Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health

Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has...

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Main Authors: Elizabeth M Goldberg, Rochelle K Rosen, Don S Dizon, Kirsten J Langdon, Natalie M Davoodi, Tyler B Wray, Nicole R Nugent, Shira I Dunsiger, Megan L Ranney
Format: Article
Language:English
Published: JMIR Publications 2022-06-01
Series:Journal of Medical Internet Research
Online Access:https://www.jmir.org/2022/6/e35804
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author Elizabeth M Goldberg
Rochelle K Rosen
Don S Dizon
Kirsten J Langdon
Natalie M Davoodi
Tyler B Wray
Nicole R Nugent
Shira I Dunsiger
Megan L Ranney
author_facet Elizabeth M Goldberg
Rochelle K Rosen
Don S Dizon
Kirsten J Langdon
Natalie M Davoodi
Tyler B Wray
Nicole R Nugent
Shira I Dunsiger
Megan L Ranney
author_sort Elizabeth M Goldberg
collection DOAJ
description Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has been held back. The use of these technologies in research is dependent on the investigators’ awareness of their potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a helpful framework to expand social media use in clinical research.
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spelling doaj.art-32711748c8954c6ea5205f9b874858c12023-08-28T22:17:22ZengJMIR PublicationsJournal of Medical Internet Research1438-88712022-06-01246e3580410.2196/35804Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital HealthElizabeth M Goldberghttps://orcid.org/0000-0003-1817-0705Rochelle K Rosenhttps://orcid.org/0000-0003-1598-667XDon S Dizonhttps://orcid.org/0000-0001-6541-9580Kirsten J Langdonhttps://orcid.org/0000-0001-8404-397XNatalie M Davoodihttps://orcid.org/0000-0002-6532-8088Tyler B Wrayhttps://orcid.org/0000-0003-4545-9141Nicole R Nugenthttps://orcid.org/0000-0001-8756-5618Shira I Dunsigerhttps://orcid.org/0000-0001-5636-0601Megan L Ranneyhttps://orcid.org/0000-0002-8450-9642 Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has been held back. The use of these technologies in research is dependent on the investigators’ awareness of their potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a helpful framework to expand social media use in clinical research.https://www.jmir.org/2022/6/e35804
spellingShingle Elizabeth M Goldberg
Rochelle K Rosen
Don S Dizon
Kirsten J Langdon
Natalie M Davoodi
Tyler B Wray
Nicole R Nugent
Shira I Dunsiger
Megan L Ranney
Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
Journal of Medical Internet Research
title Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
title_full Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
title_fullStr Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
title_full_unstemmed Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
title_short Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health
title_sort using social media for clinical research recommendations and examples from the brown lifespan center for digital health
url https://www.jmir.org/2022/6/e35804
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