Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24
To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific q...
| Main Authors: | , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Medical Journals Sweden
2021-08-01
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| Series: | Acta Dermato-Venereologica |
| Subjects: | |
| Online Access: |
https://www.medicaljournals.se/acta/content/html/10.2340/00015555-3905
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| _version_ | 1818510013228908544 |
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| author | Servando E. Marron Manuel Gomez-Barrera Lucía Tomas Aragones Ana Goni-Navarro Esther Vilarrasa Rosa María Diaz-Diaz Francisco Javier Garcia-Latasa de Aranibar Ricardo Campos-Rodenas Victoria Fuentelsaz del Barrio Yolanda Gilaberte-Calzada Tamara Gracia-Cazaña Anna María Morales-Callaghan Sandra Ros-Abarca María Blanca Madrid-Alvarez Lluís Puig |
| author_facet | Servando E. Marron Manuel Gomez-Barrera Lucía Tomas Aragones Ana Goni-Navarro Esther Vilarrasa Rosa María Diaz-Diaz Francisco Javier Garcia-Latasa de Aranibar Ricardo Campos-Rodenas Victoria Fuentelsaz del Barrio Yolanda Gilaberte-Calzada Tamara Gracia-Cazaña Anna María Morales-Callaghan Sandra Ros-Abarca María Blanca Madrid-Alvarez Lluís Puig |
| author_sort | Servando E. Marron |
| collection | DOAJ |
| description | To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multicentre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. |
| first_indexed | 2024-12-10T22:53:25Z |
| format | Article |
| id | doaj.art-34b9bef2ab834a70ab04cfbfb6ed8a17 |
| institution | Directory Open Access Journal |
| issn | 0001-5555 1651-2057 |
| language | English |
| last_indexed | 2024-12-10T22:53:25Z |
| publishDate | 2021-08-01 |
| publisher | Medical Journals Sweden |
| record_format | Article |
| series | Acta Dermato-Venereologica |
| spelling | doaj.art-34b9bef2ab834a70ab04cfbfb6ed8a172022-12-22T01:30:20ZengMedical Journals SwedenActa Dermato-Venereologica0001-55551651-20572021-08-011018adv0052910.2340/00015555-39057049Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24Servando E. Marron0Manuel Gomez-BarreraLucía Tomas AragonesAna Goni-NavarroEsther VilarrasaRosa María Diaz-DiazFrancisco Javier Garcia-Latasa de AranibarRicardo Campos-RodenasVictoria Fuentelsaz del BarrioYolanda Gilaberte-CalzadaTamara Gracia-CazañaAnna María Morales-CallaghanSandra Ros-AbarcaMaría Blanca Madrid-AlvarezLluís Puig Dermatology Department, University Hospital Miguel Servet, Zaragoza, Spain. To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multicentre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. https://www.medicaljournals.se/acta/content/html/10.2340/00015555-3905 hidradenitis suppurativa quality of life patient-reported outcome measure psychometrics validation |
| spellingShingle | Servando E. Marron Manuel Gomez-Barrera Lucía Tomas Aragones Ana Goni-Navarro Esther Vilarrasa Rosa María Diaz-Diaz Francisco Javier Garcia-Latasa de Aranibar Ricardo Campos-Rodenas Victoria Fuentelsaz del Barrio Yolanda Gilaberte-Calzada Tamara Gracia-Cazaña Anna María Morales-Callaghan Sandra Ros-Abarca María Blanca Madrid-Alvarez Lluís Puig Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 Acta Dermato-Venereologica hidradenitis suppurativa quality of life patient-reported outcome measure psychometrics validation |
| title | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
| title_full | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
| title_fullStr | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
| title_full_unstemmed | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
| title_short | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
| title_sort | quality of life in hidradenitis suppurativa validation of the hsqol 24 |
| topic | hidradenitis suppurativa quality of life patient-reported outcome measure psychometrics validation |
| url |
https://www.medicaljournals.se/acta/content/html/10.2340/00015555-3905
|
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