and Technology Trivandrum Kerala IndiaInstitute of Applied Health Research, College of Medical and Dental Sciences University of Birmingham Edgbaston Birmingham UKAbstract Introduction Poor medical information transfer across healthcare visits and providers poses a potential threat to patient safety. Patient‐held health records (PHRs) may be used to facilitate informational continuity, handover communication and patient self‐management. However, there are conflicting opinions on the effectiveness of PHRs, other than in maternal and child care. Moreover, the experiences of users of PHRs in low‐ and middle‐income countries are critical in policy decisions but have rarely been researched. Aim This study aimed to explore similarities and differences in the perspectives of patients, carers and healthcare providers (HCPs) on the current PHRs for diabetes and hypertension in Kerala. Methods A qualitative design was used comprising semistructured interviews with patients with diabetes/hypertension (n = 20), carers (n = 15) and HCPs (n = 17) in Kerala, India. Data were analysed using thematic analysis. Results Themes generated regarding the experiences with PHRs from each user group were compared and contrasted. The themes that arose were organized under three headings: use of PHRs in everyday practice; the perceived value of PHR and where practice and value conflict. We found that in the use of PHRs in everyday practice, multiple PHRs posed challenges for patients carrying records and for HCPs locating relevant information. Most carers carried all patients' past PHRs, while patients made decisions on which PHR to take along based on the purpose of the healthcare visit. HCPs appreciated having PHRs but documented limited details in them. The perceived value of PHRs by each group for themselves was different. While HCPs placed value on PHRs for enabling better clinical decision‐making, preventing errors and patient safety, patients perceived them as transactional tools for diabetes and hypertension medications; carers highlighted their value during emergencies. Conclusion Our findings suggest that users find a variety of values for PHRs. However, these perceived values are different for each user group, suggesting minimal functioning of PHRs for informational continuity, handover communication and self‐management. Patient and Public Involvement Patients and carers were involved during the pilot testing of topic guides, consent and study information sheets. Patients and carers gave their feedback on the materials to ensure clarity and appropriateness within the context.https://doi.org/10.1111/hex.13721healthcare communicationpatient‐held recordspatient safetyuser perspectives |
| spellingShingle | Linju Joseph Sheila Greenfield Semira Manaseki‐Holland Lekha T. R. Sujakumari S. Jeemon Panniyammakal Anna Lavis Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study Health Expectations healthcare communication patient‐held records patient safety user perspectives |
| title | Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study |
| title_full | Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study |
| title_fullStr | Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study |
| title_full_unstemmed | Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study |
| title_short | Patients', carers' and healthcare providers' views of patient‐held health records in Kerala, India: A qualitative exploratory study |
| title_sort | patients carers and healthcare providers views of patient held health records in kerala india a qualitative exploratory study |
| topic | healthcare communication patient‐held records patient safety user perspectives |
| url | https://doi.org/10.1111/hex.13721 |
| work_keys_str_mv | AT linjujoseph patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT sheilagreenfield patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT semiramanasekiholland patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT lekhatr patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT sujakumaris patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT jeemonpanniyammakal patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy AT annalavis patientscarersandhealthcareprovidersviewsofpatientheldhealthrecordsinkeralaindiaaqualitativeexploratorystudy |