Living, Caring, Learning – Addressing challenges in the transition to adult care
Greta, a specialist nurse at one of the largest haemophilia treatment centres in the Netherlands, reflects on the role one particular patient played in helping to reshape her centre’s approach to the process of transition from paediatric to adult care. The patient, a young man with severe haemophili...
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| Format: | Article |
| Language: | English |
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Sciendo
2023-12-01
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| Series: | The Journal of Haemophilia Practice |
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| Online Access: | https://doi.org/10.2478/jhp-2023-0020 |
| _version_ | 1797354344451932160 |
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| author | Mulders Greta |
| author_facet | Mulders Greta |
| author_sort | Mulders Greta |
| collection | DOAJ |
| description | Greta, a specialist nurse at one of the largest haemophilia treatment centres in the Netherlands, reflects on the role one particular patient played in helping to reshape her centre’s approach to the process of transition from paediatric to adult care. The patient, a young man with severe haemophilia B and an inhibitor, experienced frequent bleeds and venepuncture was sometimes difficult. He continued to be reliant on his mother to administer injections and order his treatment. Greta considers the importance of ensuring young people transitioning to adult care have the knowledge and skills they need to manage their haemophilia while balancing this with the reality of an individual’s circumstances, often including the ongoing role of parents in their lives as supporters and caregivers. She suggests that transition is best approached as a gradual process rather than an event, reflecting on how this helps to build trust between the new health care team and both the patient and their parents. She also points to the importance of supporting parents through the transition process as needed. Greta is clear that an approach to care that seeks to understand individuals and acknowledges the feelings of everyone involved can make a difference in enabling successful transition to adult care and in patient care more generally. |
| first_indexed | 2024-03-08T13:48:05Z |
| format | Article |
| id | doaj.art-31cb3de4c7c840eabe4305d02a6d36bd |
| institution | Directory Open Access Journal |
| issn | 2055-3390 |
| language | English |
| last_indexed | 2024-03-08T13:48:05Z |
| publishDate | 2023-12-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj.art-31cb3de4c7c840eabe4305d02a6d36bd2024-01-16T07:20:03ZengSciendoThe Journal of Haemophilia Practice2055-33902023-12-0110112212410.2478/jhp-2023-0020Living, Caring, Learning – Addressing challenges in the transition to adult careMulders Greta0haemophilia nurse specialist at Erasmus University Medical Centre, Rotterdam, The NetherlandsGreta, a specialist nurse at one of the largest haemophilia treatment centres in the Netherlands, reflects on the role one particular patient played in helping to reshape her centre’s approach to the process of transition from paediatric to adult care. The patient, a young man with severe haemophilia B and an inhibitor, experienced frequent bleeds and venepuncture was sometimes difficult. He continued to be reliant on his mother to administer injections and order his treatment. Greta considers the importance of ensuring young people transitioning to adult care have the knowledge and skills they need to manage their haemophilia while balancing this with the reality of an individual’s circumstances, often including the ongoing role of parents in their lives as supporters and caregivers. She suggests that transition is best approached as a gradual process rather than an event, reflecting on how this helps to build trust between the new health care team and both the patient and their parents. She also points to the importance of supporting parents through the transition process as needed. Greta is clear that an approach to care that seeks to understand individuals and acknowledges the feelings of everyone involved can make a difference in enabling successful transition to adult care and in patient care more generally.https://doi.org/10.2478/jhp-2023-0020haemophiliatransition to adult caretherapeutic relationshipnursesprofessional practice |
| spellingShingle | Mulders Greta Living, Caring, Learning – Addressing challenges in the transition to adult care The Journal of Haemophilia Practice haemophilia transition to adult care therapeutic relationship nurses professional practice |
| title | Living, Caring, Learning – Addressing challenges in the transition to adult care |
| title_full | Living, Caring, Learning – Addressing challenges in the transition to adult care |
| title_fullStr | Living, Caring, Learning – Addressing challenges in the transition to adult care |
| title_full_unstemmed | Living, Caring, Learning – Addressing challenges in the transition to adult care |
| title_short | Living, Caring, Learning – Addressing challenges in the transition to adult care |
| title_sort | living caring learning addressing challenges in the transition to adult care |
| topic | haemophilia transition to adult care therapeutic relationship nurses professional practice |
| url | https://doi.org/10.2478/jhp-2023-0020 |
| work_keys_str_mv | AT muldersgreta livingcaringlearningaddressingchallengesinthetransitiontoadultcare |