A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).

<h4>Objectives</h4>To identify the barriers and facilitators that people with severe mental illness and people with learning disabilities may encounter when accessing cancer screening and make recommendations for implementing reasonable adjustments throughout cancer screening services.&l...

Full description

Bibliographic Details
Main Authors: Kate Sykes, Emma Tuschick, Emma L Giles, Kehinde K Kanmodi, Jill Barker
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2022-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0278238
_version_ 1797958102750855168
author Kate Sykes
Emma Tuschick
Emma L Giles
Kehinde K Kanmodi
Jill Barker
author_facet Kate Sykes
Emma Tuschick
Emma L Giles
Kehinde K Kanmodi
Jill Barker
author_sort Kate Sykes
collection DOAJ
description <h4>Objectives</h4>To identify the barriers and facilitators that people with severe mental illness and people with learning disabilities may encounter when accessing cancer screening and make recommendations for implementing reasonable adjustments throughout cancer screening services.<h4>Methods and analysis</h4>An 18-month sequential, mixed-methods study comprising of two phases of work and underpinned by Normalisation Process Theory, recruiting from across the North-East and North Cumbria. The first phase aims to identify the barriers and facilitators for people with severe mental illness in accessing cervical, breast and colorectal cancer screening. A systematic review of eight databases (Part 1a; PROSPERO registration number: CRD42022331781) alongside semi-structured interviews of up to 36 people with severe mental illness (Part 1b) will occur. Additional characteristics indicating populations whose perspectives may not have been accounted for in the systematic review will be targeted in the interviews. Potential participants will be identified from a range of settings across the North-East and North Cumbria, including through social media and gatekeepers within National Health Service Trusts and charities. Interviews will be analysed using framework analysis, which will be in line with the Normalisation Process Theory. The second phase of the project (part 2a) involves triangulating the results of the systematic review and interviews with existing research previously completed with people with learning disabilities accessing cancer screening. This will be to identify population specific barriers and facilitators across people with learning disabilities and people with severe mental illness to access cancer screening services. Following triangulation, part 2b will include designing and planning a future study involving stakeholders in cancer screening to explore the feasibility, practicality, and priority for implementing the recommendations to improve person centred cancer screening services (PECCS).<h4>Ethics and dissemination</h4>This study has received Teesside University ethical approval, Health Research Authority approval (IRAS: 310622) and favourable opinion (REF: 22/PR/0793). Findings will be disseminated through a range of academic and non-academic modes including infographics, blog posts and academic publications.
first_indexed 2024-04-11T00:14:02Z
format Article
id doaj.art-31702c6b44034cb49cd90d3e98b4ec7a
institution Directory Open Access Journal
issn 1932-6203
language English
last_indexed 2024-04-11T00:14:02Z
publishDate 2022-01-01
publisher Public Library of Science (PLoS)
record_format Article
series PLoS ONE
spelling doaj.art-31702c6b44034cb49cd90d3e98b4ec7a2023-01-09T05:30:59ZengPublic Library of Science (PLoS)PLoS ONE1932-62032022-01-011711e027823810.1371/journal.pone.0278238A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).Kate SykesEmma TuschickEmma L GilesKehinde K KanmodiJill Barker<h4>Objectives</h4>To identify the barriers and facilitators that people with severe mental illness and people with learning disabilities may encounter when accessing cancer screening and make recommendations for implementing reasonable adjustments throughout cancer screening services.<h4>Methods and analysis</h4>An 18-month sequential, mixed-methods study comprising of two phases of work and underpinned by Normalisation Process Theory, recruiting from across the North-East and North Cumbria. The first phase aims to identify the barriers and facilitators for people with severe mental illness in accessing cervical, breast and colorectal cancer screening. A systematic review of eight databases (Part 1a; PROSPERO registration number: CRD42022331781) alongside semi-structured interviews of up to 36 people with severe mental illness (Part 1b) will occur. Additional characteristics indicating populations whose perspectives may not have been accounted for in the systematic review will be targeted in the interviews. Potential participants will be identified from a range of settings across the North-East and North Cumbria, including through social media and gatekeepers within National Health Service Trusts and charities. Interviews will be analysed using framework analysis, which will be in line with the Normalisation Process Theory. The second phase of the project (part 2a) involves triangulating the results of the systematic review and interviews with existing research previously completed with people with learning disabilities accessing cancer screening. This will be to identify population specific barriers and facilitators across people with learning disabilities and people with severe mental illness to access cancer screening services. Following triangulation, part 2b will include designing and planning a future study involving stakeholders in cancer screening to explore the feasibility, practicality, and priority for implementing the recommendations to improve person centred cancer screening services (PECCS).<h4>Ethics and dissemination</h4>This study has received Teesside University ethical approval, Health Research Authority approval (IRAS: 310622) and favourable opinion (REF: 22/PR/0793). Findings will be disseminated through a range of academic and non-academic modes including infographics, blog posts and academic publications.https://doi.org/10.1371/journal.pone.0278238
spellingShingle Kate Sykes
Emma Tuschick
Emma L Giles
Kehinde K Kanmodi
Jill Barker
A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
PLoS ONE
title A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
title_full A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
title_fullStr A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
title_full_unstemmed A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
title_short A protocol to identify the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening Services (PECCS).
title_sort protocol to identify the barriers and facilitators for people with severe mental illness and or learning disabilities for person centred cancer screening services peccs
url https://doi.org/10.1371/journal.pone.0278238
work_keys_str_mv AT katesykes aprotocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT emmatuschick aprotocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT emmalgiles aprotocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT kehindekkanmodi aprotocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT jillbarker aprotocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT katesykes protocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT emmatuschick protocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT emmalgiles protocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT kehindekkanmodi protocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs
AT jillbarker protocoltoidentifythebarriersandfacilitatorsforpeoplewithseverementalillnessandorlearningdisabilitiesforpersoncentredcancerscreeningservicespeccs