Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia
Citizenship for people with a disability has become a notable subject within disability studies, but dementia has only sparingly been included in these studies. However, an important international debate on citizenship for people with dementia is emerging, highlighting rights, empowerment, agency, a...
| Main Authors: | , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Stockholm University Press
2018-02-01
|
| Series: | Scandinavian Journal of Disability Research |
| Subjects: | |
| Online Access: | https://www.sjdr.se/articles/35 |
| _version_ | 1797708925885218816 |
|---|---|
| author | Gøril Ursin Ann Therese Lotherington |
| author_facet | Gøril Ursin Ann Therese Lotherington |
| author_sort | Gøril Ursin |
| collection | DOAJ |
| description | Citizenship for people with a disability has become a notable subject within disability studies, but dementia has only sparingly been included in these studies. However, an important international debate on citizenship for people with dementia is emerging, highlighting rights, empowerment, agency, and new socio-political understandings. Yet, even though these studies often entail a relational understanding, they tend to perceive citizenship as allocated statically to individuals. This article contributes to the debate by conceptualizing relational citizenship as the distributed achievements of care-collectives consisting of a complex set of socio-material agents, including the person with dementia and the disease. Rather than adding more knowledge about experiences of dementia, the article develops an understanding of the critical mechanisms producing citizenship for all, and of care-collectives as potential facilitators for such distributed achievements. The results indicate that citizenship is a malleable and precarious enactment that needs continuous nourishment to be maintained, and that localized knowledge about the emergence and development of care-collectives is crucial for this maintenance and, hence, for shaping decent conditions for an everyday life with dementia. |
| first_indexed | 2024-03-12T06:28:48Z |
| format | Article |
| id | doaj.art-34c0b2969ae4435bbd7b90ea406df472 |
| institution | Directory Open Access Journal |
| issn | 1501-7419 1745-3011 |
| language | English |
| last_indexed | 2024-03-12T06:28:48Z |
| publishDate | 2018-02-01 |
| publisher | Stockholm University Press |
| record_format | Article |
| series | Scandinavian Journal of Disability Research |
| spelling | doaj.art-34c0b2969ae4435bbd7b90ea406df4722023-09-03T01:44:08ZengStockholm University PressScandinavian Journal of Disability Research1501-74191745-30112018-02-01201627110.16993/sjdr.35482Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with DementiaGøril Ursin0Ann Therese Lotherington1Faculty of Social Sciences, Nord University, P.O. Box 1490, 8049 BodøCentre for Women’s and Gender Research, Faculty of Humanities, Social Sciences and Education, UiT, the Arctic University of Norway, P.O. Box 6050 Langnes, 9037 TromsøCitizenship for people with a disability has become a notable subject within disability studies, but dementia has only sparingly been included in these studies. However, an important international debate on citizenship for people with dementia is emerging, highlighting rights, empowerment, agency, and new socio-political understandings. Yet, even though these studies often entail a relational understanding, they tend to perceive citizenship as allocated statically to individuals. This article contributes to the debate by conceptualizing relational citizenship as the distributed achievements of care-collectives consisting of a complex set of socio-material agents, including the person with dementia and the disease. Rather than adding more knowledge about experiences of dementia, the article develops an understanding of the critical mechanisms producing citizenship for all, and of care-collectives as potential facilitators for such distributed achievements. The results indicate that citizenship is a malleable and precarious enactment that needs continuous nourishment to be maintained, and that localized knowledge about the emergence and development of care-collectives is crucial for this maintenance and, hence, for shaping decent conditions for an everyday life with dementia.https://www.sjdr.se/articles/35dementiacitizenshipdistributed achievementcare-collective |
| spellingShingle | Gøril Ursin Ann Therese Lotherington Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia Scandinavian Journal of Disability Research dementia citizenship distributed achievement care-collective |
| title | Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia |
| title_full | Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia |
| title_fullStr | Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia |
| title_full_unstemmed | Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia |
| title_short | Citizenship as Distributed Achievement: Shaping New Conditions for an Everyday Life with Dementia |
| title_sort | citizenship as distributed achievement shaping new conditions for an everyday life with dementia |
| topic | dementia citizenship distributed achievement care-collective |
| url | https://www.sjdr.se/articles/35 |
| work_keys_str_mv | AT gørilursin citizenshipasdistributedachievementshapingnewconditionsforaneverydaylifewithdementia AT annthereselotherington citizenshipasdistributedachievementshapingnewconditionsforaneverydaylifewithdementia |