The Prevalence and Lived Experience of Pain in People Undertaking Dialysis
(1) Background: Pain is a prevalent and debilitating symptom associated with kidney failure. However, the impact of pain on quality of life remains unclear. We aimed to identify the prevalence, severity and characteristics of people undertaking dialysis impacted by pain and explore the lived experie...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2023-01-01
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| Series: | Kidney and Dialysis |
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| Online Access: | https://www.mdpi.com/2673-8236/3/1/2 |
| _version_ | 1797610705294196736 |
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| author | Ivy Moore Pauline Byrne Narelle Ilic Jenny Heng-Chen Chen Kelly Lambert |
| author_facet | Ivy Moore Pauline Byrne Narelle Ilic Jenny Heng-Chen Chen Kelly Lambert |
| author_sort | Ivy Moore |
| collection | DOAJ |
| description | (1) Background: Pain is a prevalent and debilitating symptom associated with kidney failure. However, the impact of pain on quality of life remains unclear. We aimed to identify the prevalence, severity and characteristics of people undertaking dialysis impacted by pain and explore the lived experience of pain (2) Methods: A cross-sectional survey was administered to people undertaking haemodialysis or via telephone to those undertaking peritoneal and home haemodialysis in a single tertiary centre. Open-ended questions were analysed using thematic analysis. (3) Results: Responses were received from 131 participants (response rate 66.8%). Most were undergoing haemodialysis (87.0%). Pain was present in 92% (<i>n</i> = 121) of patients with 62% (<i>n</i> = 81) reporting pain as severe to excruciating. Common sites of pain were joints, muscle cramps, headaches, fistula pain, non-specific back pain and neuropathy. The overarching theme from the thematic analysis was that pain was a “debilitating and accepted burden” (4) Conclusions: Pain is highly prevalent, severe and debilitating in those on dialysis. There is a need for health care providers to be proactive and attentive to the management of pain. More research is needed to identify effective treatment approaches to decrease pain burden and improve the quality of life in those with kidney failure. |
| first_indexed | 2024-03-11T06:18:58Z |
| format | Article |
| id | doaj.art-32956a7b0c6543c29c72cb54649bc78a |
| institution | Directory Open Access Journal |
| issn | 2673-8236 |
| language | English |
| last_indexed | 2024-03-11T06:18:58Z |
| publishDate | 2023-01-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Kidney and Dialysis |
| spelling | doaj.art-32956a7b0c6543c29c72cb54649bc78a2023-11-17T12:05:23ZengMDPI AGKidney and Dialysis2673-82362023-01-0131243510.3390/kidneydial3010002The Prevalence and Lived Experience of Pain in People Undertaking DialysisIvy Moore0Pauline Byrne1Narelle Ilic2Jenny Heng-Chen Chen3Kelly Lambert4Faculty of Science, Medicine and Health, University of Wollongong, Wollongong 2522, AustraliaDepartment of Renal Medicine, Illawarra Shoalhaven Local Health District, Wollongong 2522, AustraliaDepartment of Renal Medicine, Illawarra Shoalhaven Local Health District, Wollongong 2522, AustraliaDepartment of Renal Medicine, Illawarra Shoalhaven Local Health District, Wollongong 2522, AustraliaFaculty of Science, Medicine and Health, University of Wollongong, Wollongong 2522, Australia(1) Background: Pain is a prevalent and debilitating symptom associated with kidney failure. However, the impact of pain on quality of life remains unclear. We aimed to identify the prevalence, severity and characteristics of people undertaking dialysis impacted by pain and explore the lived experience of pain (2) Methods: A cross-sectional survey was administered to people undertaking haemodialysis or via telephone to those undertaking peritoneal and home haemodialysis in a single tertiary centre. Open-ended questions were analysed using thematic analysis. (3) Results: Responses were received from 131 participants (response rate 66.8%). Most were undergoing haemodialysis (87.0%). Pain was present in 92% (<i>n</i> = 121) of patients with 62% (<i>n</i> = 81) reporting pain as severe to excruciating. Common sites of pain were joints, muscle cramps, headaches, fistula pain, non-specific back pain and neuropathy. The overarching theme from the thematic analysis was that pain was a “debilitating and accepted burden” (4) Conclusions: Pain is highly prevalent, severe and debilitating in those on dialysis. There is a need for health care providers to be proactive and attentive to the management of pain. More research is needed to identify effective treatment approaches to decrease pain burden and improve the quality of life in those with kidney failure.https://www.mdpi.com/2673-8236/3/1/2painkidney failurecross sectional surveydialysisquality of life |
| spellingShingle | Ivy Moore Pauline Byrne Narelle Ilic Jenny Heng-Chen Chen Kelly Lambert The Prevalence and Lived Experience of Pain in People Undertaking Dialysis Kidney and Dialysis pain kidney failure cross sectional survey dialysis quality of life |
| title | The Prevalence and Lived Experience of Pain in People Undertaking Dialysis |
| title_full | The Prevalence and Lived Experience of Pain in People Undertaking Dialysis |
| title_fullStr | The Prevalence and Lived Experience of Pain in People Undertaking Dialysis |
| title_full_unstemmed | The Prevalence and Lived Experience of Pain in People Undertaking Dialysis |
| title_short | The Prevalence and Lived Experience of Pain in People Undertaking Dialysis |
| title_sort | prevalence and lived experience of pain in people undertaking dialysis |
| topic | pain kidney failure cross sectional survey dialysis quality of life |
| url | https://www.mdpi.com/2673-8236/3/1/2 |
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